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Hello and question about naming some of the pain!

Hey all, I'm new to the Mighty! And I have a suspected diagnosis of vEDS, and we are working to confirm that. In the mean time I am so excited about joining a #Community that gets some of the different things my body does!

The heat and humidity has been rough here and today was the first decent day, so I went shopping and it went great! But 2 hours after resting, my left hip started to really hurt and I am experiencing some lower back discomfort - is this what a subluxation feels like, or is it something different?

Thanks all!

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How Do You Make Community Accessible?

How does everyone make community accessible to them as opposed to a utopian ideal? How do you involve yourself in community and really feel supported and empowered by that community? Do you feel that you can turn to them for support in times of need?

#lesslonely #Community support #findingyourtribe #social isolation #Depression anxiety

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We want people to feel less alone.

My friend and I host a Podcast called Creative Copes. It’s a labor of love- for ourselves, our own journeys and the compassion for others. We hope it becomes an aid for people in similar situation as us. We also have this idealistic approach of trying to end stigma and raise awareness about these conditions life has thrown at us by openly talking about them.
We set out to share our personal stories and how we creatively cope; with humor and with sprinkles of scientific studies that we have looked up.

We want YOU to feel less alone.
Honestly, we all want to feel less alone on this windy road that’s is chronic illness.

You can find us on Instagram @ creative.copes and on any listening platform just search up the name. Listen in, subscribe and message us. We would love some conversations with like-minded people.
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#Podcast #ChronicIllness #ChronicPain #Pain #Fibromyalgia #MyalgicEncephalomyelitis #Agoraphobia #Anxiety #SocialAnxiety #CopingTips #Endometriosis #MentalHealth #spinalinjury #OccipitalNeuralgia #Dysautonomia #ChronicVestibularMigraine #Migraine #Community #Disability #youarenotalone #Spoonie #SpoonieProblems #spoonielife #CheerMeOn

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Mental Health Poem

You will never know how it feels to be me
Just breathing everyday feels like darkness is all I see
I’ve never felt normal with those around me
I just can’t help but to wish they would all accept me
Why can’t you understand my mental illness controls me
Stop saying I need to be happy like everyone should be
I wish I was absent sometimes so I can stop explaining myself
But leaving will make everyone think I gave up on life itself

❤️I love you and I’m proud of you❤️ #BorderlinePersonalityDisorder #ButYouDontLookSick #Depression #Community #normal #empty #Empathy

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When Someone Else Informs You…of You.🤩 #Selfcare #Selfesteem #insecurity #conquerthemind

I recently asked a former co-worker, and an experienced professional, to proof my resume. I am illiterate when using a professional vocabulary outlining my skills and abilities.

When I opened the attached file and read the edited document, I literally shed tears. This person knew me. They saw me at work and witnessed my work ethic during good days and bad days. Therefore, when I read their word description of the talents I will bring to a company, their words literally made me rethink who I am…according to me.🫣

Self talk can be rewarding or it can be absolutely debilitating! CPTSD self talk can be deadly, and in more ways than a physical death.

My self-talk mimics words of destruction. This is because, during my formative years, my destruction was desired by an outside authority source. Thus, even now as an adult, love interpreted by my fractured mind is as valuable as seeking to purchase a home with the ten rolls of (fifty) pennies you have saved in your savings account. 😞! Meaning, it just does not add up to much. Basically, you may have money, but it is not a valuable sum, sadly.

So, this entry serves as a reminder to myself, when healthy people know you and they define you as they see you, especially through a positive healthy lens, as the credit card ad says, the experience is, “PRICELESS”!!!❤️

#ComplexPosttraumaticStressDisorder #Fear #insecurity

#Healthy #Friends #Community #Connectivity #security

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I started an Anxiety Journey YouTube Channel. Would mean a lot to get a little support! I’m so nervous !

Hi there I usually post quotes on a mental health friendly supportive Instagram account, occasionally I journal or blog very rarely on blogs I’ve tried before, but I’ve never ever been brave enough to show my face and actually try a YouTube account D: and not be more anonymous behind the screen supporting. I would really appreciate any love or opinions before I risk getting hate comments or trolls with mental health stigma haha > mental health advocate than 😅😂🤣 people actually see it. But I would love to be able to help someone out there not feel so alone in their struggles or offer hope if they are just beginning their journey or could use some kind words/ experiences

If anyone could give me a bit of a boost 😂 so I don’t freak out or overthink the fact I actually did this and made it public and it could actually become something meaningful, I appreciate it! But if not :) I’ll do my best to do it myself, thanks! I tried to be brave and just do it instead of only think about it as a new hobby/ outlet.

My YouTube channel is:

My Anxiety Journey

Or was thinking

Inside My Anxiety Journey, since it’ll be pretty personal ^^ and genuine/ raw :p at times telling my experiences or what it’s like struggling with an invisible illness, physical/ mental.

Thanks!

Appreciate any love
I feel so nervous and embarassed. But actually proud I had the guts to do it D: though I was so back and forth about it.

