Syringomyelia

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Hi, my name is LUVMYNYX2. I'm here because I've been suffering from Fibromyalgia and Syringomyelia for over 10 years. My day starts with waking up feeling very stiff in my whole body. It feels like Rega Mortis is setting in. I force myself up feeling tired all the time. My right arm is the most painful, a burning, stinging, scrapping feeling. Very tender to the touch. It feels like the way Shingles is described, except without a rash. Then there is pain around my ribs and pressure in the middle of my spine. It feels like a dagger is in my back. Sore breast too. This pain is every day all day. I work and drive all day and every bump in the road intensify the pain. I take Lyrica 200mg three times a day along with over 1100mg of acetaminophen and Ibuprofen. I get very little relief with that. Doctors have no idea how much hell I'm going through with this horrid pain. When the pain is more intense it raises my blood pressure to stroke range and I don't have high blood pressure. My treatment has been consisted of dry needles on top of my shoulders, vitamin injections in my hands were the worst treatments and very painful. I've had physical therapy 4 times. I was taking also units of Vitamin D three time a week and 2500 of Vitamin B12 3 times a day for pain and protection of my liver and kidneys. Doctor's are only concerned with not giving opioids to protect their licenses while I suffer but yet there is treatment for substance abusers still being served Meth to avoid the issues they go through, I'm not drug addicted, don't want to be high or out of my mind. I just want somebody somewhere to treat my pain so that I can live my life. All I do is work and off to the bed. I have to work with prices getting higher and higher. I'm only 67 and feel bad when my grandchildren want me to do things with them. I also have asthma and stays out of breath here lately. Thanks for listening.

#MightyTogether #Fibromyalgia

Hi, my name is BeckyBooBoo. I'm here because im tired of fighting alone as nobody understands how I feel on a daily basis.

#MightyTogether #Anxiety #Depression #BipolarDisorder #Migraine #Fibromyalgia #Syringomyelia #FattyLiverDisease

Hey everyone, I have been thinking about starting a YouTube channel, mainly to make videos about hacks and tips to living with a Chronic illnesses, but also thinking about doing some vlogging as well To show what it’s really like to be chronically I’ll , would anyone be interested in watching? Or have any video ideas? Would really like to start it but I am scared that no one will watch haha, any thoughts are welcome😊😊 #EhlersDanlosSyndrome #ArnoldChiariMalformation #Syringomyelia #Gastroparesis #ChronicVestibularMigraine #Dysautonomia #AutonomicDysfunction #Anxiety #Spoonie #Vlog #spoonielife #PelvicOrganProlapse #ChronicPain #Hope

Hi, my name is cshook72. I'm here because I have been diagnosed with syringomyelia. I am currently unaware of what symptoms I'm experiencing that may be related to the syrinx that I have. I'm also having some severe symptoms that my medical providers cannot resolve.

#MightyTogether #Depression #Syringomyelia

Hi, my name is Pregs. I'm here because

#MightyTogether #Syringomyelia

Hi, my name is itsbecca. I'm here because I just feel I need to be proactive about my general well-being and need a community and support group.

#MightyTogether #Depression #Anxiety #PTSD #ChiariMalformation #Syringomyelia