raynauds

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Good doctors and a good birthday 🩺💜🎂💜

<p>Good doctors and a good birthday 🩺💜🎂💜</p>
55 people are talking about this
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Welcome! 💜

<p>Welcome! 💜</p>
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Art Class

<p>Art Class</p>
14 people are talking about this
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Losing Myself

Where are the words?
They slip from my mind and fly away like birds.
They escape to places I cannot recall.
Like birds a-flight in the fall.

Sometimes they are replaced by the memory of smell.
Sometimes I feel like a shell.
Who am I? I cannot recall the name of that person I love so dear.
Am I really even here?

Who is that person in the mirror?
There is so much loss left to fear.
Losing a bit more of herself each day.
Staying in the world, trying not to shy away.

I will hold on, she will stay.
We refuse to go away.
I am me, I am we.
Not quite ready for death to set me free.

#Abunchofrarediseases #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #FunctionalNeurologicalDisorder #Migraine #Asthma #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #raynauds #Arthritis #Rarebleedingdisorder
#MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe #dying #dyingyoung

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My favourite place to process

<p>My favourite place to process</p>
2 people are talking about this
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🌈Happy Pride🌈

<p>🌈Happy Pride🌈</p>
24 people are talking about this
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Food sustains more than just my body

<p>Food sustains more than just my body</p>
5 people are talking about this
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Mornings

<p>Mornings</p>
7 people are talking about this
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What is this thing called "Hope"? #seekingknowledge

What is this thing called hope? Yes, this is a serious question. What frame of reference do you use to explain something to someone who has never know or seen hope? We liken the situation to finding a single Waldo in a swarm of people who all look slightly like Waldo. But none ARE Waldo.

We are, at this point, 47 days into our 2 new Antidepressants, 21 days into our Antipsychotic and no change other than we sleep an added 1 to 2 hours a night. We are grateful for that. Our meds are increased every 2 weeks. I, since none of the other want to attend at this time, do video chat with at least 3 Doctors every week. The all tell me that hope will help us in this wait and see pattern we currently find ourselves stuck within.

We believe that everything in our universe has a counter balance. Night has Day. These are concrete, provable, repeatable facts available to establish what distinguishes Night from Day. Where "Hope" along with, it's 1st cousins the other emotions and "feeling" are all abstract concepts not grounded by facts.

What reference points does one use when trying to describe abstract concept of "hope" to one who has never seen or experienced it in their lifetime. How would you describe colours to a person who has never seen them? We have as little insight into what "hope" or any of the "emotions" are, at this point. What is this thing called "Hope" and where do we find it?

#SexualAbuse #SexualAssault #Childhoodneglect #DomesticAbuse #DID #raynauds #Fibromyalgia #MyalgicEncephalomyelitis #RheumatoidArthritis #DegenerativeDiscDisease #Hypertension #Trichiasis #irritableboweldisease #GeneralizedAnxietyDisorder #AnxietyDisorders #PanicAttacks #Agoraphobia #Insomnia #Rosacea #Claustrophobia #heartmurmur #ComplexPosttraumaticStressDisorder #Allergies #Dyslexia #OCD #Trichotillomania #cleithrophobia , #IntrusiveThoughts #SuicidalIdeation #haphephobia #EatingDisorder #MajorDepressiveDisorder #SocialPhobia #Acrophobia #Psychosis #DissociativeDisorder #audiohallucinations #visualhallucinations #intervert #raynauds

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Chronic adventures

<p>Chronic adventures</p>
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