grateful

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    Toy Story - An Affur To Remember

    Every night this guy carries a toy upstairs to bed with him, and walks into the room wagging his tail in anticipation of being told what a clever boi he is—which he is 🥰

    He has two Santa toys which are his year round favourites… the other night he dropped them both at my feet—guess he couldn’t decide between them so he carried them both ❤️🎅

    Knowing him, he may also be reminding to hang his stocking up, to make sure Santa leaves a tasty treat—or ten—for him 🎄

    #Dogs #MightyPets #MightyDogs #TheMighty #DistractMe #happyfriday #Friday #Furbaby #MightyPugs #Pug #PugMix #mightycommunity #grateful #Thoughts #Joy #happy #Christmas

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    Just when you think you’re there

    You find where you are supposed to be

    #Believe #AltOption #Blessed #grateful

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    The realities of Dying

    I post a lot about the positives and those are very important, but I think it is also valuable for me to share some of the struggles as well, as that is a part of this journey. I have carefully cut out all supplements and 3 prescription medications, working towards a medication re-set. These pictures show how my body is breaking down; my skin tears and my vessels in my eyes burst, I just have to brush my skin against something for bruising/petechiae or cuts to occur and pain levels are very high. I have doubled my Tylenol arthritis. I am exhausted all the time. My heart and lungs are struggling and I have been going into shock if I try to do too much physically. That said, I am so grateful for all the people, pets and tools I have to make this easier. I am going to be in pain regardless of what I am doing, or where I am, and life is still overwhelmingly more good than bad, so I am enjoying all of the adventures that I am going on, big and small. They may not look the same as they would five years ago, or even five weeks ago, but they are amazing and life is still so good.

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
    #PTSD #FunctionalNeurologicalDisorder #Migraine
    #Asthma
    #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
    #raynauds #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #dying #RareDisease
    #Chronicpainwarrior #FunctionalNeurologicalDisorder #grateful

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    Love the two bodies one mind logo

    Thank you for helping us we are all grateful #mightycontributor#grateful

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    We are in need of a new co-leader for our group. Please see info below. We need someone to encourage, empower, support & be there for other members!

    We are currently looking for a new Co-Leader for the Multiple Health Challenges group. We have grown quite a bit and just passed 1,500 members. In the past co-leaders have been golden, really helpful for me when I got sick or burnt out and had to step away for a few days. I am looking for someone to welcome new members, comment or respond to most posts or other comments, make new posts to the group every once and a while, and preferably someone who has physical and emotional health challenges so they can best relate to and understand where other members are coming from when they post or comment.

    It is important for the group to have two distinctly different voices to support people because people might relate more to one of us. What is a really good situation is if we both respond to the same posts, welcome new members from different perspectives and provide voices for people that are accessible and relatable. There is a commitment needed that you monitor activities on the group regularly and can respond pretty quickly.

    Offering your own posts provides more content for the group…and when posts pose a question they keep things moving forward. I can assist and support by offering to look at your new posts for feedback and editing before you post if you would like it, comment on your posts to get the responses going to best support your efforts, help finding memes or images, and support you if we are dealing with someone struggling …. Like sounding suicidal or being manic…and I will check in to make sure you are happy and comfortable!

    I look at potential leaders' history of posts and/or comments that have helped and supported others in the past. Willingness to be honest and open about your own health challenges is crucial to best support people. A co-leader works together with me for some new posts and drafting new questions and is concerned about the well being of all members and can empathize with their paths.

    You will get access to the Community Leaders group and your name will have a “Group Leader” tab next to it up top on your comments and responses so I think people pay attention especially to your activity and wisdom shared from personal experience. Would you consider joining me on this journey? Let’s have a DM chat to discuss this! Thanks for considering taking on this role!

