pain management

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    Diagnosis finally!

    I've been diagnosed with hypermobility spectrum disorder very recently. I'm currently trying to process everything and work out what help I need to go back to the rheumatology team in January. I've had symptoms since I was a child but I've been really struggling with pain in my hands and feet particularly in the morning. I've had this for over a year now and been going back and forth with doctors until I finally got to see a GP who referred me for every blood test she could think of and referred me to rheumatology and cardiology to cover all the bases. I'd be interested if anyone has tips on exercises or pain management. I'd love to get fit again but the pain next day just makes it unbearable. #hypermobilityspectrumdisorder #JointHypermobilitySyndrome #Hypermobility #PainManagement #Pain #Exercise

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    OPIOIDS ARE EFFECTIVE FOR CHRONIC PAIN

    Contrary to what the mainstream media and "anti-opioid" lobbyists would have you believe, legally prescribed opioid painkillers DO actually work for chronic pain. Opioids have been used for thousands of years to provide relief from pain, so why is there a mis-perception or inference in recent times they should only be used for acute pain?

    In America the CDC Opioid Prescribing Guidelines state there is "insufficient evidence to determine long-term benefits of opioid therapy for chronic pain" [SEE LINK BELOW], and in Australia we are told there is a "lack of evidence for opioids in the management of chronic non-cancer pain" [i.e. based on the International Assoc. for the Study of Pain Policy Document February 2018].

    Many anti-opioid activists claim there is “no evidence” or "insufficient evidence" opioids work long-term, yet there are NO high quality, placebo controlled studies routinely conducted for longer than 3 months. Therefore, to say there is no evidence is "a misleading statement, because non-opioid pain medications and alternative treatments are not studied for long periods either."

    IF there are no reputable or "good studies" that go beyond 3 months [i.e. due to funding and other regulatory and scientific restrictions], surely the absence of evidence is NOT evidence of absence? There is a silent majority of responsible chronic pain patients, using their opioid pain killers safely and successfully for many years, yet their voice is not being heard.

    #research #CDC #IASP #OpioidCrisis #PainManagement #Opioids #Painrelief #prescriptionopioids #Dontpunishpain #ChronicPain #PainManagement #OpioidEpidemic #OpioidCrisis #opioidtapering #forcetapering #Dependence #Addiction #opioidprescribingguidelines #OpioidHysteria #fearofopioids #opioidrestrictions #chronicpainpatients #deprescribingopioids #abandonment #untreatedpain #OpioidUseDisorder #SubstanceAbuse #PainKillers #StopTheStigma #Holisticcare #qualityoflife #noonesizefitsall

    www.painnewsnetwork.org/stories/2018/5/3/study-finds-opioid-...

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    What was the defining moment or incident that made you seek treatment for RA?

    Living with a health condition can be frustrating and unpredictable, even on the "good" days. When the "bad" days become more frequent or even unbearable and you struggle to get out of bed, are forced to cancel plans, or miss work — you might decide that you need a little extra support through treatment.

    What made you seek treatment for your RA, either for the first time or after a length of time without any intervention? Share your defining moment in the comments below.

    #RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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    True or False: I feel like my rheumatologist makes time for me.

    Mighty fam, we’ve heard from so many of you about the relationship you have with your doctor and how important it is. For some of you, your rheumatologist is the only one who provides space for you to just "be." For others, finding time to communicate with your doctor is a frustrating experience.

    Have you ever felt rushed by your doctor during an appointment? Share whether the above statement feels true or false to you in the comments below. (And if you feel up to it, tell us why!)

    #RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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    What do you wish someone had told you about biologics?

    We know that treating rheumatoid arthritis can be complex, and that it may take some time to find the right treatment plan for you.

    Have you ever taken biologics as part of your treatment journey with RA (e.g., Cimzia, Enbrel, Humira, Remicade, etc.)? If so, we want to hear about your experience.

    What do you wish someone had told you? Share in the comments below. ⬇️

    #RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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    Do you feel like you’re still searching for the "right" treatment for your RA?

    Mighty fam, we’ve heard from so many of you that finding a treatment plan is one of the most difficult day-to-day challenges of managing your condition. There can be many reasons why a treatment or medication isn’t the right fit for you – maybe it comes with intolerable side effects, or you start experiencing new symptoms, or perhaps it’s a daily pill and you’d prefer a monthly injection.

    If you are taking medication to treat your rheumatoid arthritis, do you feel like you’re still searching for the "right" one?

    #RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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    Taking pain medication with Fibromyalgia

    I was diagnosed in 2009. I was started on tramadol, eventually sent to pain management. I have been going there for years. Tramadol became like eating baby aspirin so I was prescribed hydrocodone 5/325. It worked well until it didn’t. I asked for a stronger dose do I was given 10/325 2x a day and pumped to 3x a day. I have been in that for about 31/2 years. It is no longer working as it once was.
    I have tried asking for a medication. I keep being put off. I feel as if she is not taking me seriously. I don’t get it. I have always been open and up front with this group. I followed directions to a tee. Has anyone experienced something like this? How can I get this dr to pay attention and take me seriously? I haven’t been pain free in years. I’m exhausted and tired . #Fibromyalgia #ComplexRegionalPainSyndrome #PainManagement #PainMedication

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    How does RA affect your work or school performance?

