Tourette's

i have tourette's, ocd, social anxiety, and sensory processing disorder. i finally found a community and i am so glad to be here

Hey I was wondering if anybody else has both OCD and Tourettes? I don't quite relate to the compulsions and anxiety of and OCD diagnosis and I've heard that Tourettic OCD is different from general OCD, and wanted to know if anyone knew anothing about that. Thank you!

Hi, my name is Nick3310. I'm here because my son has Tourettes

Do you ever feel like every time you make any progress with your illness/disease you win a little then it knock you so much father back that you will never get back to were you were before?

So I have FND which means my nerves and brain function abdominally and communicate about as well as toddlers playing the telephone game. Add in a sprinkle of Tourettes Syndrome and Sensory Processeing Disorder, Migraine, Dyskinesia, Dystonia, and we are currently exploring epilepsy. All this results in me being confined to a wheelchair at least 85% of the time and need to be supervised if I am not. Along with eating difficulties, communication problems ect...

I have to go in for occupational therapy and physical therapy once a year to help me maintain quality of life. Sometimes we add speech or cognitive to spice things up if I need it . All these therapies are great and can act as kinda a filter on how to adapt my life to limitations and give some good ideas on how to make life easier within my limitations my body has placed on me. However it always feels like we make a little progress with them and once I "graduate" out of them (stop making progress usually after a the first 2 months) my body starts to decline again even though I countue to do my home programs (hey I want as much quality of life as I can get I mean I turn 20 in the fall I will take what I can get). This happens with me staring to fall more, my hands start to get weaker, I drop more weight, ect.

2 steps forward 6 steps back.

Every time. It seems like I am on this never ending loop of yes some progress. Whap out of no where I get worse ...

2 steps forward 6 steps back.

It's like this dance me and my body play. Oh you gonna work to try and get better. Sike now your worse enjoy the new wheels.

2 steps forward 6 steps back.

Around and around we continue this dance and we can't seem to figure out why this downward spiral keeps happening. Like I'm not gonna keep fighting for my quality of life but man would I like to stop this dance or at least hit pause for a bit.

2 steps forward 6 steps back

It's exhausting. I just moved and my new pcp asked if I had made any progress on getting better and it hit me that no actually I keep getting worse and my symptoms keep getting more debilitating as time goes on. So now we redo all the testing and redo all the things to see if anything has changed...

2 steps forward 6 steps back.

Anyway I'm just excused with everything. I'm still gonna try and still gonna give it everything I got which honestly isn't much at this point. Still gonna give it a go. Got to continue this dance in homes that some day it will be 6 steps forward and 2 steps back instead.

#FunctionalNeurologicalDisorder #ChronicFatigue #ocupationaltherapy #PhysicalTherapy #notmakingprogess

I've heard rarely about OCD being thought of as a category of neurodiversity - not so unlike Tourette's/Tics, ADHD, or Autism in certain respects. As somebody with the disorder, myself, I've often felt frustrated at having to try to fit the "square peg" of my brain into the "round hole" of society. I've been ruled out of counting as really truly experiencing it cuz I didn't match stereotypes. I've felt stigmatized by medicalizing (a.k.a. pathologizing) who I am and how I work. I've advocated so much about it, trying to make new meaning out of my story.

I don't always feel that my O's and C's are so anxious and awful - aside from trying to fit the way that I work into the behavioral norms others expect of me in school and social communication. I've always felt felt - by its literal definition - the Normal model that people always talk about it can not fundamentally exist in a population without also incorporating the smaller percentages of diversity which lay outside the majority group. To not have those tail ends would mean the entire society is abnormal. I've managed to use perfectionism and certain boundlessnesses of my brain in order to get by and succeed so well in life, but deep inside it feels like a performance and I've forgotten how to just be my unabashed self.

Obviously there is a pathology involved with the condition, and I've always felt that anybody struggling with anxiety and uncomfortable experiences they're stuck with as a result of their minds' differences should get to receive accommodations and help. It's a huge process for me to live out an "exposure therapy lifestyle", but as effective as it may be pragmatically - it's awful and often feels like... why do I need to always get the same feedback and fix myself. It's hard to perpetually inconvenience others... it's harder to not get the credit and space provided to me cuz im a cis, (largely) straight, able-bodied, white man. It's been so unfair to try to stuff myself into others' ways of being just because it feels there's no spot for me in the world that doesn't involve exposure therapy.

In my work I've done research that common treatments for the condition may work to alleviate "symptoms" (not my favorite term) and get statistically significant remission - BUT in 1/3 of cases people do not meet recovery and only around 60% of the "symptoms" tends to be addressed on average. This is a huge hole that seems very apparent to me! I wonder why having done exposure therapy on reading may have left me ~able~ to read, but never really desiring or willing to myself. I really think there's something to be said of the idea that acceptance-focused treatments seem to fill those treatment gaps for individuals with OCD. Perhaps it's not in trying to force myself to be what I'm not that is the necessary step. Perhaps it's alright to have experiences related to OCD. It seems that bringing some peace to the picture can really help others and myself feel less ostracized and hopeless.

Maybe I need a platform to embrace radical positivism and acceptance about my own mind. Maybe I need to identify less centrally with this label and just accept and advocate for my #Neurodiversity