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#RLS never ending
I’ve had RLS for 42 years. I self diagnosed when the WWW was invented. I eventually went on Mirapex and was on it for 10 years without issues (except for an extreme shopping compulsion that has not gone away even after dropping that medication). I’m not on 1600 mg Horizant and 300 mcg Belbuca (partial mu agonist opioid) with sinamet for breakthrough episodes. I didn’t sleep for 3 months straight when I augmented on the mirapex. Now, nothing seems to help. I wake in the middle of the night with it. I wake in the morning with it. I suffer in the afternoon with it. And have it many evenings as one would expect. Research shows it worsens with age. I’m on the max dosage of everything. And my RLS is not being relieved by moving around anymore. It helps, but doesn’t fully stop it. It’s like it’ll just move to a different location. I’ve lost all hope.
