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Hello Warriors! I’m justjes519. I’m new here. I probably won’t post a ton but I’ll definitely show love and support! I’ve been having a rough patch and feeling alone and sort of fell into this site, and I’m already happy I found it! Sending gentle air hugs to all of my fellow warriors! 😊 #idontusuallyusehashtags #Anxiety #Depression #Fibromyalgia #Paresthesia

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I’ve been going through a diagnoses process for a year. I initially though I possibly had MS or small fiber neuropathy due to the paresthesia I experience. I’ve had a MRI of my brain and neck and a 3 bunch skin biopsy. All three came back normal.

So far we are thinking I have a major anxiety and high stress levels that are causing my symptoms.

Does anybody else experience electric shocks in their chest? My doctor said she believes is costochondritis. I’ve had the shocking feeling so severe before where is made me hunch over. It’s spread through my ribs.

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Grandkids fun time! #Anxiety #Depression

At 56 I'm a young nana. My 3 children have blessed me with 12 grandchildren ranging from 18 years to 7 months. Rewind to August 2010, I was like any other average grandmother. Going to their events, parks, playing ball, board games, video games, sing-a-longs, strawberry picking, horse back rides, etc. In January 2010 my health started to change. In 7 months I lost my job, my relatively normal health and my independence.

Fast forward to 2022 I have 10 verified diagnosis' and level 3-4 pain 24/7. Everything takes more energy than I have. I still make sure I attend all birthday parties, Christmas and as many other events as possible. It's now too difficult for me to take all of each family's children at the same time. I'm currently spending a few days with each child before school starts with the exception of the youngest 3. I have 3 kids to go in the next 2 weeks. I don't want any of them to see how difficult spending time like this is on me. I literally sleep 1 or 2 days after they go home. I don't cook for myself daily and even just getting 3 meals a day for them is debilitating. I pray they never know what it costs me.

I am so thankful for this time no matter what my personal cost is. I'm very close to my children and I know that even after my memory or I am gone that they will keep my memory alive. God has blessed me and I am so very grateful for them all.

Thank you for reading! I hope you find something every day to be grateful for. Every breath is a gift if you believe it or not. 🙏🫂
#RareDisease #MyotoniaCongenita #Fibromyalgia #Depression #Paresthesia #Neuropathy #formication #Ocularmigraine #EssentialTremors #SleepApnea #DegenerativeDiscDisease

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Fear is a Liar! #Anxiety #Depression

"When he told you you're not worthy
When he told you you're not loved
When he told you you're not beautiful
That you'll never be enough
Fear, he is a liar
He will take your breath
Stop you in your steps
Fear he is a liar
He will rob your rest
Steal your happiness
Cast your fear in the fire
'Cause fear he is a liar"

I was listening to my iPod last night with my mind wandering until this song came on. It fits so many of us with fear, doubt, questions about are we sick enough or need to get out of a bad situation. Look the song up and listen to the lyrics and not worry about the genre. #Fibromyalgia #RareDisease #MyotoniaCongenita #Neuropathy #EssentialTremors #Osteoarthritis #Paresthesia

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Why do we have to join a group just to comment or offer support? #Anxiety

I'm curious. When I want to lend support or answer a question I have to join that members group to do so. Is there a way to comment without joining that particular group? There are groups that I'm in now for conditions that I don't have. I don't want to misrepresent myself. Is there a different way to post that I don't know about? Thank you for your time in advance! 🌞 #Fibromyalgia #MyotoniaCongenita #EssentialTremors #Neuropathy #formication #Ocularmigraine #Depression #Paresthesia #Osteoarthritis

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I tried AGAIN to explain my situation to my brother! #MultipleHealthChallenges #Anxiety

I have several well-known diagnosis' and one rare, myotonia congenita. I believe that my brother has myotonia congenita also but refuses to get genetic tests. We share some of the symptoms.

Some of the more common diagnosis' we do not share. When I try to explain how debilitating fibromyalgia, essential tremors and osteoarthritis are for me. He, as usual, says he has pain too but has no choice but suck it up and push through it. I can't seem to convince him that our pain levels or types can vary wildly. I'm not sure what to say to him at this point.

He and I are in a position now where our parents are requiring more at home care. Each have different stages of dementia. This is a delicate matter for the four of us. So I need to do my part in their care. Especially our mother who struggles if I'm not with her several times a week. During the current discussion between my brother and I he told me that he needs me to step up more. He thinks I don't know that?! I feel guilty enough for not doing what I think is enough.

