chronicpainsufferer

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    What Advice Would You Give ???

    <p>What Advice Would You Give ???</p>
    17 people are talking about this
    Community Voices

    Getting a diagnosis #Diagnosis

    Feeling flat today been managing to keep myself up but Iv flattened! I saw msk last week wasn’t great really I managed to do the exercises so he basically said I’m ok nothing wrong. I got the letter today of his report it’s positive and negative when I showed my husband he said yeah it sounds like he thinks your making it up and having my husband confirm my fears I just feel flat now! I’m in agony every day and can hardly walk daily. Iv applied for pip and disabled badge how am I ment to make them believe me if doctors don’t! Should I just keep asking the doctor? I am been referred to pain so maybe I can talk to them? Ugh spent my whole life in pain but only just started seeing the doctor again about it after a slipped disk knocked me off my feet 6 months ago. I have hyper mobility, scoliosis and facet joint arthropery I just feel is that enough of a diagnosis as every time I talk to doctor they as oh yeah those things are common your fine crack on! #JointHypermobilitySyndrome #Hypermobility #facetjointarthropery #fja #Arthritis #ChronicPain #chronicpainsufferer #amidisabled #Disability

    3 people are talking about this
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    I believe my RA cost me my college admissions
    #RheumatoidArthritis
    #Arthritis

    Typing with my hands is getting harder.
    Staying mentally fit is getting harder.
    My academics suffered in my high school years as I struggled to manage my RA and academics. I dropped from being at the top 5% of the class to just below average. For some reasons, admissions officers didn't take this into consideration while making decisions regarding my college application.

    Eventually, only 3 schools accepted me out of the over 20 schools I applied to. But there's very little assurance I'll be able to attend college this fall due to insufficient financial aid.

    I'll be 20 this year, and I'm hopeful that I'll make something useful out of pain-filled 10 years from now. I just hope I get to attend college soon.

    #chronicpainsufferer
    #Depression
    #Anxiety

    2 people are talking about this
    Community Voices

    Do any of you ever find yourself going into detail? I think due to my TBI and 1 location was on Frontal Lobe so Cognitive has you speaking or going into a lot of detailed info. I don't usually know I'm doing it until after the fact. Then, of course I feel embarrassed bc of how long-winded it looks when written or a " Chatty Cathy" when speaking on certain things. I used to be good at keeping in a lot more than I revealed and definitely can feel how it's changed all my relationships w ppl in my life which really hurts and find myself alone more than I felt before when it was easier to not talk about how I'm feeling. I was in a wreck and brain isn't quite the same, not much especially physically is the same and that cost a lot of "friendships" and even relationships w family members. Of course ppl don't understand so they'll pick on me about certain things or try to tell me what I need to do or say to make it better. As if it were that easy, if so then obviously we wouldn't be feeling certain ways about certain things which we all have our own topics or actions that cause Triggers for us. See, I've done it even further. Maybe bc dealing with so much medically speaking and being Disabled due to the actions of another which I have been through Therapy to forgive. I'm a 44 year old woman battling every day life obstacles primarily in a wheelchair, sometimes Prosthetic but above knee so literally pain in my butt and I can't work while I live in my house I bought 3 yrs prior. I go days, wks & even mnths at a time where I don't have contact with others. I used to be so what they said was the life of the party where my smile and laugh captured everyone in the room and had a job I loved w ppl overall I loved working w. Then BAM! Suddenly too much of a bother and felt how ppl were no longer comfortable being around me thus not being treated the same and not getting invites or even texts to get together to catch up. #TraumaticBrainInjury #LimbAmputations #chronicpainsufferer #SeparationAnxietyDisorder

    Community Voices

    Chronic Pain vs Pain Mangement

    I have chronic pain I have Fibro, RA,
    ankylosing spondylitis, IC/BPS, sciatica, spinal stenosis, arthritis etc.....

    So I am being told by my Pain Dr that I cannot be on pain meds for the rest of my life. Now my pain is chronic as in forever like we know these dx’s are uncureable.
    So how can a pain dr take the stance of taking away my pain pills every month ?
    She said to me you can’t be on pain meds forever.