Hope I’ll stick to it whether I receive good feedback or not, to actually make a meaningful difference and get more courage to do other things like this with advocacy groups or opportunities.

youtube.com/@laurao2107

PS the 3 views are probably me 😅😂 overthinking and analyzing it too much but trying not too haha 😛 😆. I’m a work in progress lmfao 🤣 lol.

A really big deal to me, because I’m perfectly fine being open about my experiences and trying to help or relate to others and support them too, but not used to putting it on the internet like that with my face D: and fear the stigma or openness about it it’s so risky hehe but worth it :) in a way. So I hope it’ll be the start of something new and good. Feel free to share if you have any blogs, YouTube accounts or any fun hobbies/ outlets too ! :)

Also** I’m not posting to promote it, hope it’s allowed here, just needed a little love or support so I don’t back out on my idea 😅😅🥺😭😿💡💖😊😛😆😆😆 because I feel so alone in my experiences sometimes, and don’t want others to feel like that too.

And be alone struggling.

#Anxiety #Support #help #nervous # anxiousbuthappy #anyfeedback #Youtube #New #youtubeaccount #Vlog #Blog #Trying #MentalHealth #Love #Support #supportneeded #ThankYou ! #tryingtobebrave #TheMighty #Community #thanks #appreciateit #Depression #OCD #physicalhealth #MentalHealth #Hobby #Outlet #tryingtofacefears #Phobia #PublicSpeaking #post #Posting #courage #shy #tryingtobebrave #somethingnew #newaccount #youtubeaccount #youtubechannel

My Anxiety Journey

Hi I struggle with anxiety, and mental health/ depression, I know what it’s like to face struggles and stigma, I’m not perfect I feel alone, guilt and shame, I am a work in progress. I get better, and then I get worse, life rotates it’s normal. But if you need any source of hope, inspiration to reach out for help or anything you could find helpful here. I’m more than happy to. I’m not a professional I am just trying a new hobby and outlet hoping to help others like me feel less alone with invisible illness it be physically, mental health/ emotional or so on forth. Even if you don’t struggle I hope I can be a reminder that things do get better, and it’s okay to not always have everything put together. Life can be hard but it can be wonderful too. I wish you all the best on your journey, but this channel is about my anxiety Journey so far, so it’ll be quite deep and personal, but I hope if anyone ever sees this it may be of help. You are not alone. You matter too. Love - Laura O
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The Power of Words #Community #dialogue #Communication #Connection

As I scroll amongst social media sites, I have realized something new in me. My excitement rises when words are shared as a response to any post. But I become like a competitive teen when emojis are communicated. I cannot believe my middle aged self counts and compares my emoji responses with others. Crazy!

Therefore, since I am on medical leave, I have started appreciating the power of words. Don’t get me wrong, I am a true introvert. I love my alone time. But I have noticed my internal feelings, of joy, when crafted words are offered as opposed to the computer generated forms of communication.

Hey, let me just say, I used emojis all the time as a active multitasker running and commuting around city streets! However, now, my state of mind has allowed me the privilege of realizing the power of words and his dialogue builds community.

So, as I embrace this new platform, I will strive to rewire my now altered brain by really responding to this community of #TheMighty . Why? Because I enjoy the power of your words. And I prefer to be in constant dialogue with you, the community of #TheMighty !!!❤️

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Difficulty applying my skills right now?

I might be doing fine, but it just feels terrible. My anxiety is through the roof. It's been at excruciating levels for over a week.

I woke up around 5am, went to the bathroom, and then went back to bed. In the following hour, my dream included dark, icy ocean waters, which caused me to wake up in a panic. This is probably the most common representation of my trauma in the dreamspace.

This past Saturday I attended Christmas at my mom's house. It was more pleasant than usual because I was able to bring 3 of my chosen family members for the first time. Everything felt more balanced.

This winter I started a couple new projects that are very important to me and bring meaning into my life. I have had to make new connections with others in order to move these projects forward and I find this to be terrifying, despite having had only positive interactions thus far.

Related to these projects, I made a mistake and communicated a falsehood to someone close to me. I have since corrected this mistake and apologized for neglecting to fact check the information before sharing it with them, but the guilt and shame I feel is overwhelming.

Recently I completed a writing project where I describe the physical abuse of my childhood. Through this I gained an even more clear understanding of why the freeze/collapse/fawn/submit responses were the only ones I learned to access. It feels really helpful and productive to participate in activities that exercise my fight and flight responses, like sports and combat based video games. I also need more practice with negotiation, and general interpersonal conflict skills.

These are the things bouncing in my head. If you feel led to share any advice or experiences, I know that this community has valuable insights. Regardless, thank you for reading. ❤

#MentalHealth #Anxiety #BorderlinePersonalityDisorder #Anthropophobia #PTSD #ComplexPosttraumaticStressDisorder #ChildhoodAbuse #Christmas #Community

9 reactions 5 comments
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How?

How in the world did I become a #Community leader? I don't even live anywhere near California. I'm in South Carolina.

1 reaction 8 comments