autoimmune disorder

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    Demanding Dreams

    Just wondering if anyone has recurring dreams that are a little out of the norm... I dream every night, or should say remember a lot of what I dream.

    Within the past year or so I've been having numerous dreams of being in the grocery store, or the mall, or wondering around a city, none of which I'm familiar with.

    Never had these seemingly 'normal' dream situations that replay over and over. It's obvious to say, "What's the feeling?" Which range from scared, confused, to ambivalent.

    But they're driving me batty, and I want to purge them.

    Anyone get this, at all??

    I've had every which sort if nightmare, but these are something else. A new breed

    #dreams #PTSD #Nightmares #Trauma #MentalHealth #Insomnia #Sleep #PeripheralNeuropathy #ChronicIllness #ChronicPain #sleepdisorder #Disability #Depression #Anxiety #OCD #Migraine #AutoimmuneDisorder #Undiagnosed

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    What's up with this chronic nose inflammation?

    Hey all, Ive been having inner nose inflammation for at least 3 months, its worse in the right. I do have chronic sinus issues,but never this. You just look up my nose and the tissue is red. It hurts and has caused nosebleeds at times. I've been to the ENT and they gave me a steroid nasal rinse and ointment. It helped some but didn't go away. I was kinda peeved they weren't trying antibiotics, which i know...i know all about them. It feels raw in these areas and can be pretty painful, cause headaches. I have to go back but am not happy with the treatment plan as I cannot take oral steroids, but that is all they offered. Not sure what to do..just really lost and frustrated. I've had nasal issues over half my life and never had this. I know its not covid, ive been tested. Im on an allergy shot, i take meds, nose rinses, flonase etc. I don't get it at all and not getting much help.#chronicdisease #ChronicIllness #SinusInfection #ent #Inflammation #RareDisease #ChronicPain #nosebleed #Undiagnosed #Upallnight #AutoimmuneDisorder #AutoimmuneDisease #Anxiety #Fibromyalgia #Migraine #nosepain

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    Hydroxychloroquine for Sjögren’s? #sjogrens #AutoimmuneDisorder

    Is anyone taking hydroxychloroquine for Sjögren’s syndrome? I am in pain. My legs and arms are hard to move, I can hardly grip a pen and my handwriting is off, and there is a constant sensation in my arms and legs that I can’t explain- like neuropathy. The neurologist I’ve been referred to can’t see me until October. I’m thinking of asking my regular doctor for an Rx of hydroxychloroquine. Any thoughts?

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    RESET

    Do we have a reset button? And start all over again..

    #EllaineTheADWarrior
    #AutoimmuneDisorder

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    Special Treatment

    I didn't asked to be in this condition, and I'm not asking for anyone to treat me differently than the others.

    I might be in PAIN, but I'm SMILING. 😊

    I might be TIRED, but I'm FIGTHING. 💪🏻

    I might be STRUGGLING , but I'm HOPING. 🙏🏻

    You see, I worked so hard for YOU not to see the other side of ME, and treat me the same way as the others because...

    I want to FORGET THE PAIN, through YOUR SMILE. 🥰

    I want to FORGET I'M TIRED, through YOUR ENERGY. 🤩

    I want to FORGET MY STRUGGLES, through YOUR PRAYERS. ❤️

    Make me feel NORMAL, despite my ABNORMAL pains. 🤗

    #AutoimmuneDisorder
    #EllaineTheADWarrior

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    Invisible Pain & Silent Battle

    I was recently diagnosed to have an Autoimmune Disorder.. After battling it silently for so many months, I made a lifetime decision to share my battle and journey on how I can defeat this illness.

    I might not be able to understand all my whys or hows, but one thing I'm sure of that God will always stay by my side along with this journey.

    For now, Im nobody and im not hoping to be somebody either, but by doing this I can free myself from all the overthinking, weird thoughts and silent pains I'm going through.

    #AutoimmuneDisorder #EllaineTheADWarrior

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    Posting some questions to help with a school project revolving around autoimmune and chronic illness - specifically lupus! Would love some feedback!

    I am a graduate student at North Dakota State University and am working on my thesis project in completing my master's in architecture! My project revolves around better design for healing - specifically for those suffering autoimmune and chronic illness.

    If you were to design your own healing space, what environmental factors, colors, materials, do you feel could help suppress some symptoms? #AutoimmuneDisorder #ChronicIllness

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    Posting some questions to help with a school project revolving around autoimmune and chronic illness - specifically lupus! Would love some feedback!

    I am a graduate student at North Dakota State University and am working on my thesis project in completing my master's in architecture! My project revolves around better design for healing - specifically for those suffering autoimmune and chronic illness.

    If you were to go and stay at a rehabilitation facility aimed to help heal your symptoms/find a cure for your illness for an extended period or time, what would your ideal housing situation look like? (your own little cabin/house on site, a hospital room set up, a dorm style set up) #AutoimmuneDisorder #ChronicIllness

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    Uterus pain

    Hello everyone, I was hoping someone could help me. My sister is having chronic pain near uterus. It has gotten worse and spread to her ribs and hips. NSAIDs do not help very much, they did not find anything in ultrasound of blood test (including inflammation rating). I have ankylosing spondylitis and so does our grandmother so maybe it could be related to an autoimmune condition? Her gyno has said she does not have endometriosis because she would only be in pain on her period, not every day like she is right now. If anyone has had a similar experience I was hoping you could share your experience/diagnosis. #Uteruspain #Endometriosis #WomensHealth #AutoimmuneDisorder #ChronicPain

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