    You think this is what I wanted to be on a ton of pills a day?
    So you’re start weaning me without telling me down. Thing is I foreshadowed this coming so I got my medical marijuana card. In hopes that this can help.

    I realized beginning of 2020 she had cut one month by 25 pills without telling me then she started talking to me about cutting more and more and more.
    From when we started (year and a half) she already cut me down by by 75 pills and she’s not finished.

    I am pisssed as all hell but my husband doesn’t think it’s a big deal. I’m just like if my conditions weren’t chronic and uncureable ok but I’m still gonna be in pain.

    4 years ago I had a gastric sleeve so a lot of medicine I was on I was told I could no longer take because stomach. No longer take inflammatories. Now at the time of the surgery I was also on OxyContin for quite a few years by then.

    I was told I could no longer be able to take them and was also told by at least 12 dr’s that I would either never be able to get off or it would take years to take me off.

    Well we figured out a schedule and I was off them in a month and a half. That’s when they put me on what I am now and she has been trying to crazy weening me every month.

    My main concern is I’m 52 I’ve been a warrior now for 20 plus years. It makes me thou really scared to think of what my life is going to be like at 60 or 70. The woman in my family live till late 80’s. Any body else dealing with a similar situation?

    #RA #RheumatoidArthritis #Fibro #Fibromyalgia #ic /BPS #InterstitialCystitis #PTSD #sciatica #PituitaryTumors #Nervedamage #AnkylosingSpondylitis #LymeDisease #LymeWarrior #ChronicPain #chronicpainsufferer #DDD #Migraines

    26 people are talking about this
    Community Voices
    Community Voices

    Does anyone have hand tremors?

    I started getting shaky hands about 3 and a half weeks ago. I have psoriatic arthritis, so i asked my rheumy if the tremors were related. She told me no. I have fibromyalgia and a chronic pain sufferer. I was wondering if anyone with fibro has experienced hand tremors? I try to take a picture on my phone and it comes out blurry from my hands shaking. #Fibromyalgia #chronicpainsufferer #PsoriaticArthritis

    11 people are talking about this
    Community Voices
    Community Voices

    “It’s Just So Much” #chronicpainsufferer

    It’s just so much to deal with
    We try real hard not to lose our grip
    It’s just so hard to explain why we feel so bad
    No one seems to understand why at times we are sad
    It’s just so not fair in our eyes
    Because we try so hard for you not to hear our cries
    It’s just so hard dealing with the jeers
    And we do not want to tell others our fears
    It’s just so hard when our pain waxes and wains
    We pray for it all go away so it is the freedom we gain
    It’s just hurts us so much that we cannot even handle a touch
    No one even wants to hear what we have to say
    Our pain is so black and white there’s definitely no gray
    It’s just so hard to fight a never ending war
    We sometimes we are balled up on the floor
    No docs we aren’t just seeking pain pills
    When all we want is relief that we feel.
    #ChronicPain

    2 people are talking about this
    Community Voices

    When u r talking on the phone, and u r so tired, that the person u r talking to, notices, and, in a nice way says, ur tired, and I just through the entire conversation said, I was sorry, because the vocal tremors were rearing their ugly head, I couldn't keep my eyes open, but, fought with everything in me, to keep talking.

    I HATE CHRONIC PAIN, ILLNESS, ESSENTIAL TREMORS.

    Taking a nap now, my body is already done fighting, amdnd sadly it is only 12:25pm.

    I'm so so tired of being Chronically Ill, in pain, 24/7/365 days.

    I hate when people say find the good in ur day, there very rarely is any good in my day, if u can't take that, so be it, u don't have to reach out.

    People say well I do this to find the good in my day, ever thought some of us can't do that, r on a different level than u.

    So frustrating for me at 36yrs old

    Rant Over, sorry

    #EssentialTremors
    #VocalTremors
    #ChronicPain
    #chronicpainsufferer

    3 people are talking about this