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#RLS never ending

I’ve had RLS for 42 years. I self diagnosed when the WWW was invented. I eventually went on Mirapex and was on it for 10 years without issues (except for an extreme shopping compulsion that has not gone away even after dropping that medication). I’m not on 1600 mg Horizant and 300 mcg Belbuca (partial mu agonist opioid) with sinamet for breakthrough episodes. I didn’t sleep for 3 months straight when I augmented on the mirapex. Now, nothing seems to help. I wake in the middle of the night with it. I wake in the morning with it. I suffer in the afternoon with it. And have it many evenings as one would expect. Research shows it worsens with age. I’m on the max dosage of everything. And my RLS is not being relieved by moving around anymore. It helps, but doesn’t fully stop it. It’s like it’ll just move to a different location. I’ve lost all hope.


About my chronic illnesses.

Hey, im WinchesterGirl1. Im pretty down to earth. I have a lot of interests, but I dont engage in most of them. I also have a plethora of chronic illnesses. Ready? Born visually impaired and legally blind with aniridia, fibromyalgia, fractured spine, carpet tunnel, bipolar 2, severe anxiety, undiagnosed rls, and all of rhe symptoms associated with each. I can't remember if theres more. If I can think of anything to add I will, so check back.

This information is also my bio. #Fibromyalgia #Anxiety #Bipolar2Disorder #RLS


Share your experience with fibromyalgia and connect with people who support you.
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Self harm is never okay. It’s a dangerous way to ‘cope’. And it becomes an addiction. Most people who self harm don’t want to kill themselves. But, many times, that’s EXACTLY what happens. They go further than they actually mean to. Like the drug addict who says they know how much they can handle. It’s damaging and dangerous.
Finding the right therapist for you to help you work through the issues that lead to those feelings of low self-worth, shame, frustration, etc., is a healthy way to find healing. Self harm never is.
I’m thankful I’m getting the real help I need. Today, I’m 645 days self harm free. And if I can do it, you can too.
You have infinite value. Please reach out for support. You are Mighty. Safe hugs to you.
#I ’mhealing
#I ’mhuman

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The Return of Restless Legs

It was a while without symptoms this time around, but apparently this time last year, I was having #RLS #RestlessLegSyndrome and I snapped this picture of an image my neurologist made in med school. I have been through this before and will get through it again. Are there any home treatments you have found helpful for restless legs?

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Fibromyalgia, Restless Legs, and Waking Exhausted— Any Help?

I’m just waking up from 8-9 hours of uninterrupted sleep, and I want to go back for 8-9 hours more. I’m no more rested than I was when I laid down to sleep, and what’s more, I have crushing pain in both legs. Again I’m so tired of these symptoms. I used to think these symptoms were due to a total lack of exercise, which is why I started doing yoga, fell in love with it, and was trained to teach it. Now, my husband and I are nearing the end of a major move. I’ve been helping lift and move furniture and boxes for weeks and I thought sleep would come more easily. Instead, these symptoms are becoming a trend. Why? What’s causing this? And what can I do to make it stop? Do I just need to do slow, gentle yoga in the evenings to stretch tired, worked muscles, or is something bigger going on? How do I find out? #RestlessLegsSyndrome #RLS #Fibromyaliga #ChronicPain


Arrghh RLS driving me potty tonight, so tired but sleep alludes me. In for a fun night! Sympathies to all of you suffering the same x
#Fibromyalgia #RLS

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Restless Leg Syndrome #RestlessLegsSyndrome

Good sleep hygiene is key to managing mental health and chronic illnesses. Yet, mental and chronic illnesses interfere with sleep... so it’s a catch-22.

Today, my feelings of overwhelming anxiety have gotten in the way of normal function. Now, while trying to sleep, to wake up refreshed and stronger tomorrow, I am lying in bed with the inability to settle down. My restless leg syndrome has flared up and the deep, intense burning sensation in my thighs, hips and calves is making laying still at best, uncomfortable and at worst, next to impossible.

So, as I lay here, I try to decide if I can tough it out, or if I will have to forgo another hour of sleep, in order to walk and stretch and alleviate the discomfort.

#RLS #Anxiety #Sleep #rest #exhaustion #FlareUps #Fibromyaliga #HypothyroidismUnderactiveThyroidDisease #HashimotosThyroiditis #ChronicPain #ChronicIllness #AutoimmuneDisease

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This is Sophia who I lost a year ago to dementia. She's blind, was responding to my voice she was needing comfort. TODAY, my daughter, who's in a nursing home, just tested postive for #COVID19. I did my mom thing staying strong but I can't help her, can't even comfort her. Nursing home's are horrible places especially for those who are mentally aware. My wish is that she gets better but also that she not suffer. My anxiety chronic pain just went up ten notches and there's nothing I can do...just anguishing uselessness if there's such a thing. #chronic pain #COVID19 #Anxiety #Fibromyalgia #Osteoporosis #Osteopenia #RLS # ADHD #Reynards

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My Twisted Way Of Venting

Can't sleep... went to physio earlier today and they said I was on my way to getting frozen shoulder (I didn't do my exercises.) Yippee! And now I'm getting restless legs to boot! So, I wrote a little song about it ;) might sound familiar to some...

Wah wah wah wah wah wah
Why? Why? Why? Why? Why? Why?

Crazy, but that's how it goes
Body is hurting, from my head to my toes
Maybe it's not too late
That I might get better, and I'll feel great.
Rotator cuff not healing
But I'm the the one to blame
I'm going off the rails from this crazy pain
I'm going off the rails from this crazy pain

I've listened to doctors, I've listened to fools
I went on Google and made my own rules
Many prescriptions for pain control
Not able to sleep well. I toss and I roll.
Restless legs and cramping
Driving me insane
I'm going off the rails from this crazy pain
I'm going off the rails from this crazy pain

I know there's always something wrong with me
You gotta listen to me yell

From fit to bedridden, that's what I've become.
Cursed with this fibro, has made my brain dumb.
Crazy... I just cannot bear,
I'm living with something that just isn't fair
My body has stopped healing.
Who and what's to blame?
I'm going off the rails from this crazy pain
I'm going off the rails from this crazy pain

#Fibromyalgia #ChronicPain #Fibromyalgia #Pain #Injury #RLS #FrozenShoulder


Sometimes you just gotta laugh

So, I have to have my foot hanging off the bed because the Allodynia is so bad that anything touching it is torture. Add to this the restless legs because those meds haven't kicked in yet, and my 5 month old kitten is having the time of his life attacking my moving foot. Hoping the RLS and/or the pain meds kick in soon so I can sleep... kitten attack free! #RLS #Allodynia