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Getting a wheelchair carrier for my car

I am an ambulatory wheelchair user. I use a wheelchair due to fatigue— which means when I use my manual wheelchair, someone has to push it. I am lucky to have access both to multiple manual wheelchairs and to a mobility scooter (which belonged to my grandma). I also have a very supportive family who is willing to push my wheelchair for me. I still prefer the independence of using the mobility scooter.

Today, I am looking at trailer hitch attachments to haul the mobility scooter on my car. Last year at this time, I was offered help getting one, but turned it down as I didn’t want to take that step yet. I didn’t think I would need it that long.

Yet here I am.

I’m both excited to have the ability to take my mobility scooter with me (and the independence that gives me) and coming to terms with the fact this isn’t a short term thing anymore.

Trying to focus on the positives here. It’s not always as easy as it sounds.

#ChronicIllness #MentalHealth #Disability #Anxiety #SocialAnxiety #MyalgicEncephalomyelitis
#Fibromyaliga #OrthostaticHypotension #PosturalOrthostaticTachycardiaSyndrome #mobilitydevice #AmbulatoryWheelchairUser #ComingToTermsWithChronicIllness

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“Walking” with my cat

I have always loved to walk.

Around the block, around the neighbourhood, hikes in the woods- it’s always been my thing. The one form of exercise that really worked for me- probably because no arobic exercise had to be involved. It was my number one way of keeping my anxiety under control and depression at bay when that crept up. A few years ago I was walking 3-5 miles daily.

I haven’t been able to go for a walk for nearly 2 years. That was when my energy “fell off a cliff”. It’s been hard. But I’m slowly learning to adapt.

A year ago, I got a wheelchair. That opened up a lot of possibilities for me- though I still needed someone to push it, so I was dependent on that. And we live on a steep hill. So while I got to ride along for the occasional walk (if we drove somewhere flat) it was hardly a daily occurrence. Once a week, if I was lucky, and usually to go shopping (which isn’t my favourite activity).

Then Covid shut down that option.

But recently, my family got a mobility scooter set up for me to use around the neighbourhood! (We still have no way to take it by car, but one step at a time.)

It has been amazing to be able to “walk” again!There are hardly any people out and about here, making it Covid safe. Still, sitting up for very long is exhausting and makes me dizzy, so we keep the walls short.

I’m training my cat to ride along in the basket (lined with her favourite sheepskin) and we have a grand time on our short rides around the neighbourhood!

Who knew a simple mobility device could help improve my quality of life so much?!

#ChronicIllness #MentalHealth #Disability #Anxiety #MyalgicEncephalomyelitis #Fibromyaliga #OrthostaticHypotension #ChronicHeadaches #Migraine #exhaustion #mobilitydevice


Feeling down about using a cane

My doctor has me using a cane to alleviate some pain, plus multiple braces. I've only had it a day and it's already made an impact, good and bad. It alleviates my pain and helps me go places. People look at me and laugh, talk shit, degrade me and/or pity me. Little kids ask me if I have a boo-boo. Older people treat me like shit because I use the electric cart to go shopping. I'm so self conscious and uncomfortable using it because of how people treat me. Any advice? #CheckInWithMe #Depression #mobilitydevice #ChronicPain #Undiagnosed #PainAcceptance #Pain