Systemic Lupus Erythematosus

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Bipolar Disorder

Good Afternoon to all. I am a veteran aged 59 years from Kerala retired from regular army during Feb 2007. I had multiple episodes of Mania onset during Apr 1996 and finally diagnosed as Manic depressive psychosis, survived with after treated with Lithium. Ater my discharge also had two relapses. During Apr 2018, my doctor instructed to stop alcohol consumption for a permanent solution to contain the illness under medication (Lithium). My SLE levels are 0.0.0.4 to 0.0.0.5 Meq/Ltr. I told him that I cant stop in take of alcohol mostly two to three days a week in moderate and taking lithium 600mg at night. He stopped treating me. I am continuing with my life style and lithium treatment my own since then and fine with the above mentioned lithium level and Creatine. I request my fellow colleagues not to copy me please. Take advise of doctors. I am sure I am neither doing right nor wrong. I am not sure how long this go. I am working with a Financial Company since 2009 and living with wife and two daughers....

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Hair Loss

I had a biopsy and bloodwork that confirms Systemic Lupus. I have another month before I am able to see a RA doctor. Appointments are 3 months out for new patients. My dermatologist prescribed 40 mg of Prednisone daily and 200 mg of Hydroxychloroquine. I have been in a flare since August. My hair is falling out daily. It is the full strand not breakage. The bald spots are the size of a nickel. Does anyone know how to treat this?

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I'm new here!

Hi, my name is TurquoiseOcelot805. I'm here because I have SLE, commonly known as lupus. I also have thyroid issues. I am always looking for ways to educate myself on my illness and also seek support.

#MightyTogether #Lupus

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I’m new here! For almost 24 years I’ve been living with #SLE #Fibromyalgia #Depression and #Anxiety . These are the highlighed issues.

Hi, my name is Bamaintn.

#MightyTogether

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5 reactions 1 comment
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I’m new here! For almost 24 years I’ve been living with #SLE #Fibromyalgia #Depression and #Anxiety . These are the highlighed issues.

Hi, my name is Bamaintn.

#MightyTogether

(edited)
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Trying to live life.

I’m new to this group I have lupus sle, and osto arthritis and just found out I have hypo thryoid. I stay really tired can sleep a lot. Meds don’t seem to be helping so I feel more depressed and getting older sure don’t help. I start off with a good mindset saying what I want or need to do but a lot of times don’t happen the way I want it to.

31 reactions 9 comments
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Dying is a state of ongoing loss...

Sallie Tisdale once said, "Dying is a state of ongoing loss. Hair, teeth, erections. The ability to tie shoes or carry groceries. Breasts. Vision. Attention span. The evening walk. Driving. The strength to climb stairs, to do the laundry and housework. Bladder control, a sense of smell, balance. Relationships disappear, plans are revoked, social roles are extinguished."

I feel this quote in every facet of my being. I comes to me in seconds, minutes, hours of my days, weeks and months. Chronic illness is a state of ongoing loss. Chronic illness where death is the inevitable result is even more so. I think about this quote all the time and I just sigh. There is nothing to be done about it. Nothing left to do, but accept the L and keep moving forward until you stop or make it stop.

Dying is a state of ongoing loss. Chronic illness is a state of ongoing loss. Always in mourning with no end in sight.

#Lupus #SLE #chornickidneydisease #ChronicLymeDisease #hashimotos #Ending #theend

11 reactions 2 comments
Post

Dying is a state of ongoing loss...

Sallie Tisdale once said, "Dying is a state of ongoing loss. Hair, teeth, erections. The ability to tie shoes or carry groceries. Breasts. Vision. Attention span. The evening walk. Driving. The strength to climb stairs, to do the laundry and housework. Bladder control, a sense of smell, balance. Relationships disappear, plans are revoked, social roles are extinguished."

I feel this quote in every facet of my being. I comes to me in seconds, minutes, hours of my days, weeks and months. Chronic illness is a state of ongoing loss. Chronic illness where death is the inevitable result is even more so. I think about this quote all the time and I just sigh. There is nothing to be done about it. Nothing left to do, but accept the L and keep moving forward until you stop or make it stop.

Dying is a state of ongoing loss. Chronic illness is a state of ongoing loss. Always in mourning with no end in sight.

#Lupus #SLE #chornickidneydisease #ChronicLymeDisease #hashimotos #Ending #theend

11 reactions 2 comments