Tinnitus

This is my first post on this forum and pleased to be part of it. I contracted COVID early March 2020. I wasn’t impacted from a respiratory point of view - more cognition, mental and physical fatigue, aches, loss of appetite…
Now more than 4.5 years on, the majority of my symptoms remain and I’m really interested to hear what others are doing to ‘accommodate’ this into their lives.
Whilst I’ve had countless medical consultations, I’m still pushing for more support/help:- I’ve a forthcoming Psychiatric and Nuerology appt and also hoping to go back to a long haul clinic to learn and share.
It’s only recently that I’ve recognised how much I’ve changed over those 4.5 years - weight, confidence, not going to any social occasions, avoiding crowds, tinnitus, memory loss, still no appetite….im finding it tough currently to be honest and I’m really aware of the impact on my wife - who has been amazing- however, I do feel for her.

I know I’m luckier than many, however, I’m really struggling to find a glimmer of hope that might signal a return to me - although I know I need to live with it.

Apologies for the outpouring - but glad to be with you all.

I live with lupus and fibro and all the things that come with it. My life seems relatively "normal" although my mobility is 👇👇. Do you know that lupus can affect your hearing?? I researched and was shocked to find out it is true. I have had episodes of tinnitus and dealt with it by soft music.

I was recently diagnosed with severe hearing loss on my right side and mild loss on my left. Initially I thought it was tinnitus or wax. This was not the problem. Imagine my shock having to be fit with hearing aids; although I just shrugged and plodded along.

Have your hearing checked. This should be as compulsory as the eye checks if you use hydroxychloroquin.

How many of you have had to quit school due to chronic health problems?

WARNING ⚠️ the rest of this post is lengthy!!!

I have been working on my bachelors in community health through online courses (one class at a time) for the past seven years. A few months prior to beginning my degree program I was diagnosed with fibromyalgia following a car wreck that required a neck fusion surgery. From there my chronic illness diagnoses have continued to accumulate. I now have chronic migraine, endometriosis, interstitial cystitis, chronic fatigue, degenerative disc disease, tinnitus, IBS, C-PTSD, and a long list of food and environmental allergies. I have 2 sons and 2 daughters. My youngest son (15yr) has serious ADHD. Both of my daughters (21yr & 20yr) have long lists of chronic health conditions. They live with me and probably will for their whole lives due to the impact of the disability that their issues cause. Neither girl can drive either. The oldest has Asperger’s, fibromyalgia, Ehlers Danlos, ADHD, C-PTSD, severe anxiety, depression, Eosinophilic Esophagitis, IBS, mild Ulcerative Colitis, numerous food allergies and possible Borderline Personality Disorder. The youngest has Chronic Fatigue Syndrome, Dysautonomia, C-PTSD, depression, anxiety, disordered eating, restless legs, Eosinophilic Esophagitis, constant skin picking, and numerous food allergies. All three of us girls and my youngest boy has severe sleeping problems. Me and both my girls have applied for and been turned down for disability. Up until 2022 I had been a stay-at-home, homeschooling mom. At the beginning of 2022 me and my 2 girls and youngest son ( oldest son is in college and pretty much living on his own) loaded up and left my narcissistic abusive husband of 16 yrs. and began to start over in a tiny apartment in a small town with me re-entering the work force and starting a full time job in retail and officially divorcing him at the end of that year. My youngest daughter has since tried to commit suicide twice and my oldest has had several mental breaks that were extremely hard to deal with. Throughout the whole time I have continued with my school classes. Determined to finish what I started. However, my health has continued to decline from all my illnesses and the stress of my life and it is taking a toll on my cognitive abilities. I took a 8 month break from my classes but have started back recently and I’m struggling to keep up with the assignments and not learning as I know I should be. I only have 6 classes left, that will take me the next year to complete due to the schedule I’m following, but my body, mind and finances seem to be making it extremely hard for me to keep going. I’m really considering quitting, but feel like I would be a real failure if I didn’t finish it.
If you read all this……Thank you! 🙂 #ChronicFatigue
#Fibromyalgia
# Migraine
#IBS
#InterstitialCystitis
#ChronicPain
#EhlersDanlos
#c -PTSD
#Autism
#Anxiety
#Depression
##BrainFog

Has anyone experienced tinnitus before?
#Anxiety

Hi, my name is Liiliibee. I'm undiagnosed and think I have meninges disease. Currently have vertigo, tinnitus and loss of hearing in my left ear. exhausted and feel sick all the time.

#MightyTogether

I will be married for 10 years with him for 14. When you first get together with someone you get to know each other. Can’t seem to get enough of each other. Most couples get into a routine and go about your business. My husband is different in a way I feel he thinks he is entitled to once a week. I just don’t have it in me anymore. I don’t get anything out of it anymore. I have so much going on in my body and I just don’t want touched anymore. I’m being so selfish. It’s killing me because I was a very touchy feeling person. I have pain everywhere.

I am trying to redo our bathroom. Paint, new fixtures and knobs. Trying to get stuff done before my knee replacement surgery. The last time I painted a room I could bend and get into the tight spots. No help needed. Well I got a real wake up call. I couldn’t do it. Then I get frustrated and just pissed off. I’ve been working on this all week. So I’m upset with myself and I get it’s been over a week. I just lost it!! I screamed at him I can’t do this and you when I’m not getting nothing out of it. I’m not the same woman I was and I keep telling you that but you keep thinking I am! He left and went to the store. I balled my eyes out went upstairs and painted trim. #Migraine #Hypothyroidism #RLS #Osteoarthritis #Hypertension #spinalcorddisease #Depression #PTSD #Syrinx #Tinnitus