steroids

Tired Severely Dehydrated Me @ midnight: Long day, labs, oncologist, chemo, mini medical emergency, getting yelled at by doctor & pre-op appointment. Let’s go to bed!
Caffeinated Steroids: No!
Me: Yes! I’m exhausted and don’t feel good.
Steroids: Let’s watch cat videos on IG for 4 hours and then read all your lab results on your patient portal.
My cat: Did you say cat videos? Cat videos! Yay! Let’s snuggle and watch cat videos!
Me at 5am: FML pleaassseeee let me rest!?!
Steroids: No!

Moral of the story: If you know they give you steroids on chemo day that mess with your sleep, maybe don’t stop at Starbucks at 4pm. #regrets #Steroids #exhausted

Was recently dx with lupus cystitis they say it’s rare I live in Saint Louis near one of the world’s highly ranked hospital #BarnesJewishHospital and I’m the first case they’ve ever seen in person its when lupus attacks the bladder, I just recently finished a three day course of 3,000mg prednisone and my first dose of cytoxin chemotherapy it’s gotten off to a super rough start haven’t felt well enough to do much more #Fibromyalgia I’m tired but there’s still too much to fight for

So I've been in hospital now for 2 weeks with a bad Crohn's flare up. Unfortunately there is something wrong with my liver function so can not start on infliximab which was the ultimate goal. They've put me on an ng tube which I'm getting used to but have a sore throat and keep gagging on it and it makes my chest feel tight ( I'm asthmatic) Are there any tips on how to stay motivated with the tube, and how to deal with not eating solids whilst everyone around you is. Also I'm on predisolone steroids which I've found is making my skin dry and hair brittle as well as coming out. Is there any advice for this also.

Home from hospital now, so happy to see my children. The worst part of all this is how suddenly i become unwell and end up in hospital and have to leave them with someone else. Looks like my heart is the issue, i went into SVT and they had to give me IVs to stablise my heart rate. Looks like it could be cushing syndrome too, and steroid induced diabetes with my blood sugars going above 20. They’re looking more into what’s going on with my heart and I’m now going to be under the cardiologist, as well as the thoracic clinic too with my usual respiratory consultant. Will have occupational therapy, respiratory nurse to visit at home as well as speech and language to help with my voice and swallowing problems. We are going to try and reduce the steroids a bit as currently on 50mg and have been for ages. The weight should start to fall off with the reduction too. My new wheelchair comes tomorrow one i can wheel myself rather than being pushed so will give me some freedom. Been a really awful few months, they want me to do counselling because of how much my life has changed and how limited i now am and they said they can arrange it for me though I already have a private therapist so not sure what I’m going to do yet.

Does anyone else get acne from steroids? What do you do to counteract it? I never had acne before, an occasional spot around my time of the month but never acne. I started getting steroid injections for my back so I can function and I have developed severe acne, acne vulgaris. I have been off the steroids due to Covid shutting down regular services but I have an appointment next week to restart (and discuss more options). I was on a high dose twice a day of antibiotics which helped the acne but not my body. I switched to spironolactone a couple months ago which has helped me in so many ways. I’m concerned I’m going to get bad all over again. Has anyone had this happen and what did you do to help? #Steroidssuck #BackPain #Acne #acnevulgaris #Steroids #PainManagement #hypermobilityspectrumdisorder

My neurosurgeon doubles my gabapentin. I’m now on 1800mg a day. He also added a pack of steroids. If my nerve pain continues another week, he’ll order a EMG.

I’m not sure what to expect or what he’ll learn to help. I’m not really sure of much of anything anymore. #Steroids #emg #SpinalStenosis #PinchedNerve #nervepain

#CrohnsDisease
#remicade #Steroids