Syrinx

I will be married for 10 years with him for 14. When you first get together with someone you get to know each other. Can’t seem to get enough of each other. Most couples get into a routine and go about your business. My husband is different in a way I feel he thinks he is entitled to once a week. I just don’t have it in me anymore. I don’t get anything out of it anymore. I have so much going on in my body and I just don’t want touched anymore. I’m being so selfish. It’s killing me because I was a very touchy feeling person. I have pain everywhere.

I am trying to redo our bathroom. Paint, new fixtures and knobs. Trying to get stuff done before my knee replacement surgery. The last time I painted a room I could bend and get into the tight spots. No help needed. Well I got a real wake up call. I couldn’t do it. Then I get frustrated and just pissed off. I’ve been working on this all week. So I’m upset with myself and I get it’s been over a week. I just lost it!! I screamed at him I can’t do this and you when I’m not getting nothing out of it. I’m not the same woman I was and I keep telling you that but you keep thinking I am! He left and went to the store. I balled my eyes out went upstairs and painted trim. #Migraine #Hypothyroidism #RLS #Osteoarthritis #Hypertension #spinalcorddisease #Depression #PTSD #Syrinx #Tinnitus

I've been figuring out my diagnosis and meeting doctor's over the past month, and one thing I've noticed is that outside of a few older videos of doctors explaining Chiari malformations and their relation to syrinxes, there's hardly any information and support resources for those with syringomyelia.
I don't have Chiari malformations and I'm still figuring out what's really going on within my body, but I'm so surprised there's no one anywhere on social media or blogs that are really talking about what this condition is like.

It makes me feel so afraid of what's happening to me because I feel like I'm in the dark while it's going on. I don't want to feel alone and I don't feel like anyone else going through this should have to feel like that either.

Where is everyone who's been through this or is going through it now? I am here. And I would love to be with you too.

#Syringomyelia #Syrinx #ChronicPain