I'm new here!
Hi, my name is charlottesmithart. I'm here because I am always looking to help others and others to help me!
The doctor just came and diagnosed me with sphincter of Oddi Dysfunction. This is a life long and painful. Yes another diagnosis on top of my dysautonomia.
I realized I hadn’t updated my “medical conditions” list on my medical ID bracelet site in awhile. I realized after looking over my list that most of my conditions are “invisible”, except for my knee problem that I wear a knee brace for and sometimes use a cane. So often, I feel overwhelmed by the number of conditions I live with (Am I a “bad seed”?) and the physical and emotional pain that they cause; even the ones that have been “repaired” have come with lingering pain from scarring, incomplete cure or subsequent Dx. I’m thankful for my caring husband and a few really close friends who understand to a point. But even they get tired of my need to share my emotions about what I’m going through. I’m thankful for this group who gets what I mean and can give support without judgment or weariness.
I’m no longer able to work fulltime; I used to be an educator in various special education programs as well as in schools.
I try to help others who have conditions like mine as well, so I’m not just a “taker”.
Here is my list. Dates indicate either diagnosis date or surgery date.
Right inner ear imbalance 1998
Narcolepsy 1999, 2021
Allergies - plants, animals, foods and meds
Sliding hiatal hernia 2011
Sphincter of Oddi dysfunction Type 3 2007 - result of gallbladder removal 2005
Diabetes Type 2 1996
Mild/moderate disc degeneration neck & low back and mild spinal stenosis
Slip & fall back injury 10/15- MRI Nov 2017 SI joint injury
Fibromyalgia - 1995
Sleep apnea 2019
History of ruptured ovarian cysts 2006 -
Recurrent tingling/"electrical shocks" all over body 2007 - diagnosed as Small Fiber Polyneuropathy 2020
Scoliosis (curved and twisted)
Right knee cartilage deterioration (injured 1979 & 1986) - diagnosed permanently dislocated kneecap 2019
Arthritis - neck, hips, knees, hands
Carpal Tunnel syndrome - 2019
Bursitis - left hip 2017
Recurrent "tennis elbow"
Plantar fasciitis and tendonitis both feet - custom orthotics 1991
Anxiety, C-PTSD, possible BPD
Multiple concussions (5)
Multiple whiplash injuries
Vaginal Hysterectomy with Rectocele and Cystocele repairs - 2018 - Urinary incontinence
Good Morning Mighty Family n Friends
My Pepper Pup looks very bored already by the dark nights and cold evenings.
I've even put my heating on. Eek.
I just couldn't cope any more so I just had too. 😅😊 it's nice a toasty warm in my home now. Pepper n Pedro are much happier too. Much nicer than just the fire. 🔥
How are you all coping with the autumn cold or in the uk it feels like winter already. Brrrr ⛄☔
Love n hugs Tj ♥️🧡❤💜🦄🦓🤝💪 #winterwarmth #Love #Hope #TrigeminalNeuralgia #ChronicIllness #Migraine #Family #Arthritis #ChronicPain #InflammatoryArthritis #SphincterOfOddiDysfunction #GlossopharyngealNeuralgia #Anxiety #Depression #DistractMe
It's today 12th October
World Arthritis Day
It's just part of you
Not the whole you
Just a bit of your story
But if you'd like to share your story with us today
I mainly suffer with enthesitis meaning it's in my ligament and tendons and not my actual joints. So hence it took so much longer to get a diagnosis. I have it in every joint including my spine and neck.
Makes for an interesting life.
Love n hugs on World Arthritis Day Mightys Ones Tj 🥰🖐😘😊💜💪🤝❤🧡
#MightyTogether #PsoriaticArthritis #Osteoarthritis #TrigeminalNeuralgia #GlossopharyngealNeuralgia #InflammatoryArthritis #Migraine #ChronicPain #Selfcare #FamilyAndFriends #ChronicFatigue #SphincterOfOddiDysfunction
Good Morning Mighty Family n Friends 💪🖐
It's nearly that time of year again
7th of October is nearly here again and it is international Trigeminal Neuralgia day again
Teal is the colour of the day for raising awareness for us who suffer from this awful disease.
Anyone one can get this. At any age male or female. Although the neurologist will tell you children do not get it.
Yes they do!!!!!!
It is literally a pain in the face electric shocking nerve pain in the face. Like being hit be a train over n over n over n over again in the same place oh but it moves places too.
