Systemic Lupus Erythematosus

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Systemic Lupus Erythematosus
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I'm new here!

Hi, my name is N8TRGRL_24. I'm here because I was recently diagnosed with SLE. Beginning my education on this diagnosis and how to best manage, especially my diet and exercise routines to avoid triggering fatigue and inflammation overall.

#MightyTogether #Lupus

4 reactions 2 comments
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Lupus and Pregnancy

Hi, does anyone have advice on pregnancies with Lupus? I’m 9 weeks and have SLE it’s control and has been for a while but I still have fatigue and crazy morning sickness. How have others done throughout pregnancy and delivery? Any recommendations? We’re you able to work through out your whole pregnancy? I’ve been doing 4 days a week only lasting 5 or 6 hours a day with a desk job just due to being sick and crazy fatigue. Just wondering what to expect and how people do it all?

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Looking for the Silver Lining

Hey fellow spoonies!

I have had a really rough year in general and was diagnosed with SLE last May (2023). Following my diagnosis, my husband filed for divorce and now I have joint custody of my two children and I live alone. I work full time and feel like I have to try so extremely hard to do half the things I used to be able to do with ease. My productivity definitely took a hit but luckily I was an overachiever before so I’m still meeting the expectations of my job, even with chronic fatigue and pain. I have started seeing someone and they are really supportive and accepting but I’m trying to take things slow and don’t want them to be my “caregiver “.

The point of my post is to hear from you all. Is there hope? Will this ever get easier? I feel like I’m just treading water to survive but my body is getting tired. I miss what it feels like to thrive. I can’t imagine that I’ll ever know what it feels like to not have pain again. All I see for my future are struggles and I’m scared. Normally I’m a very positive and resilient person, normally I’m the one people go to when they’re having a tough time…

How do you cope with the social emotional and mental health effects of this disease?

8 reactions 1 comment
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Bipolar Disorder

Good Afternoon to all. I am a veteran aged 59 years from Kerala retired from regular army during Feb 2007. I had multiple episodes of Mania onset during Apr 1996 and finally diagnosed as Manic depressive psychosis, survived with after treated with Lithium. Ater my discharge also had two relapses. During Apr 2018, my doctor instructed to stop alcohol consumption for a permanent solution to contain the illness under medication (Lithium). My SLE levels are 0.0.0.4 to 0.0.0.5 Meq/Ltr. I told him that I cant stop in take of alcohol mostly two to three days a week in moderate and taking lithium 600mg at night. He stopped treating me. I am continuing with my life style and lithium treatment my own since then and fine with the above mentioned lithium level and Creatine. I request my fellow colleagues not to copy me please. Take advise of doctors. I am sure I am neither doing right nor wrong. I am not sure how long this go. I am working with a Financial Company since 2009 and living with wife and two daughers....

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Hair Loss

I had a biopsy and bloodwork that confirms Systemic Lupus. I have another month before I am able to see a RA doctor. Appointments are 3 months out for new patients. My dermatologist prescribed 40 mg of Prednisone daily and 200 mg of Hydroxychloroquine. I have been in a flare since August. My hair is falling out daily. It is the full strand not breakage. The bald spots are the size of a nickel. Does anyone know how to treat this?

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I'm new here!

Hi, my name is TurquoiseOcelot805. I'm here because I have SLE, commonly known as lupus. I also have thyroid issues. I am always looking for ways to educate myself on my illness and also seek support.

#MightyTogether #Lupus

4 reactions 2 comments
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I’m new here! For almost 24 years I’ve been living with #SLE #Fibromyalgia #Depression and #Anxiety . These are the highlighed issues.

Hi, my name is Bamaintn.

#MightyTogether

(edited)
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I’m new here! For almost 24 years I’ve been living with #SLE #Fibromyalgia #Depression and #Anxiety . These are the highlighed issues.

Hi, my name is Bamaintn.

#MightyTogether

(edited)
5 reactions 1 comment