At 56 I'm a young nana. My 3 children have blessed me with 12 grandchildren ranging from 18 years to 7 months. Rewind to August 2010, I was like any other average grandmother. Going to their events, parks, playing ball, board games, video games, sing-a-longs, strawberry picking, horse back rides, etc. In January 2010 my health started to change. In 7 months I lost my job, my relatively normal health and my independence.
Fast forward to 2022 I have 10 verified diagnosis' and level 3-4 pain 24/7. Everything takes more energy than I have. I still make sure I attend all birthday parties, Christmas and as many other events as possible. It's now too difficult for me to take all of each family's children at the same time. I'm currently spending a few days with each child before school starts with the exception of the youngest 3. I have 3 kids to go in the next 2 weeks. I don't want any of them to see how difficult spending time like this is on me. I literally sleep 1 or 2 days after they go home. I don't cook for myself daily and even just getting 3 meals a day for them is debilitating. I pray they never know what it costs me.
I am so thankful for this time no matter what my personal cost is. I'm very close to my children and I know that even after my memory or I am gone that they will keep my memory alive. God has blessed me and I am so very grateful for them all.
Thank you for reading! I hope you find something every day to be grateful for. Every breath is a gift if you believe it or not. 🙏🫂
#RareDisease #MyotoniaCongenita #Fibromyalgia #Depression #Paresthesia #Neuropathy #formication #Ocularmigraine #EssentialTremors #SleepApnea #DegenerativeDiscDisease