Myasthenia Gravis

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    I’m new here!

    Hi, my name is pawttato. I'm here because I've been diagnosed with a rare autoimmune disorder called myasthenia gravis

    #MightyTogether

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    Hello/Living with Schizophrenia

    Hello everyone!

    I was diagnosed with schizophrenia in high school and my current psychiatrist is treating me for bipolar disorder mania (which he also prescribed lamotrigine in addition to the abilify). I am not sure about the bipolar as a diagnosis and want to make sure my mental health/wellness is being properly treated via meds.

    I have posted in the other schizophrenia group and want to try here

    I want to describe a few big events that happened for me.

    My first time with schizophrenia was in high school in which I said I thought my Dad wasn't really my Dad. I thought my family was poisoning me via bottled water. And I thought that people were being poisoned via fluoride in water or something. But this never came back and became something else.

    In June 2020 I thought I was a demo singer and that singing the songs of people like Katy Perry, Ariana Grande, etc the money got used for terraforming (which is making something Earthlike) Mars (despite a NASA website saying terraforming isn't possible with technology at the moment). I was also jealous about dating guys from New Zealand from primary school (my family left NZ for PA in the US when I was 10 years old).

    I irrationally posted the delusions of being a singer and terraforming while criticizing someone being paranoid that they were out to get me/being abusive on Facebook and email to professors, classmates, and random people from New Zealand. I think what I thought was that NZ had to know I was a singer and doing terraforming so I could date guys from NZ and I wasn't thinking right at the time. It had been a while that I had the delusion of being a singer and the terraforming delusion came a little later.

    It did not end well. Needless to say old professors and old classmates got offended but I didn't care as much about this. What bothered me was that someone from NZ had reshared the post with her friends and suddenly there was like 100 people from NZ defending the person I criticized mistakenly thinking she was abusive attacking me on my facebook wall and inbox. They were saying things like I was worthless and deserve to die and that wasn't right picking on someone with a mental health problem.

    I have had 2 therapists and 1 counselor to process things so I have worked through things but there is just the tiniest bit left I have to process. My counselor thinks it is just sharing the story with someone.

    I started a PhD in the end of August 2022 at the University of Texas at Arlington.

    In Octber 2022 I had a blackout in which I couldn't remember how I got to the library and forgot how I got myself home. I also was hearing voices of people from New Zealand including a voice named Tania which I know isn't real. I had a delusion that I had connected to New Zealand and that people from where I was (which is currently Arlington Texas) were from NZ. I wasn't really thinking that I was a singer and the terraforming but it has been a concern for me worrying that it will come back but I hear that just being on the meds will help with that so it doesn't come back.

    I was having a few breakthrough symptoms faintly hearing the Tania voice and the delusion connecting to NZ which got my abilify adjusted upward to 20 mg.

    I heard from people on the other schizophrenia board that it might be temporary thinking I am a singer (and doing terraforming) and I hope this is the case and that it passes. I am wondering what you all think about my case!

    Currently I am taking abilify 20 mg (used to be 15 mg and prior 10 mg) and I am really hoping that meds continue to treat and get rid of the delusions and hearing voices. I also like to get good sleep, exercise, and do meditation. I am hoping that these simple steps which are good lifestyle choices will help me so I don't hear things in my head that aren't real and work on my thinking. I think meditation isn't said to typically help with schizophrenia but I think just the nature of it doing breathing and sitting there with your thoughts that it helps me. I also like to drink tea as one of my good health practices.

    I have gained from 150 lbs to 230 lbs from the antipsychotics/abilify and I am starting a journey to lose the weight I had gained from being on the meds. It is hard being hungry but I continue to do daily exercise and want to see my weight shift. My target weight is 180 lbs which is reasonable for me as I like eating.

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    Hail Mary Pass

    I had a better day, no vomiting and ate more food.
    I did medical research and planning most of the day, So… my Hail Mary pass may have worked. My friend who used to be a nurse and Christy, my wolf did some medical research and found the symptoms of steroid poisoning and I fit all of them. She even contacted her endocrinologist and told her my symptoms, dosages, etc and she confirmed that is a likely diagnosis. This endocrinologist contacted mine today asking why he prescribed such a high dose (we will see what comes of that). Unfortunately a lot of damage is done and I will likely need a pacemaker, it may more than a year to walk again, I may have cataracts, my gut flora will need at least 1 year to re-build and lots of other things to be figured out, a 2 year process. But there is hope! Until I get all my medical appointments and a plan in place I need to be super careful and conserve energy. I am at a really high risk of a cardiac event, so I need to not be Chris and try to do it all. As you know I was reducing my medications and my highest pain levels were when I went off steroids (I had all the symptoms of steroid withdrawal). I have never experienced that kind of pain before, multiply child birth by at least 5x. I have re- introduced 20mg of Cortef (the recommended dose). I was on 50mg of Cortef, plus Dexamethasone 1.5 mg ( equal to 38mg of Corticosteroids) 68mg higher than recommended, this doesn’t even include the other steroids I took for my puffer, nasal rinses and occasional creams. Now, I do have 2 metabolic dissorders, so I do burn through medications faster, but not so fast to increase the dosage so high. I am trying to figure out a treatment plan and hoping I don’t pass in the meantime. I can’t believe that I actually got my Hail Mary pass! Please send good energy my way and cross all your fingers and toes!

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #FunctionalNeurologicalDisorder
    #Asthma
    #CeliacDisease #MitochondrialDisease #Trauma #RaynaudsDisease #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #dying
    #grateful

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    Ginger-rich diets are good for your health.

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    My son is on lexapro 10 mg & wants to wean off it. Any experience with weaning off from lexapro?

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