hypermobile

Hi, my name is Btrfly6499. I'm here because

#MightyTogether #Migraine #MastCellActivationDisorder #atypicaltrigeminalneuralgia #EhlersDanlosSyndrome #Atypical #hypermobile #POTS

Hi, my name is LextheMoss. I'm here because

#MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #Fibromyalgia #Migraine #ADHD #PTSD #EatingDisorder #FunctionalNeurologicalDisorder #PosturalOrthostaticTachycardiaSyndrome #OrthostaticHypotension #EhlersDanlosSyndrome #hypermobile

Hi, my name is ACreativePlace. I want to learn more on how to deal with my Disabilities/Conditions. I also want to become clean from self harm

#MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #EatingDisorder #OCD #PTSD #ADHD #EhlersDanlosSyndrome #Selfharm #FND #FunctionalNeurologicalDisorder #SH #hypermobile #hypermobileehlersdanlos #TouretteSyndrome #SuicidalIdeation #MentalHealth

I had a knee dislocation today while I was literally just sitting on the couch. It was so jarring and random. I’ve dislocated my knees plenty of times but it’s still terrifying every time. Now tonight I’m feeling very anxious and kinda traumatized tbh.

I just want my body to be able to feel relaxed for once. I hate the constant muscle guarding and never being able to get comfortable. I hate having this very real fear that something can come out of place at any second.

Does anyone relate to not feeling safe in your body because of the instability?

Idk what I’m looking for here w/ this post but I’m just feeling kind of alone with all of these feelings right now. It just sucks.

I have hypermobile ehlers danlos and I often wake up with my head cranked to one side. I realize that this happens when I wake up after my husband gets up for the day. I'm not coherent enough to realize it happens until I wake up a few hours later. I'm a side sleeper and when he moves it shifts the bed and I fall forward and my weight and his pillows crank my neck. I have degenerative disk disease in my neck and TMJ in addition. Thank you in advance!

Oof-rough health week. STILL rehabbing a knee subluxation from February, but wait there’s more! Neck popped out for Easter, IBS symptoms all week, and for a limited time, an uncomfortable UTI!

At least my emotions are calm/steady. I’m just accepting it all, and resting in bed close to the bathroom.

Send memes/tv show suggestions/encouragement! This is NUTS!!!!!!!! #eds #hypermobile #notokay

I live in the Tampa Bay Area and have been completely disappointed with every doctor I have come in contact with from PCP to OBGYN to GI to Rheumatologist. Does anyone have any doctors in the area that specialize in EDS, preferably hEDS? #Hypermobility #hypermobile #EhlersDanlosSyndrome #ChronicIllnessEDS #hypermobileehlers-DanlosSyndrome(hEDS) #HEDS #healthadvocate

I have been in and out of physical therapy for the last 10 years when my symptoms became really bad.

I have had some good physical therapists and I’ve had some incompetent ones that hurt me/just wanted my $.

Are there any red flags/guidance I should look for in my evaluation on Friday? Any advice is appreciated.

Thank you Mightys!
#EhlersDanlosSyndrome #hypermobile