Love n hugs Tj 🦓🦄🦓🦄🦓 #GlossopharyngealNeuralgia #TrigeminalNeuralgia #OccipitalNeuralgia #ChronicPain #ChronicIllness #RareDisease #Migraine #SphincterOfOddiDysfunction #Arthritis #MightyTogether #Love #Hope #Selfcare
Good Morning Mighty Family n Friends
How are you Today 🖐
It's not that I want to run
Away from anything
I just want to
Who wants to run with Me??
Not that I can Run mind 😅🙃
I can sort of walk. More like hobble with my crutches, as long as you all walk slowly and don't leave me behind.
But I feel like going in a different direction, trying something different. Doing something new. I'm stuck in a rut, a hole, a big rabbit hole.
So who is with me ✋
Love light n hugs Tj
❤🤐🤷♀️🖐💜🧡😘🙃😌🤗👼🦅🐧🦉🥰🐦😳👵 #ChronicIllness #RareDisease #MightyTogether #PsoriaticArthritis #TrigeminalNeuralgia #GlossopharyngealNeuralgia #Migraine #Cancer #ChronicPain #Chatspace #SphincterOfOddiDysfunction #Hope #Love #Bekindtoyourself #Selfcare #Kindness #
Good Morning Mighty Family n Friends
I think my nasty Migraine might have finally gone....
Only took a week. Been thinking it's been gone these passed few days. But just wanted to make sure it had, and wasn't gonna sneak back up on me. 😅
It's been raining 🌧⚡Thunder and lightening then sunny next day 🌞So wanted to make sure.
Still got nasty headaches, but that's just normal for my meds and facial conditions.
AND guess what number 2
My wonderful doctor after writing to the neurologist for the third time at my other local hospital. I only have an appointment in September.
A face to face one even.
That's another little dance time.
I've seen her before when I lived in that area.
She is really nice 👩⚕️saw her when she diagnosed me with trigeminal neuralgia.
So fingers crossed she can start to investigate these migraines and cluster headaches.
So as I can now see out of both eyes again, no double vision or blurry vision. I'm back on the Mighty.
I have missed you all so much. Gets lonely. But my lovely neighbour kept me company, and when she couldn't be there she'd drop off her little dog for a bit, to play with my 2 pups for a while.
Loved watching them all play. 🐕🐶🐾❤😅
Hope you are all ok. Do tell me what you are all up to.
Love n hugs Tj ❤🤗🧡😘🌞💚🐶 #RareDisease #MigrainesWithAura #TrigeminalNeuralgia #GlossopharyngealNeuralgia #SphincterOfOddiDysfunction #Anxiety #Hope #Love #Selfcare #Bekindtoyourself #Family #Friends #Depression #checkonyourneighbours #Arthritis #PsoriaticArthritis
I can't say Good Morning
Cos I've still got the dam migraine. Day 5 now
I'm ok just completely fed up with left side numbness pins n needles neck pain and of cause the one sided head pain 😥
I think I know what it is too.
But until I get to the headache clinic I can't formally get diagnosed with it.
With the Pandemic how long will that take. Both my local hospital won't take me on.
Neurologist are working on coronavirus patients aren't they!!
But hey what's new with that.
I've been dealing with chronic illnesses for 20 years now. So it's nothing new . Just so so so dam annoying frustrating and making me angry..... 😠😵
Its no ones fault, I'll just carry on as I always do. With a smile and a laugh . I'll cry when I need too, rant and get it out of my system.
So thanks for listening My Mighty Family n Friends.
You are all the very best.
Love you all . Tj 🤗😘🧡❤💚💛😁🖐
#Undiagnosed #frustrated #RareDisease #Arthritis #Migraine #ClusterHeadaches #Anxiety #MightyTogether #Bekindtoyourself #Selfcare #Love #Hope #rant #Vent #talkingtherapy #CheckInWithMe #NeverAlone #SphincterOfOddiDysfunction #PsoriaticArthritis #GastroesophagealRefluxDisease #HiatalHernia #Pain #Chronicpainwarrior
I'd walk through fire
For my Best friends
Well, not fire.
That would be
But a super humid room
But not too humid
Now that's a friend for you.
How are you all today?!
Hot and humid. Ready to walk through a humid Room for your Mighty friends 😅👊💜
Love n hugs Tj 🌈👋💪🐕🐾🐶
#Anxiety #Hope #RareDisease #PsoriaticArthritis #Depression #SphincterOfOddiDysfunction #TrigeminalNeuralgia #ClusterHeadaches #GlossopharyngealNeuralgia #Arthritis #Bekindtoyourself #checkonyourneighbours #Selfcare