LionnessofGod

Basics!!!
Regular quilt - too heavy.
Soft throw - feels choking and not cozy enough for sleeping.
Sheet - grates on my nerves (pun intended).
Seams - ARGH!!!
I'm not even talking about how to reduce pain or insomnia so I can actually sleep. I just want to know what's best as far as blanket and sheet... #CRPSWarrior #ComplexRegionalPainSyndrome #Fibromyalgia #LionnessofGod

It's hard enough to get myself in the shower. Currently, it happens once a week. Waiting on home health aide to go through. But I cry before, during and after. It's exhausting. It's oh so painful. The water on my Piece of Leg. Open the curtain, washroom gets flooded. Can't cover the Piece of Leg with anything - or can I? I feel like it's always figuring out which death pain is gonna be an easier death pain. Put on blaring music to try to let loose. Wishful thinking. Put on soft music to relax. Makes me cry harder. No music. No distraction. HELP this girl shower and not collapse and cry each time, as I am now. Oh and the window must be opened otherwise I pass out after. But the noise and smells that come through the window. Aaaaaaarrrrgggghhhhhhh. The simplest dumbest stupidest thing that I always took for granted is a horrific source of stress and anguish. I'm not happy. #CRPSWarrior #ComplexRegionalPainSyndrome #Shower #LionnessofGod

Imagine for a second that you are trapped in a wildfire. While you're standing there burning, imagine that there are live wires running through you electrocuting you. While you're being burned and electrocuted, imagine there are zillions of knives, needles, and daggers plunging through your body. While you're burning, frying and being stabbed, imagine your body as though it is a volcano, the pressure so intense, the volcanic eruption inevitable. While you're burning, sizzling, being stabbed, exploding, imagine watching your body change colors and lose its healthy natural form and waste away. While you're burning, zapping, being stabbed, exploding, and body wasting away, imagine that every sound you hear, every movement, every vibration, every change in air pressure, every time the wind blows, every time the temperature changes, every time you're touched by anyone or anything, your hell intensifies. While you're burning, sizzling, being poked, exploding, body wasting away, with intervals of intensification, imagine that your feet are shackled and you cannot flee. You cannot run. You cannot walk. You cannot stand. You cannot even sit down because it's too excruciating. You cannot even lay down because it's too painful. Imagine that you are told by the Lieutenant General that you need to remain like this for years, and probably for life. He warns you further, don't even bother yelling for help, because no one will believe you. They will say you're crazy, delusional, psychotic, and lock you up in a state institution. They will ridicule you, mistreat you, disrespect you, abuse you, and turn you into the laughing stock of the town. They will run far away from you because they want nothing to do with this sick and deranged individual. Imagine yourself hearing this while being burned, electrocuted, stabbed, exploding, body wasting away with times of increased hell and imagine yourself trying to figure out how you will ever get through another second of this torture. Another minute. Another day. Another year. The rest of your life. Imagine trying to sleep. Imagine wanting to eat. Imagine being able to take care of your hygiene and ADL's. Imagine spending time with family. Imagine shooting the breeze with friends. Imagine being able to work or concentrate. Imagine caring for anyone else. Imagine laughing. Imagine feeling productive and purposeful. Imagine feeling hopeful. Imagine all this. And you're imagining me. Me with CRPS. Complex Regional Pain Syndrome.
#CRPSWarrior
#ComplexRegionalPainSyndrome
#Chronicpainwarrior
#ChronicPainSyndrome
#ChronicPain
#Fibromyalgia
#ChronicMigraines
#TemporomandibularJointDisorders
#Osteoarthritis

#LionnessofGod