RLS

Hi, I am always looking for new ideas or suggestions for treatment for Narcolepsy, I have struggled to find the right treatment since I also have insomnia and restless leg syndrome. Since the first of the year my insurance company for prescriptions which is new again this year, has decided not to cover the medication I have been taking during the day to help with my daytime sleepiness. I have been taking for approximately 4+ years and works the best for me. It is so frustrating. I feel like I am starting all over again.

#Narcolepsy #Depression #Anxiety #Insomnia #Fibromyalgia #Migraine #RLS #GastroesophagealRefluxDisease

I will be married for 10 years with him for 14. When you first get together with someone you get to know each other. Can’t seem to get enough of each other. Most couples get into a routine and go about your business. My husband is different in a way I feel he thinks he is entitled to once a week. I just don’t have it in me anymore. I don’t get anything out of it anymore. I have so much going on in my body and I just don’t want touched anymore. I’m being so selfish. It’s killing me because I was a very touchy feeling person. I have pain everywhere.

I am trying to redo our bathroom. Paint, new fixtures and knobs. Trying to get stuff done before my knee replacement surgery. The last time I painted a room I could bend and get into the tight spots. No help needed. Well I got a real wake up call. I couldn’t do it. Then I get frustrated and just pissed off. I’ve been working on this all week. So I’m upset with myself and I get it’s been over a week. I just lost it!! I screamed at him I can’t do this and you when I’m not getting nothing out of it. I’m not the same woman I was and I keep telling you that but you keep thinking I am! He left and went to the store. I balled my eyes out went upstairs and painted trim. #Migraine #Hypothyroidism #RLS #Osteoarthritis #Hypertension #spinalcorddisease #Depression #PTSD #Syrinx #Tinnitus

I’ve had RLS for 42 years. I self diagnosed when the WWW was invented. I eventually went on Mirapex and was on it for 10 years without issues (except for an extreme shopping compulsion that has not gone away even after dropping that medication). I’m not on 1600 mg Horizant and 300 mcg Belbuca (partial mu agonist opioid) with sinamet for breakthrough episodes. I didn’t sleep for 3 months straight when I augmented on the mirapex. Now, nothing seems to help. I wake in the middle of the night with it. I wake in the morning with it. I suffer in the afternoon with it. And have it many evenings as one would expect. Research shows it worsens with age. I’m on the max dosage of everything. And my RLS is not being relieved by moving around anymore. It helps, but doesn’t fully stop it. It’s like it’ll just move to a different location. I’ve lost all hope.

Hey, im WinchesterGirl1. Im pretty down to earth. I have a lot of interests, but I dont engage in most of them. I also have a plethora of chronic illnesses. Ready? Born visually impaired and legally blind with aniridia, fibromyalgia, fractured spine, carpet tunnel, bipolar 2, severe anxiety, undiagnosed rls, and all of rhe symptoms associated with each. I can't remember if theres more. If I can think of anything to add I will, so check back.
Peace.

This information is also my bio. #Fibromyalgia #Anxiety #Bipolar2Disorder #RLS

I’m just waking up from 8-9 hours of uninterrupted sleep, and I want to go back for 8-9 hours more. I’m no more rested than I was when I laid down to sleep, and what’s more, I have crushing pain in both legs. Again I’m so tired of these symptoms. I used to think these symptoms were due to a total lack of exercise, which is why I started doing yoga, fell in love with it, and was trained to teach it. Now, my husband and I are nearing the end of a major move. I’ve been helping lift and move furniture and boxes for weeks and I thought sleep would come more easily. Instead, these symptoms are becoming a trend. Why? What’s causing this? And what can I do to make it stop? Do I just need to do slow, gentle yoga in the evenings to stretch tired, worked muscles, or is something bigger going on? How do I find out? #RestlessLegsSyndrome #RLS #Fibromyaliga #ChronicPain