Medullary Sponge Kidney (MSK)

It seems that at least twice a year, I know of at least two or three medullary sponge kidney patients – MSKers or spongies, as we like to call ourselves – who end up in the hospital at the same time with sepsis. Sometimes it’s four to five at once. I have been there myself. While anyone [...]

I am writing not only for myself, but on the behalf of a couple of thousand patients from all over the world. That doesn’t sound like many affected compared to other diseases, and it’s true, we are scattered. Considering that our disease is rare and it’s taken several years for them to find our group [...]

I know what you’re going through and I understand. You probably haven’t heard that from anyone yet. You’ve either had numerous issues with kidney stones over the years or had repeated urinary tract, kidney and/or bladder infections. It may be a combination of all of those, which is my situation. You may pass stones on [...]