methotrexate

Went to the rheumatologist this morning. I’m coming off a PsA flare and I’m still on steroids. He wants to increase my methotrexate and possibly add Enbrel or Humira. I’m disappointed but I know this is part of the process to find suitable treatment. #PsoriaticArthritis #Methotrexate #psoriaticarthritisflare

The highs: being able to wear black, not having to Hoover my dead skin off off the floor on a daily basis, being able to do eye make up without skin flaking and peeling everywhere, no weird or sympathetic looks when soembody sees my neck, being able to open a bottled drink without pain from cracked dead skin.

The lows: spending every Sunday in the eternal limbo of “will my medication ruin my day today?” Being unsure if COVID-19 was ever a risk for me and having to deal with the mixed messaging around vaccinations and guidelines (having to fight my workplace to work from home was a true highlight of this!) Having to deal with period pains, toothache and headaches without the luxury of ibuprofen or aspirin (good lord do I miss ibruprofen…) Having to forewarn the phlebotomy department that my tiny veins aren’t going to be nice today, readying myself to say “I can’t have amoxicillin” to any doctor or nurse trying to prescribe antibiotics and watching them look up interactions.

I think I would be lying if I said that this marvellous yet terrifying medication didn’t impact my life in unprecedented and unpredictable ways on a daily basis. Last Sunday was a duvet day because good old Methotrexate decided to smack my arse into the sun for the day. The week before was okay. Lucky dip Sundays are the new wacky tie Wednesday except without the wacky tie, just the same hesitant unsureness that I felt back then.

All that said, I wouldn’t have it any other way. I lovey weird lucky dip pills, even if they do mean one day of my week is spent in permanent flux. #Psoriasis #Methotrexate

How low must your white blood cell count be before you start getting injections to assist? I have Neutropenia with Absolute lymphopaenia but am not receiving any treatment for it and have not been asked to stop my immune suppressants. #Neutropenia #AutoimmuneDisease #Methotrexate

Hi! How is everyone? I’ve had RA since I was a kid and I’ve been enduring the deformity aspect of the disease. I’m learning to switch my hobbies, for instance, from playing sports to playing chess and reading. I haven’t been able to play a sport in years but it’s been a long battle with my mindset, even though I physically wasn’t able to play. How have you switched and grieved new lifestyle changes? #therapyisvital #Journaling #RA #Support #Community #rituxan #Methotrexate

Hi! My name is Caitlin and I have been dealing with psoriasis on my body since 2010. I mostly have it on my scalp, but the most painful area where I have it is unfortunately my vulva/inner labia. It’s hurts all day when I have to sit for work and most definitely hurts after any kind of sexual activity. I just recently spoke with my dermatologist and was tested so that I can be put on Methotrexate, but after learning a lot about that drug through this app - I am having major second thoughts. My health insurance is piss poor because I have to get it through the Marketplace due to being an independent contractor so the Methotrexate pill is the most cost effective option.

I almost would rather try a diet change before I put myself on this drug that causes these horrible side effects so I’m writing this post today for advice on which foods to try to avoid from now on and where I can go from here? I need relief so bad, but I refuse to go on a drug that will put other parts of my body in pain. I honestly don’t feel like my psoriasis is bad enough to start a drug regimen of that intensity.

Please help ♥️ and thank you in advance! #Psoriasis #Methotrexate #nutrition

I’m 35 and was just diagnosed with osteoporosis and osteopenia. I was going to go on Methotrexate but have concerns that it could further weaken my bone mass. Anyone with osteoporosis who has considered or taken Methotrexate? What have you experienced/learned?

Hey #Spoonies !
I’ve been taking methotrexate for a few months now and it SUCKS. The list of side effects are as long as my arm and take me out of commission for a day or two. So I thought I’d make a playlist of songs to listen to when I can’t focus/hurt too much to function. I am curious! What are your go-to songs when you feel like shit??