I’m so confused… I have pots, like my heart rate spikes 50+ bpm when I stand up. However my resting heart rate is 45 bpm. I’m just worried b/c i’m about to start Corlanor (Ivabridine) which is going to lower my heart rate even more 😬???
Instead of working on my homework because my brain was too stressed to even attempt to do math, yesterday I cleaned and organized and de-cluttered my room quite a bit. Unfortunately I am now completely out of spoons today and am having to catch up on work.
But, something good came out of it. I organized my plant area and now have a pretty little set up by the window.
Those plants I’ll need to repot soon, but it’s cute for now! I also have roses from my girlfriend, and stones/crystals from my girlfriend and friends.
But now I’m exhausted, out of all motivation and attempting to grudgingly get coursework done that my brain is not down for.
Ugh. I wish I just had like 5 more spoons every day than I normally do. I’d get so much more done like walk up and down the stairs.
I’m so exhausted.
Oh and my heart rate has been above 110 since 5am when I woke up and I’ve been sitting almost this whole time. I’ve clicked my heart monitor button 11 times this morning.
#Fibromyalgia #FibroFog #SmallFiberNeuropathy #ChronicIllness #ChronicPain #PostrualOrthostaticTachycardiaSyndrome #Tachycardia
so im 34, and on my third drivers permit because I keep going back and forth between wanting to drive because independents is good and I feel bad asking for rides from people and worring about if I should be driving when I offten need help just getting thrugh the grosry store because the second I start getting tired the brain fog starts and I don’t know that im a good driver then??? what are your thoughts on driving with brain fog problems? if you don’t drive for brain fog reasons how do you explain yourself to people who say your fine just drive allready! #BrainFog #PostrualOrthostaticTachycardiaSyndrome
After 7 years of symptoms and feel terrible almost 24/7 as of yesterday I was officially diagnosed with POTS syndrome and will start treatment. For everyone out there still struggling and still having doctors say "there is something wrong but i dont know what" dont give up dont stop going to the doctor's and dont losse hope. you got this and things will get better.
i am doing good.. I’m in a “flare up” with my POTS. And my body constantly hurts from my JHS. I’m always extremely tired but I’m doing good. I’m still trying to figure out what things helps my symptoms and trying to make friends that understand a little bit.
#CheckInWithMe #ChronicIllness #PostrualOrthostaticTachycardiaSyndrome #JointHypermobilitySyndrome
A thought I had in a meditative state about 4 weeks before my diagnoses:
"There is not a date on when I will be 'back to normal' I am on a journey to find what my real normal is. I am living my normal right now, this right here is the life I am carving out, I am not waiting to 'feel better' I am better. I was going nowhere and had no concept of it, now I am waking up to what I truly want in life. I am here, this is my journey and this is my life. There is no going back I am moving forward to be the best version of myself I can be"
#PostrualOrthostaticTachycardiaSyndrome #POTS
Latest
