I'm new here!
Hi, my name is YangLiu. I'm here because I was diagnosed with Ewing sarcoma recently, I'm here looking for friendships and emotion support
Getting a cancer diagnosis is many things — heartbreak, anger, pockets of simplicity, grief, even gratitude. But there are parts of it that straight up suck.
What’s been the #1 challenge for you or a loved one?
I am struggling. I am struggling with my body image. Self-loathing is taking over my life right now. I feel this is a subject that needs to be discussed.
I have a rare bone disease called McCune Albright syndrome. I had an eventful childhood in and out of hospitals for years because it was more extreme when I was younger. Broken bones all the time. It’s very rare but it does affect people differently. It has affected my bones from the neck down. Some can’t walk or have facial deformities. I have had my own adversities in regard to deformities in my lower extremities. I consider myself lucky or unlucky. I thought that I had made peace with my body and embraced my differences, but sadly, I’m still struggling.
It’s not OK to body shame anyone! I have felt body shamed by people who I thought cared about me and know me well. It’s extremely painful for me to discuss these issues because it’s causing me to hate my body. I hate my body so much that I can’t even look at myself naked. The worst part is, I feel that my body is unattractive to men. My fear is that I will never find a man who will love and accept my body for what it is and how it looks.
Having a physical disability has been difficult to deal with, especially when those close to me have body-shamed me. I would like to shed light on this matter because I don’t think that anyone should be criticized for having imperfections.
Being diagnosed with cancer can certainly be scary, confusing, and frustrating — just to name a few of the whirlwind of emotions that may come up.
If you could give any advice or words of wisdom to someone newly diagnosed with cancer, what would you share?
🎧 🎙️ If you're up to it and would like to listen, feel free to check out this Mighty Podcast episode on what it's like living with a rare cancer:
🥁 Introducing… Cancer Corner! 🥁
Cancer of any type brings with it a transformative experience for everyone it touches. Whether you have just been diagnosed, are going through treatment, or are in remission — our new Mighty group for you.
We warmly welcome caregivers and those who are currently supporting or have lost a loved one to cancer too.
This is a safe space to talk honestly about what you’re going through — the good, the bad, and the just plain ugly. Cancer sucks, but you don’t have to face it alone.
🔑 Here’s the link to join: Cancer Corner
Living with pulmonary fibrosis and the death of my dad who died last week.
Dad had neuropathy and then he had several different #Cancer then he had #BoneCancers . Hospice was called and a few days later he had passed away. Without him knowing it, he taught me to be patient in the waiting I’ve had this rare lung disease for almost a decade now. Being on oxygen 24/7 is a blessing and a reminder that I’m still alive and I just need to wait on the lord and take it day by day, making sure to be good to myself along the way. One day I will be free of my infirmities and will be able to run, jump, hop, & skip weather their in Heaven or here on earth. I know my dad is in Heaven. He is not in any pain anymore. Today is the showing and tomorrow is the funeral. I’m sad to say goodbye. When he had to go, he took a part of me with him. But I will wait patiently on the lord and wait for a healing. Weather that’s here or in Heaven. I still remember he and I were dancing together on my wedding day. Almost 14 years ago. We danced to angel eyes by the Jeff healey band. He looked so handsome that day. & we were both in good health then. I know one day we will be dancing together in Heaven.