invisibleilness

Join the Conversation on
153 people
0 stories
7 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post

I want to start a blog to raise awareness to #MitochondrialDisease but I have no idea where to start.

A week and a half ago I was diagnosed with an unnamed mitochondrial disease. That’s right, it’s so rare they haven’t even named it yet. I want to start spreading information. I started here at the mighty but want to expand a little more. If anyone has experience with blogging please let me know! Thanks everyone! #RareDisease #invisibleilness #ChronicIllness #Blog #CheerMeOn #52SmallThings #CheckInWithMe

3 comments
Post

Good books about living with chronic pain/invisible illnesses

I recently read Jenny Morris' 'Pride against Prejudice' and I really enjoyed it.
Can you recommend good books about living with chronic pain/invisible illnesses? It can be personal accounts or more academic books too
#invisibleilness #Books #Reading

Post

Grocery shopping #CheerMeOn #Selfcompassion

I went food shopping with my sister and was able to ask to switch grocery carts because mine was getting to heavy for me to push it. I’m extremely tired and in pain but I did it. Im very thankful for my family and the support I am receiving. #familysupport #invisibleilness #Immyownbestadvocte

2 comments
Post

On #rareillness day. What is the most annoying thing ppl comment on

#invisibleilness #Bipolar #Paranoia what question or sorry comments to your illness do you get. Mine is you look OK today #ChronicIllness #invisibleilness that's why it's got a name, so about 2 days a week I'm physically able to put makeup and dress nicely if I have to go to the town. If they could see me the other days of the week. What's yours or maybe you get the same problem as me. Interesting

5 comments