Bone Cancers

Part 1 of 3 Hello Beautiful Ones,

I love you.

It’s been a while between blogs!

Life is busy and moving incredibly fast.I’m even turning 25 next year. No I’m not…My kids are a mix of near adults and pre-teens and the hairs on both the adult heads are getting more grey as each day passes.

Also, we take collagen now. Like real old people do.  I asked my 90 year old Nana today, how old she felt – “ Not a day over 21 love.”

Time is a vapour. A simultaneous thief and gift.

So I’m gonna head right in to this convo: #Anxiety .
#Depression .
Yuck.

I wish I knew their names 20 years ago. It was weird growing up in the 90’s with quite a common heredity predisposition to #Anxiety , yet having no clue whatsoever as to what was going on in my body. Since a diagnosis later in my life, I have spent the best part of the last 15 years wrestling with God about my own journey through #GeneralizedAnxietyDisorder ( Generalised  #Anxiety Disorder). In the very beginning I screamed to Him, punched walls in frustration, removed myself from social settings, blamed God, blamed myself. It wasn’t until I got some real revelations about God and some real education about my condition that healing truly begun. Here is a little bit of my story so far.

The Back Story :

Since I can remember, #Anxiety has been a part of my life, of me. I wasn’t just scared of the dark, I lived in constant fear of death of a loved one, of being alone, I had #PanicAttacks all through primary school which worsened in high school. I grew up assuming this all-consuming sensation that took over my body and left me exhausted and petrified, was normal. It didn’t have a name until I was 23 and gave birth to my first child Samuel. Sammy had some complications during birth and his heart rate dropped rapidly putting his life at risk. At a time that my Mum expected me to completely freak out and lose my mind with panic- I actually went numb. My body decided it was too much and shut down to protect the amount of #Anxiety my body had produced. Post-Natal #Anxiety Activated. Looking back- knowing my condition then would have changed everything.What followed was 3 months of the closest thing to hell I have ever experienced. I couldn’t eat for 3 months, I was given nutrient shakes (vom) made by my family to keep me going. I couldn’t sleep for 3 months. I know that sounds strange and extreme, but it is what it is. My body and nerves were so over-sensitised that sleeping wasn’t an option. Sleeping tablets did nothing. I found myself in the emergency room at hospital with heart machines monitoring potential heart #Arrhythmia / heart attack. My body shook with constant adrenaline for weeks, essentially, in a constant #PanicAttack for the first month of my child’s life. Thankfully my family loved on him like no other love I have seen.

As I began to see doctors and receive therapy and education I learned that what I had my entire life wasn’t a spiritual attack, it was a physical condition. Just as is #Diabetes , #Hypertension etc, my brain chemistry came in a certain package from birth and I now had to make adjustments, accept treatment and medication to help me live the best life I can. It was the best thing I have ever done in my life.

My journey with #Anxiety and God really began here. Years of wrestling where God fits into #MentalHealth and where #MentalHealth fits into me and who I was created to be.
Here is a few things I’ve learned along the way:

1) #MentalHealth is a result of chemistry not a flaw in character.

It is so easy to integrate the 2 but something so significant that I learned is that brain chemistry is as physical as #BoneCancers . If you came home with a broken leg or an open wound- you would be taken to the closest hospital for assessment and treatment. It feels emotional because brain chemistry is the control centre of emotions- that doesn’t mean what you are experiencing is made up or “in your head”- it is literally in your body and sending signals around your core system to feel and experience real symptoms. This is why deep breathing ( 4 seconds in the nose/ 4 seconds out t

Hi, my name is lyndenjones. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether #Anxiety #PTSD #ADHD #BoneCancer #breastcancer

Living with pulmonary fibrosis and the death of my dad who died last week.

Dad had neuropathy and then he had several different #Cancer then he had #BoneCancers . Hospice was called and a few days later he had passed away. Without him knowing it, he taught me to be patient in the waiting I’ve had this rare lung disease for almost a decade now. Being on oxygen 24/7 is a blessing and a reminder that I’m still alive and I just need to wait on the lord and take it day by day, making sure to be good to myself along the way. One day I will be free of my infirmities and will be able to run, jump, hop, & skip weather their in Heaven or here on earth. I know my dad is in Heaven. He is not in any pain anymore. Today is the showing and tomorrow is the funeral. I’m sad to say goodbye. When he had to go, he took a part of me with him. But I will wait patiently on the lord and wait for a healing. Weather that’s here or in Heaven. I still remember he and I were dancing together on my wedding day. Almost 14 years ago. We danced to angel eyes by the Jeff healey band. He looked so handsome that day. & we were both in good health then. I know one day we will be dancing together in Heaven.

I feel like I've kind of given up on taking my life too seriously at the moment and not really in a good way. This past year I've had to give up my amazing once in a lifetime opportunity job, retire from my profession (at the age of 22)due to my EDS getting worse, developed awful sinus problems resulting in only one half of my respiratory system receiving oxygen. Found out that I've got a bone tumor which all my medical professionals have known about for the past 10 years and glossed over by tiptoeing around what it was and playing it down. Also finding out that the excruciating hip pain ive had the last few years, is what they reckon to be a multiple bone tumors growing on the hip joint and is most likely bone cancer - but they are unwilling to do further testing 'until i am in more pain' ... thank you NHS
I'm away to start uni to get a teaching degree which has always been my dream but i am terrified that I'm going to have to give up on that dream too, I'm really really stressing and worried about the future. #EDS #EhlersDanlosSyndrome #JointHypermobilitySyndrome #Career #scared

What is it about this month!
My bosses mom was diagnosed with bone cancer a few weeks ago. My great aunt was diagnosed with kidney cancer last week. My mom just received a call that my grandma has colon cancer.
#Depression #Anxiety #PTSD #CPTSD #cancersucks