Tinnitus

Hi, my name is Standingtall77. I'm here because I have been diagnosed with Undifferentiated Connective Tissue Disease, Fibomyalgia and a long list of food allergies … I was already living with Asthma, Hypertension, Migraine, Tinnitus and Nasal allergies and now have few more to live with.. I don’t know anyone around me who has or knows about the auto immune disease or fibromyalgia… everything I have to read online … here it will help me understand and deal with my conditions better knowing that I am not alone ..

#MightyTogether #Migraine #Fibromyalgia

MS was first brought up back in April of this year after an abnormal MRI. Although my doctor said it was “almost impossible” to be MS, something told me to start researching. MS was something I had heard of but knew nothing about. I have since become almost an expert in MS. I told myself if I did end up with that diagnosis, with all the new knowledge I had, I could easily deal with it. Then I received the official diagnosis 2 months ago and now it’s like I’m in a sort of denial, which I know doesn’t quite make sense because I deal with the symptoms daily (non-stop vertigo, tinnitus, numbness, and oh, the fatigue!) Maybe it’s because I was told MS was such a slim possibility. Or maybe it’s the thought of needing extra help (I’ve always been the one taking care of everyone else). Maybe it’s because I have no idea what is going to happen. I know what MIGHT happen, but no idea what WILL happen. (I hate not knowing.) I know this disease affects everyone differently so there is no way to tell how it will affect me beyond my current symptoms.

I also started treatment last month (daily injections) and had severe adverse reactions. Now, I’m just waiting for my doctor to refer me to a pharmacist to discuss two possible treatments. But since I’ve had a bad reaction to my first treatment, I’m scared for the next ones, which as my doctor put it, are the “big guns”.

I’m curious how other people have handled this diagnosis. I know this is probably going to sound really bizarre, and maybe even a little unhinged, but when I first got the diagnosis, I actually felt relieved. For one, I FINALLY had an explanation for the symptoms I was experiencing for almost a full year. (Actually, looking back, I think I had symptoms for a couple years, but associated it with other issues.) Then, it was relief that it wasn’t terminal and also had great treatment options. The overall stats look really good, too.

I guess I’m just having a hard time wrapping my head around this whole thing. I tend to be more rational and logical, so I’m having a harder time with the emotional aspect of this. I know all about the disease. I know about all the possible treatments. I know all about the different ways it might affect me. I just don’t know how to deal with it all. I’m curious how other people handled the diagnosis. Did anyone else feel a sort of relief, or am I just twisted? How long did it take to find a good treatment? Did you get lucky and the 1st treatment worked, or did it take a few different tries? My apologies for the essay and all the questions. I appreciate any insights and advice about the emotional side of dealing with MS.

#MultipleSclerosis #MightyTogether

This is my first post on this forum and pleased to be part of it. I contracted COVID early March 2020. I wasn’t impacted from a respiratory point of view - more cognition, mental and physical fatigue, aches, loss of appetite…
Now more than 4.5 years on, the majority of my symptoms remain and I’m really interested to hear what others are doing to ‘accommodate’ this into their lives.
Whilst I’ve had countless medical consultations, I’m still pushing for more support/help:- I’ve a forthcoming Psychiatric and Nuerology appt and also hoping to go back to a long haul clinic to learn and share.
It’s only recently that I’ve recognised how much I’ve changed over those 4.5 years - weight, confidence, not going to any social occasions, avoiding crowds, tinnitus, memory loss, still no appetite….im finding it tough currently to be honest and I’m really aware of the impact on my wife - who has been amazing- however, I do feel for her.

I know I’m luckier than many, however, I’m really struggling to find a glimmer of hope that might signal a return to me - although I know I need to live with it.

Apologies for the outpouring - but glad to be with you all.

I live with lupus and fibro and all the things that come with it. My life seems relatively "normal" although my mobility is 👇👇. Do you know that lupus can affect your hearing?? I researched and was shocked to find out it is true. I have had episodes of tinnitus and dealt with it by soft music.

I was recently diagnosed with severe hearing loss on my right side and mild loss on my left. Initially I thought it was tinnitus or wax. This was not the problem. Imagine my shock having to be fit with hearing aids; although I just shrugged and plodded along.

Have your hearing checked. This should be as compulsory as the eye checks if you use hydroxychloroquin.

How many of you have had to quit school due to chronic health problems?

WARNING ⚠️ the rest of this post is lengthy!!!

I have been working on my bachelors in community health through online courses (one class at a time) for the past seven years. A few months prior to beginning my degree program I was diagnosed with fibromyalgia following a car wreck that required a neck fusion surgery. From there my chronic illness diagnoses have continued to accumulate. I now have chronic migraine, endometriosis, interstitial cystitis, chronic fatigue, degenerative disc disease, tinnitus, IBS, C-PTSD, and a long list of food and environmental allergies. I have 2 sons and 2 daughters. My youngest son (15yr) has serious ADHD. Both of my daughters (21yr & 20yr) have long lists of chronic health conditions. They live with me and probably will for their whole lives due to the impact of the disability that their issues cause. Neither girl can drive either. The oldest has Asperger’s, fibromyalgia, Ehlers Danlos, ADHD, C-PTSD, severe anxiety, depression, Eosinophilic Esophagitis, IBS, mild Ulcerative Colitis, numerous food allergies and possible Borderline Personality Disorder. The youngest has Chronic Fatigue Syndrome, Dysautonomia, C-PTSD, depression, anxiety, disordered eating, restless legs, Eosinophilic Esophagitis, constant skin picking, and numerous food allergies. All three of us girls and my youngest boy has severe sleeping problems. Me and both my girls have applied for and been turned down for disability. Up until 2022 I had been a stay-at-home, homeschooling mom. At the beginning of 2022 me and my 2 girls and youngest son ( oldest son is in college and pretty much living on his own) loaded up and left my narcissistic abusive husband of 16 yrs. and began to start over in a tiny apartment in a small town with me re-entering the work force and starting a full time job in retail and officially divorcing him at the end of that year. My youngest daughter has since tried to commit suicide twice and my oldest has had several mental breaks that were extremely hard to deal with. Throughout the whole time I have continued with my school classes. Determined to finish what I started. However, my health has continued to decline from all my illnesses and the stress of my life and it is taking a toll on my cognitive abilities. I took a 8 month break from my classes but have started back recently and I’m struggling to keep up with the assignments and not learning as I know I should be. I only have 6 classes left, that will take me the next year to complete due to the schedule I’m following, but my body, mind and finances seem to be making it extremely hard for me to keep going. I’m really considering quitting, but feel like I would be a real failure if I didn’t finish it.
If you read all this……Thank you! 🙂 #ChronicFatigue
#Fibromyalgia
# Migraine
#IBS
#InterstitialCystitis
#ChronicPain
#EhlersDanlos
#c -PTSD
#Autism
#Anxiety
#Depression
##BrainFog

Has anyone experienced tinnitus before?
#Anxiety

Hi, my name is Liiliibee. I'm undiagnosed and think I have meninges disease. Currently have vertigo, tinnitus and loss of hearing in my left ear. exhausted and feel sick all the time.

#MightyTogether