Immunocompromised

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    Antimaskers at work!

    I am required to do manual labor, despite having arthritis, fibromyalgia, and CFS. This is already doing a lot of harm (my threshold of tolerance for my CFS symptoms is going down rapidly!). But my immune system is also very bad, and nobody wears masks! A while ago, covid went around the workplace, and I was lucky to probably avoid it, but I won't be so lucky next time I'm sure.

    Does anyone have any advice? I'm terrified. #MyalgicEncephalomyelitis #Fibromyalgia #PsoriaticArthritis #Immunocompromised

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    How to be Covid safe when immunocompromised?

    Hey, my sister has arthritis and her doctor said to take medication that makes her immunocompromised. She’s super worried about getting Covid but doesn’t know how careful she needs to be.

    Can anyone offer any advice?

    Do you need to avoid people completely?

    She can’t contact her doctor until her next appointment in 3 months…

    #Immunocompromised #Arthritis #RheumatoidArthritis

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    Fatigue: it's going to be a loooong day

    Oh dear. I've put my main medication, adalimumab, on hold as I started getting a sore throat last week and possibly going down with something. Adalimumab is an immune suppressant and my rheumatologist says to stop taking it if ill. I was due adalimumab on Friday (it's taken fortnightly). Well I had an awful night last night: woke up in pain twice (at 2330 and again at 0300) and had to get up and get ice, take meds and move about/stretch/massage both times. I also think I had an IBS attack and migraine the first time too 🥴 Today my work consists of reading and understanding a specification and I'm tired and fatigued. Let's just say that's not going to go so well. Its 11am and I just had my first fatigue crash of the day: lying on the floor unable to move while my body reboots. It's going to be a long long day and an even longer week 😴

    #AnkylosingSpondylitis #ChronicPain #ChronicIllness #ChronicFatigue #axialSpondyloarthritis #IrritableBowelSyndromeIBS #Migraine #Immunocompromised

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    People who don’t believe Masks/Vaccine

    Sorry for the vent that’s about to come unfortunately this community is about the only thing I have to talk to and to understand me most days.
    When I got sick my friends and family slowly disappeared. Then you had the years before Biden.
    I think it was difficult to keep our political opinions quiet. I lost friends and family members well you can’t lose them (unfortunately) but ug you just avoid those conversations and them as much as possible. Now it’s Covid, mask mandates and the Vaccine.
    Reason for this rant. I have family members who don’t believe in wearing masks. I have relatives and friends who don’t want to take the vaccine.
    I am immunocopromised. So it makes me angry, really angry.
    They also have children, they as parents don’t believe in wearing masks so then the children follow and do the same as the parents. So if the children g-d forbid got Covid it’s on the parents. Ignorance. Smh.
    So now as much as I love my nieces and nephews I have to avoid seeing them and any family member who doesn’t wear a mask. I already felt quarantined in my life when I got sick. Now I feel I am further isolating myself. Anyone else having these issues with family? #COVID19 #mask #Immunocompromised #quarantined #Vaccine #RheumatoidArthritis #Fibromyalgia #ChronicIllness

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    Covid Positive

    Hi Mighties, I just got a routine covid test yesterday because I'm having a C-section on Friday. It came back positive completely unexpectedly. My husband and I both got our second shots of Moderna a month ago and we're still very careful about what we do and where we go. I have no idea how I was exposed. I have Crohn's Disease, Rheumatoid Arthritis, Asthma, SVT, and EDS. I am immunocompromised. So I know I may not have mounted as strong of a response as others. I'm just really worried and scared. This isn't how I wanted to welcome our little one into the world. I don't have any symptoms. So I'm really hoping I won't have any, but I'm still terrified because I've been told this entire pandemic that I'm high risk for complications. I'm not sure what I'm looking for here. Maybe some reassurance that it'll all be OK and/or experiences from anyone who has gone through the same thing. No anti-vaxxers or false/misleading information please. #COVID19 #Pregnancy #pregnantcoronavirus #CrohnsDisease #InflammatoryBowelDiseaseIBD #RheumatoidArthritis #EhlersDanlosSyndrome #SupraventricularTachycardia #Asthma #RareDisease #Immunocompromised

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    Skip my immunosuppressant meds this week??

    <p>Skip my immunosuppressant meds this week??</p>
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