    Our RA community has previously shared how their arthritis symptoms, especially pain, have impacted their school or work performance, causing them to miss work or class. The severity or consistency of symptoms can also lead to loss of energy and productivity, or perhaps keep you from being employed altogether.

    How does RA affect your school or work performance?

    #RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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    To Anyone,
    I need HELP. As SOON as can be.
    Now let me explain, please read my full story.
    Alright, back in 2006 I was in 7th grade and going to a private school. I was outside with my friends and I was laughing and took a step back and fell off the curb onto my backpack which had a book jetting out and I herniated 2 discs. (I also had servere stomach pains which made it hard for me to eat). I was put on pain meds due to the severity of my pain (young I know) I started missing alot more school then I already was. My mother took me to Doctor after Doctor for help, test after test. Almost every Doctor REJECTED me saying NOTHING was wrong even with physical evidence my back have herniated. In fact one disc swelled up and they said it was just a "Fluffy" Disc. One doctor even told my mom that my pain was from the stretch marks on my back. And these weren't minor hospitals, I'm talking John's Hopkins, Greater Baltimore Medical Center, University of Maryland, Franklin Square, even Mercy.
    In the meantime I did everything I could to try and help the pain. EVERYTHING. I still went to school, even had 2 jobs and went out with friends. I hid my pain as much as I could. Also, during this time, my mother had 2, back surgeries and was working and dealing with my very crazy Schizophrenic grandmother and equally crazy Bipoloar (more like undiagnosed Schizophrenic) Uncle.
    When I was in 9the grade I was diagnosed with a Gallbladder that had stones and would only contract at 2% (normal is 30% minimum). So I had it removed in '09.
    I had to return to public school for 10th grade, I became even more petrified of school then I had been. (I was already on psych meds for depression and SEVERE anxiety) I also was in an abusive relationship, basically a 24/7 suicide hotline, and my GOD you can say I basically raised my Girlfriend from age 13 to 17. Oh yeah, had to keep that a secret and she lived a state away buy I went every weekend)
    On top of that I found out that my girlfriend during a break with my other was being sexualy abused by her stepfather and had to intervene. She's safe now, moved on and married happily.
    But, I digress. I was put on home tutoring, I did go back for 12th and graduated. My GF (that I went back to) left me and put me in a horried place.
    FINALLY in 2012 I found a doctor that BELIEVED me, after I felt hopeless, that did would do surgery. So, I had a Triple Fusion to my L4, L5, S1.
    A year later though, on Christmas Eve, 1 year and 3 days after my surgery, we found out my older twin sisters friends mother died early in the morning due to an alcohol overdose. We then got a call my Uncle had been found dead in his basement and that my grandmother had been on the floor with no food or water for 3 - 4 days. After going to the hospital to fight with them to save my Grandmother's Life, my Dad took me to see his Mother and siblings. We left just to get into a Head On collision. I got ended up with 2 hematomas, liver damage, a large gash from the seatbelt, a cracking fault line on my teeth, I'm pretty sure a concussion, nerve and muscle damage to my arm and a broken sternum.
    Now, I was having trouble after this with finding a pain management doctor after the laws changed. When the clinic I was going to last for 4yrs they wanted me to try other pain meds other then the ones I'm on but one after the other I had an allergic reaction. So I was put back on the meds I am. I went through 4 or 5 doctors at the clinic. The last one I had never made me feel safe. I tried to find a new place but a program called CRISP came about. I was lined up to go to another doctor but because of this system only showing where that doctor works NOW, I got a discharge from the new doctor for "Doctor Hopping". I also got one from a doctor that did my back injections since I was 12. So I stayed with the old clinic.
    Well, over the past few years my pain got worse. The doctor I was with would order 2 MRIs a year. Finally, he said go see my surgeon. I do find out my bottom 2 screws were fractured and I needed surgery since they were moving.
    One month before my surgery my pain doctor "forgot" to send my meds to my pharmacy then went on VACATION!!
    I found a new doctor, they insisted I have a discharge to be seen. So I go. She said either she weens me off or down or go on Suboxone. I agree to ween down. Next week I have surgery. I was put on 15mg morph immediate release every 4hr and 15mg morph extended every 12hrs.
    A week later I see the new doctor 1 WEEK later that cuts we down to 15mg immediate every 8hrs. I begged for holding one month. Nope. And I'm NOT going on Suboxone, it's 10x WORSE!
    I now have seen multiple doctors that want to take it all away.
    I have no doctor and NOWHERE to go. I'm not a drug seeker, I don't do street drugs, nothing. I now am bedbound with my boyfriend taking care of me. I take this medicine to function. And now I can't.
    My normal script is 15mg Morph IR every 6 and 15mg ER every 12.

    Please, PLEASE, HELP! I'm scared, I'm bedbound, I'm in excruciating pain with nothing. I don't know what to do anymore.
    #help #scared #ChronicPain #BackPain #PainManagement #Advice

    21 comments