wearethemighty

Join the Conversation on
157 people
0 stories
2 posts
  • Explore Our Newsletters
  • What's New in
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post

    Under Informed

    When I was diagnosed with Intercranial Hypertension my Neurologist told me I had Pseudotumor Cerebi, I asked him what it was and he explained, I asked him the risks and he didn't tell me anything except I need to lose weight. I went home and looked it up on my one and found it on the government medical library website, thank God I did. We planned on flying up to see my baby niece and in laws this year, little did I know the risks in flying with Intercranial Hypertension were. Once I saw that I decided I'm never flying again. I've had four spinal taps in the last year and 2 of them failed and caused me severe pain and the wort after effects. Is there anything that alleviates pressure besides a spinal tap? I'm afraid to get one again. I've lost 30 lbs already and still losing but still suffering. Stay strong everyone 💪🏽
    #wearethemighty #ChronicPain
    #ChronicIllness #RareDisease #IIH #iihwarrior #Migraine #Vertigo #VestibularMigraine #chronicmigraine #IntercranialHypertension #CheckInWithMe #checkupwithme #StayStrong #Pain #chronic #neurology

    2 comments
    Post
    See full photo

    distraction #CheerMeOn #CheckInWithMe

    What is your go to distraction?

    For me its baking.. These 2 beauts are red velvet cakes. Straight from the oven. Burning hot. Sorry there on another tray. I got distracted 😂😂

    #DistractMe while they are cooling down. Before I can ice them and have a slice.

    #52SmallThings #ChronicPain #ObsessiveCompulsiveDisorder #ChronicIllness #RareDisease #WhatWeLoveMostAboutLife #TrigeminalNeuralgia #PanicAttacks #TherapyPets #Arthritis #Anxiety #SphincterOfOddiDysfunction #MightyTogether ##wearethemighty

    135 comments