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What do you find most challenging about understanding RA lab tests and results?

There are many lab tests your doctor can perform to diagnose and track the progression of your rheumatoid arthritis, including blood tests and imaging tests like X-rays or ultrasounds. But sometimes it can be challenging (or feel impossible!) to understand your lab test results even when your doctor walks through them with you, leaving you feeling confused or frustrated.

What do you find most challenging? Share your experiences or tips with us in the comments below. ⬇️

#RheumatoidArthritis #ChronicPain #Pain #PainManagement #ChronicIllness #CheckInWithMe #Disability #Fibromyalgia #MentalHealth

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What triggers your rheumatoid arthritis? How do you manage them?

What triggers flare-ups and symptoms is different for each person, but research has shown that there are a few triggers to watch out for, such as stress, lack of sleep, and certain foods.

Maybe your is triggered by stress at work or perhaps you’ve noticed your symptoms get worse when your sleep schedule changes. If you’ve identified some of your triggers, how have you managed them?

Share your experiences with us in the comments below. ⬇️

#RheumatoidArthritis #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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Sound & Vibrational Healing for Chronic Pain??

Hello! So, I was curious if anyone out there has tried or knows anything about sound or vibration healing?? Specifically for chronic pain? I swear I have tried everything under the sun and recently heard about this. If you wouldn’t mind, could you please share your experience or what you found out that helps for you? I would be super grateful!! #ChronicPain #Fibromyalgia #Healing #PainManagement

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Diagnosis finally!

I've been diagnosed with hypermobility spectrum disorder very recently. I'm currently trying to process everything and work out what help I need to go back to the rheumatology team in January. I've had symptoms since I was a child but I've been really struggling with pain in my hands and feet particularly in the morning. I've had this for over a year now and been going back and forth with doctors until I finally got to see a GP who referred me for every blood test she could think of and referred me to rheumatology and cardiology to cover all the bases. I'd be interested if anyone has tips on exercises or pain management. I'd love to get fit again but the pain next day just makes it unbearable. #hypermobilityspectrumdisorder #JointHypermobilitySyndrome #Hypermobility #PainManagement #Pain #Exercise

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Contrary to what the mainstream media and "anti-opioid" lobbyists would have you believe, legally prescribed opioid painkillers DO actually work for chronic pain. Opioids have been used for thousands of years to provide relief from pain, so why is there a mis-perception or inference in recent times they should only be used for acute pain?

In America the CDC Opioid Prescribing Guidelines state there is "insufficient evidence to determine long-term benefits of opioid therapy for chronic pain" [SEE LINK BELOW], and in Australia we are told there is a "lack of evidence for opioids in the management of chronic non-cancer pain" [i.e. based on the International Assoc. for the Study of Pain Policy Document February 2018].

Many anti-opioid activists claim there is “no evidence” or "insufficient evidence" opioids work long-term, yet there are NO high quality, placebo controlled studies routinely conducted for longer than 3 months. Therefore, to say there is no evidence is "a misleading statement, because non-opioid pain medications and alternative treatments are not studied for long periods either."

IF there are no reputable or "good studies" that go beyond 3 months [i.e. due to funding and other regulatory and scientific restrictions], surely the absence of evidence is NOT evidence of absence? There is a silent majority of responsible chronic pain patients, using their opioid pain killers safely and successfully for many years, yet their voice is not being heard.

#research #CDC #IASP #OpioidCrisis #PainManagement #Opioids #Painrelief #prescriptionopioids #Dontpunishpain #ChronicPain #PainManagement #OpioidEpidemic #OpioidCrisis #opioidtapering #forcetapering #Dependence #Addiction #opioidprescribingguidelines #OpioidHysteria #fearofopioids #opioidrestrictions #chronicpainpatients #deprescribingopioids #abandonment #untreatedpain #OpioidUseDisorder #SubstanceAbuse #PainKillers #StopTheStigma #Holisticcare #qualityoflife #noonesizefitsall

Study Finds Opioid Medication Effective for Chronic Pain — Pain News Network

By Pat Anson, Editor Opioids have been used for thousands of years to provide relief from pain. But are they an effective treatment? Are they worth the risk of addiction? And do they improve quality of life? Millions of chronic pain patients who use prescription opioids so that they can work,
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What was the defining moment or incident that made you seek treatment for RA?

Living with a health condition can be frustrating and unpredictable, even on the "good" days. When the "bad" days become more frequent or even unbearable and you struggle to get out of bed, are forced to cancel plans, or miss work — you might decide that you need a little extra support through treatment.

What made you seek treatment for your RA, either for the first time or after a length of time without any intervention? Share your defining moment in the comments below.

#RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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True or False: I feel like my rheumatologist makes time for me.

Mighty fam, we’ve heard from so many of you about the relationship you have with your doctor and how important it is. For some of you, your rheumatologist is the only one who provides space for you to just "be." For others, finding time to communicate with your doctor is a frustrating experience.

Have you ever felt rushed by your doctor during an appointment? Share whether the above statement feels true or false to you in the comments below. (And if you feel up to it, tell us why!)

#RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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What do you wish someone had told you about biologics?

We know that treating rheumatoid arthritis can be complex, and that it may take some time to find the right treatment plan for you.

Have you ever taken biologics as part of your treatment journey with RA (e.g., Cimzia, Enbrel, Humira, Remicade, etc.)? If so, we want to hear about your experience.

What do you wish someone had told you? Share in the comments below. ⬇️

#RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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Do you feel like you’re still searching for the "right" treatment for your RA?

Mighty fam, we’ve heard from so many of you that finding a treatment plan is one of the most difficult day-to-day challenges of managing your condition. There can be many reasons why a treatment or medication isn’t the right fit for you – maybe it comes with intolerable side effects, or you start experiencing new symptoms, or perhaps it’s a daily pill and you’d prefer a monthly injection.

If you are taking medication to treat your rheumatoid arthritis, do you feel like you’re still searching for the "right" one?

#RheumatoidArthritis #Pain #PainManagement #ChronicIllness #CheckInWithMe #ChronicPain #Disability #Fibromyalgia #MentalHealth

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Taking pain medication with Fibromyalgia

I was diagnosed in 2009. I was started on tramadol, eventually sent to pain management. I have been going there for years. Tramadol became like eating baby aspirin so I was prescribed hydrocodone 5/325. It worked well until it didn’t. I asked for a stronger dose do I was given 10/325 2x a day and pumped to 3x a day. I have been in that for about 31/2 years. It is no longer working as it once was.
I have tried asking for a medication. I keep being put off. I feel as if she is not taking me seriously. I don’t get it. I have always been open and up front with this group. I followed directions to a tee. Has anyone experienced something like this? How can I get this dr to pay attention and take me seriously? I haven’t been pain free in years. I’m exhausted and tired . #Fibromyalgia #ComplexRegionalPainSyndrome #PainManagement #PainMedication