Did you know that OI was a #Rare Disease? It is.
#OsteogenesisImperfecta i have screws in my knee and hip. A titanium rod in my femur to hold it together. ive also suffer from hearing loss and have hearing aides now. A few years ago I decided to go with dentures because of the DI. BEST DECISION I EVER MADE. I pray that someone will answer my post so that I can have someone to talk to about the issues around OI. GOD BLESS!!!
Hi, my name is Ren. I’m new to The Mighty and look forward to sharing my story. I am currently diagnosed with anxiety, depression, gender dysphoria, ADHD, POTS, and I am in the diagnosis process for EDS, ASD, and possible osteogenesis imperfecta. I'm a minor and my pronouns are he/they.
I need a shower. But I’m petrified. I know this sounds 😛.
I live with Osteogenesis Imperfecta, with 102 fractures to date.
Now I’m sooooooooo scared of falling again and fracturing something.
I need a shower, but I’m so scared.
I have a milder form of osteogenesisimperfecta . When I was born I only weighed 2 pounds and all my bones were broken. They were brittle and soft. They did harden by the time I was three and I didn't walk until I was 4 years old. This resulted in me being behind in development and I only grew to be 5 feet tall. I have a fraternal twin that is 6 feet tall sou you can see how my height was an issue. My question is are there anythings I need to watch out for later in life as I am 51. I have had 3 knee surgeries and all my joints seem to pop. Any help would be great.