Our parents live in his basement apartment and I live 10 minutes away. He now has a lake house as well. He wants to pick up and go whenever he wants without notifying me until the night before. Which means I have to pick up the slack so to speak. I wish it was easy for me to just get ready and leave my house. We all know that it's not that easy or simple. My parents have a spare bedroom but he and his wife don't want me to live with our parents. Just come over 3-4 times a week for a few hours he says. I struggle showering or even cooking for myself daily. I'm at a position where I need extra care myself. But I'm at a loss at what more I can say to him. It's a no win situation for all of us. Thank you so much for listening to me vent. Have a great day! 🙏 #Fibromyalgia #Depression #Paresthesia #Neuropathy #formication #MyotoniaCongenita #EssentialTremors #RareDisease #Osteoarthritis

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No rest for the weary.. #Fibromyalgia #Upallnight

I've had 3 high pain days in a row. As we all know it's exhausting! In spite of the pain I've been able to sleep until tonight. The pain woke me up tonight and I can't sit still. I'm very conservative about taking my pain meds and I've been using items from my "medicine bag" which is mainly relaxation and puzzles to distract myself. Nothing on my list helps when my pain is above 6/10. I just took my last pain pill. My new prescription won't be here until June 30th. I'm not sure what I'll do if this happens before it gets here. I'll surely seek out your support as I am now. I count my blessings everyday. Thank you for listening if you made it this far. I appreciate it. I hope you are having a better night than mine. #Depression #Neuropathy #Paresthesia #Fibromyalgia #EssentialTremors #Arthritis #RareDisease #MyotoniaCongenita #formication

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Portable Snacks on Zero Energy days #Fibromyalgia

On those days when I can't find the energy to get up and move I certainly don't want to food prep. My question to you Mighty friends is what type of portable, low cost snacks do you have close by? Items that don't require a refrigerator or cooking. Right now I only have mixed nuts, fiber brownies and fruit cups, not much variety. The nuts I buy in bulk and portion out. T. I. A! #RareDisease #Depression #Paresthesia #Neuropathy #Fibromyalgia #MyotoniaCongenita #EssentialTremors

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Self care cart

I'm always sitting down, getting comfortable and guess what?! I forgot what I originally got up for. We all have these moments. Last month after having a particularly rough day I racked my brain for a solution.

3 years ago I bought a cart at a craft store to sort my crafting items. It dawned on me that this is a perfect solution for me and bought another one. I put most of what I might need in one spot and free up shelf space for other things. My purse hanging on one side and my lap pad on the other. Now I have my meds, water, journal, puzzle books, coloring books, fidgets, etc. at hand.

Another tip I want to mention are disposable toothbrushes. These "wisp" brushes come preloaded with toothpaste and require no water. I use them on days where I can't imagine hygiene possible. They are very inexpensive. Thank you for reading and have a great day!
#RareDisease #MyotoniaCongenita #Fibromyalgia #Depression #Paresthesia #Neuropathy #formication #ocularmigraine #EssentialTremors #SleepApnea #DegenerativeDiscDisease #Osteoarthritis

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Wellness Wednesday: Diabetic Neuropathy

Diabetic Neuropathy is simply nerve damage caused by prolonged high blood sugar levels from diabetes.

There are four types of diabetes-related neuropathy:

🔹 Peripheral- nerve damage, usually in the hands and feet.
🔹 Autonomic - damage to the nerves that manage every day body functions. These functions include blood pressure, heart rate, sweating, bowel and bladder emptying, and digestion.
🔹 Proximal- nerve damage in your hip, buttock, or thigh.
🔹 Focal- damage to single nerves, single nerve damage most often your hand, head, torso, or leg.

Neuropathy may have no symptoms at all in its earliest stages, but as the condition progresses, people start experiencing various forms of paresthesia. Symptoms include:

🔹Burning sensation

There is currently no cure for neuropathy pain. However, healthy blood sugar levels can slow the process and ease the pain of diabetic neuropathy. Your doctor can suggest changes to gently bring your levels down into the healthy zone such as:

🔹 Consuming a diet high in fruits, vegetables, low-fat dairy, and whole grains; moderate in fish, poultry, nuts, and beans; and low in red meat
🔹 Keeping your weight at a healthy level
🔹 Stress management
🔹 Exercising for at least 30 minutes, 5 days a week
🔹 Following doctor's instructions to take prescribed medication to lower your blood sugar as recommended

Other ways of easing diabetic neuropathy include:

🔹 Taking an Over-the-Counter Pain Reliever with doctor’s approval
🔹 Vitamin D from food and supplements
🔹 Avoid Smoking
🔹 Take a B Vitamin Complex
🔹 Soak in a Warm Bath
🔹 Take an Alpha-Lipoic Acid Supplement (600 mg daily)
🔹 Exercise
🔹 Try Capsaicin Cream
🔹 Caring for your feet
🔹 Learning Relaxation Techniques

Sources: Healthline & WebMD

#Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #prediabetes #JuvenileDiabetesType1 #DiabetesInsipidus #DiabeticNeuropathy #ChronicIllness #AutoimmuneDisease #Lifestyle #Health #Hacks #EatingHealthy #Smoking #Support #MightyTogether