I'm new here!
Hi, my name is Moxie26. I'm here because I have Medullary Sponge Kidney. I was diagnosed when I was 15 and I'm now 61 ! I'm too young to be 61, but on the other hand some days I feel every second of those years because of the CHRONIC PAIN associated with MSK. I have a chronic kidney infection that won't clear because the infection has attached to the stones. And if that's not enough this pass year I have had both knees replaced, spine surgery, gallbladder surgery, cataract surgery for both eyes, lithotripsy and kidney surgery. I still find some time to have fun spend time with family and enjoy several different hobbies ! I would love to find a clinical trial for the MSK so if anyone hears of one please let me know. Thank you