    #Depression #Anxiety #MentalHealth #ChronicPain #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #Bipolar2Disorder #Bipolar1Disorder
    #Stigma #ObsessiveCompulsiveDisorder #ADHD #Autism #Dementia #Addiction #AddictionRecovery #Cancer #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #ChronicFatigueSyndrome #DistractMe #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #Disability #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #alcoholic #PTSD #EmotionalHealth #physicalhealth PainAcceptance #Acceptance #relief #Selflove #MightyMinute #MentalHealthHero #TheMighty #RareDisease #MightyTogether

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    Slowing down

    Things that I could do a month ago I can no longer do. I used to hike mountains and repel down waterfalls and now walking 10 feet is a struggle. My body is shutting down and that sucks. My pain levels have been incredibly high, yesterday they were at a 14. My brain is struggling, lol, you can see from the picture I put my chips in the fridge drawer and the honey in the freezer. 🤣 That said, I am so lucky to have all of the amazing things that I do in my life. I have a partner that is willing to push me through the snow in a wheelchair so I can go down to the river and massage my feet and basically love me so well I couldn’t ask for more. I have adorable dogs and friends who make me wonderful gifts like a silly portrait of my one dog, and beautiful children and a wonderful home. I have friends that throw me parties and help me cross all the things off my bucket list. I have former students who made me a beautiful video of their memories of me. Life might be too short, but it is filled with such joy, and as always, life is more good than bad. 💜

    #Abunchofrarediseases
    #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
    #PTSD #FunctionalNeurologicalDisorder #Migraine #Asthma #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #raynauds
    #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe #dying #grateful

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    Hail Mary Pass

    I have not used pain medication in the last seven years, because of my conditions and other medications it is very complicated to use pain medication, with the exception of Tylenol. So I have been saving it for when I really need it and yesterday I really needed it. A combination of Tylenol, a bath and muscle rub has helped bring my pain down to a more tolerable level, but still extremely high. 😣

    My body is struggling, my bloodwork shows this, but ultrasound can’t explain why or how. I have seen over a dozen specialists, run all the tests, tried all the things. I have handfuls of endocrine, autoimmune and genetic disorders (all diagnosed by rigorous testing and amazing doctors) and they just don’t play nice together. Today I was offered hospice care, I declined; I have a beautiful home and an amazing support system. 🏡👪

    I am going to try one more Hail Mary pass and go off all medications except my steroids, then try reducing my steroids… and see if I can’t re-set. Lol, like a computer, when all else fails shut off the power and see if it re-boots. Anyone else thinking Jurassic Park? 🤣🦖

    #Abunchofrarediseases #AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #PTSD #FunctionalNeurologicalDisorder #Migraine #Asthma #CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma #raynauds #MentalHealth #Depression #Anxiety #ChronicPain #ChronicIllness #Disability #DistractMe #dying #grateful

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    Symptoms Worsening #RareDisease #TheMighty #MightyTogether #IIH #IdiopathicIntracranialHypertension #Migraine #IntracranialHypertension

    Champions adjust, and I am currently learning this the hard way but that's okay. I have my faith and my support system. I try to count my blessings. I started having blackouts. I can't ignore it. I see spots and sometimes can't see anything. I constantly feel the pressure in my head now the lowest it goes is a 6, sometimes I get random stabbing pains in my eyes. I've been getting episodes of weakness where I feel lightheaded and dizzy and I lose my balance, it makes me concerned that I will pass out, especially since I'm still working full time as a Medical Receptionist. My vision has worsened. My glasses are now too weak of a prescription. I go to Lens crafters Saturday thank God. I can't drive, which I never really did to begin with besides practicing. I realized this when my husband told me "don't feel bad because even if you wanted to drive I wouldn't let you right now because I'd be afraid of what could happen if you have an episode on the road." It never even occured to me until now. I count my blessings daily. I'm alive I'm fighting. We will find a cure. We will not suffer alone. 👊🏽 #IdiopathicIntracranialHypertension #IntracranialHypertension #RareDisease #ChronicIllness #ChronicPain #ChronicMigraineSyndrome #Migraine #PsuedotumorCerebi #rarediseaseawareness #TheMighty #MightyTogether #CheckInWithMe #mightystrong #ChampionsAdjust #StayStrong #CheerMeOn #grateful #TheLittleThings