Finding Strength and Hope Living With Indolent Systemic Mastocytosis: Gloria’s Story
November 6, 2025
November 6, 2025
Hi, my name is Lily. I'm here because I have several rare chronic illnesses plus some not so rare ones. Two that are the primary behind a lot of secondary are Autoimmune Autonomic Ganglionopathy and Autoimmune Gastrointestinal Dysmotility. My mom also lives with myasthenia gravis.
#MightyTogether #Migraine #AutismSpectrumDisorder #ADHD #Dysautonomia #AutoimmuneAutonomicGanglionopathy #Gastroparesis #EhlersDanlosSyndrome #deltagranulestoragepool #POTS #PolycysticOvarySyndrome #Scoliosis #accomodationparesis #MastCellActivationDisorder #longcovid
Hi everyone! I recently moved to the Seattle area and would love to make some new friends. I’m chronically ill, so my life looks a little different than most people’s, but I enjoy coffee chats, walks on good days, crafting, plants, farmers markets, and spending time with my dog. It can be hard to meet people as an adult, especially when health challenges are involved, so I thought I’d put myself out there. Feel free to message me or comment on this post and say hello❤️ #EDS #EhlersDanlosSyndrome #Spoonie #AutonomicDysfunction #Gastroparesis #MastCellActivationDisorder #ChronicIllness #ArnoldChiariMalformation #Syringomyelia #Diabetes #ChronicPancreatitis #ChronicPain #Friends
Hi, my name is VelvetMarginalia (she/her). I have hEDS, EOE, PTSD, fibro, and migraines. and I'm pursuing diagnosis of cervical instability, chron's, mcas, pots, and more. I am looking for community as my health has rapidly declined and I would love to find people who understand. I am also a mama to a medically complex kiddo, and both my kiddos have autism/ADHD. I'm also a lesbian and have an amazing partner.
Hi, my name is poohtraybuon. Both my adult children and I have
#MightyTogether #Anxiety #Fibromyalgia #ADHD #Migraine #POTS #Dysautonomia #AutonomicDysfunction #Anxiety #EhlersDanlosSyndrome #MastCellActivationDisorder and so many other acronymns.
Hi, my name is UsefulSnowman1979. I'm here because
#MightyTogether #Fibromyalgia #ADHD #EhlersDanlosSyndrome #AutismSpectrumDisorder #MCAS #avnrt
Hi, my name is UsefulSnowman1979. I'm here because
#MightyTogether #Fibromyalgia #ADHD #EhlersDanlosSyndrome #AutismSpectrumDisorder #MCAS #avnrt
Hi, my name is Zebramama0914. I'm here because I need as much help as I can get for myself and my kiddos. Dealing with hEDS, dysautonomia, MCAS, ADHD, SIBO, CCI, and Tourette’s amongst us.