Tourette Syndrome

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Tourette Syndrome
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    Community Voices

    Sunshine 🌞

    <p>Sunshine 🌞</p>
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    Community Voices

    Go to foods...

    <p>Go to foods...</p>
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    Community Voices

    Wrecking Ball, Meet Rope: Cancer + Mental Illness

    <p>Wrecking Ball, Meet Rope: <a href="" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce6a00553f33fe98f050" data-name="Cancer" title="Cancer" target="_blank">Cancer</a> + <a href=" Illness" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce5800553f33fe98c3a3" data-name="Mental Illness" title="Mental Illness" target="_blank">Mental Illness</a></p>
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    Brittany Johnson

    Billie Eilish and Letterman Discuss Harm of Mocking Tourette's Tics

    Billie Eilish recently spoke to David Letterman about her Tourette’s syndrome, and how it hurts when people make fun of her. Tourette’s syndrome is a nervous system condition in which a person has repetitive “tics,” or twitches, movements, or sounds. According to Mighty user Shanon who lives with Tourette’s, three things that people with Tourette’s want you to know are that they can’t control it, it’s painful, and that people without Tourette’s don’t understand what it’s like to have the condition. “If you film me for long enough you’re going to see a lot of tics…The most common way people react is they laugh because they think I’m trying to be funny…and I’m always left incredibly offended by that.” Billie Eilish first came forward with her Tourette’s diagnosis in November of 2018 after a compilation of her tics started making the rounds on social media. The then 16-year-old went on Instagram and spoke about her diagnosis and life with Tourette’s: “I would love to get this straight so everyone can stop acting goofy.. I have diagnosed Tourette’s. I’ve never mentioned it on the internet because nobody thinks I’m deadass…as well as…the fact that i’ve just never wanted people to think of tourettes everytime they think of me. My ticks are only physical and not super noticeable to others if you’re not really paying attention (believe me, having them is a whole different type of misery). My Tourette’s make easy things a lot harder. Certain things increase and/or trigger the intensity of my tics. But it’s something i grew up with and am used to…my family and closest friends know it as a part of me.” She then goes on to say “…these compilations y’all have been making of my tics are lowkey funny even when y’all make fun of them n’ shit. I know you’re all confused so as to what it is, so just to let ya know…it’s Tourette’s.” That being said, Eilish’s latest conversation with Letterman shows that she no longer finds it funny, but rather “incredibly offensive.” “If you film me for long enough you’re going to see a lot of tics…The most common way people react is they laugh because they think I’m trying to be funny…and I’m always left incredibly offended by that.” It’s disheartening to hear that even though Eilish spoke years ago about Tourette’s, people are still choosing to make fun of her for it. Making fun of anyone for a health condition that they cannot control is wrong and ableist. Yes, we live in the age of memes where it feels nothing and no one is safe from a YouTube compilation or “shitpost,” but some things are still not OK to laugh at. Yes, we can blame ignorance, but at the same time when someone has gone out of their way to clarify their diagnosis, disorder, or condition, then there comes a time where we can’t blame it on ignorance. If you didn’t know, now you do. Some things are laughable, some things are not, and Billie Eilish’s Tourette’s syndrome is definitely not.

    Community Voices

    TS, ADHD, and OCD-- the trifecta?

    Anyone here deal with all three? I have mild tic symptoms, moderate ADHD symptoms, and once severe OCD symptoms (although these are now under control; I am very lucky that treatment has worked for me!)

    #TouretteSyndrome #ObsessiveCompulsiveDisorder #ADHD

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    Kaden M (he/they)

    Supporting People With Tourette Syndrome and Tic Disorders

    Tourette syndrome (TS) and other tic disorders rarely ever occur alone. According to the Tourette Association, tic disorders most commonly occur with attention deficit hyperactivity disorder (ADHD) and obsessive compulsive disorder (OCD). They also often co-exist alongside depression, anxiety, learning disabilities, sensory processing disorder, and autism. I have had mild tics for many years — some which are more bothersome than others. It was not something that was ever medically addressed, as is the case for many people with tic disorders (Most — although not all— tic disorders are not severe and do not need medical treatment.) I remember being in third or fourth grade and needing to make a clicking sound with my tongue as well as having the urge to sniff my hand repeatedly (which I still do today). I also would have phases where I had tics that involved stretching my neck. There were likely others, but it’s hard to remember them. Today, however, my main tic involves my toes and feet. It bothers me, so I plan to see a neurologist about this soon. That being said, it’s bearable. I also have a full-body shiver tic too. My tics are hardly noticeable to others — sometimes they bother me, and other times they don’t. I have several comorbidities. In fact, I feel like I’ve been diagnosed with everything at this point. That being said, I feel my diagnoses (bipolar I disorder, anxiety, OCD, ADHD, dyscalculia, and restless legs syndrome) are accurate. I think that humans are complicated and that it’s a rarity to only have one diagnosis, especially when looking at tic disorders and other neurodivergent conditions. So how can we best support those with tic disorders and their comorbid conditions? I think the key is acceptance and education. There are individuals who experience obvious tics and are bullied or judged for them. There are also other people like me, whose tics are subtle but can still be bothersome at times. Many of us need accommodations in school or work for our comorbid conditions, like ADHD, OCD, and learning disabilities. I recently started a group here on The Mighty for tic disorders and their comorbidities. I welcome you to join if anything of this resonates with you! I urge you to remember that being neurodivergent can be a beautiful thing. You are uniquely you, as I am uniquely me. Don’t forget that!

    Community Voices

    Cookie time! #CheckInWithMe

    <p>Cookie time! <a class="tm-topic-link mighty-topic" title="#CheckInWithMe: Give and get support here." href="/topic/checkinwithme/" data-id="5b8805a6f1484800aed7723f" data-name="#CheckInWithMe: Give and get support here." aria-label="hashtag #CheckInWithMe: Give and get support here.">#CheckInWithMe</a> </p>
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    Community Voices

    Does anyone here have sensory processing challenges?

    #SensoryProcessingDisorder #TouretteSyndrome #TicDisorders I struggle with both hypersensitivity and hyposensitivity/sensory seeking. For instance, right now I am wearing a weighted vest I bought online (yes they sell them for adults too!) in order to feel calmer and more regulated.

    I know this isn't always a part of having a tic disorder but is a common comorbidity.