Ovarian Cancer

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Ovarian Cancer
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    Community Voices

    What is the toughest conversation you’ve ever had about infertility?

    <p>What is the toughest conversation you’ve ever had about infertility?</p>
    Community Voices

    What’s a common misconception about endometriosis you wish was better understood?

    <p>What’s a common misconception about <a href="https://themighty.com/topic/endometriosis/?label=endometriosis" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7c00553f33fe99213d" data-name="endometriosis" title="endometriosis" target="_blank">endometriosis</a> you wish was better understood?</p>
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    Community Voices

    Join us in our new Mighty group… Infertility In Focus!

    <p>Join us in our new Mighty group… <a href="https://themighty.com/topic/infertility/?label=Infertility" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce8c00553f33fe994f9b" data-name="Infertility" title="Infertility" target="_blank">Infertility</a> In Focus!</p>
    1 person is talking about this
    Community Voices

    How many doctors or specialists did you see before you received your endometriosis diagnosis?

    <p>How many doctors or specialists did you see before you received your <a href="https://themighty.com/topic/endometriosis/?label=endometriosis" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7c00553f33fe99213d" data-name="endometriosis" title="endometriosis" target="_blank">endometriosis</a> diagnosis?</p>
    4 people are talking about this
    Community Voices

    I don’t know how to tell my story but I guess I’ll just start somewhere and describe each piece of a difficult situation that is happening to me and I have no idea how to process

    This week I found out my sister has ovarian cancer. It also happens that my sister made the choice to have no contact with me for the last 7 years. You need to know that I’m not some kind of monster who did anything super abusive or horrible to her for her to make this extreme decision to deny my existence. I’m just an average person, and the last time we had a real interaction was at my bridal shower 7 years ago where she was nagging me and I was stressed and snapped at her, nothing special, just siblings fighting about arriving on time for a brunch. You also need to know my sister has lived her life with undiagnosed & untreated mental health issues, issues large enough to negatively impact her life in big ways, she became anti-social, is unable to keep a steady job and overall has affected her ability to create the life she wanted (I’m not perfect either but I’ve been in therapy for years and gotten medical treatment). So back to this week, I learned from my mom about the diagnosis, and I researched the statistics around ovarian cancer and it’s not great is what I’m hearing. I decided to send supportive messages to my sister on telegram and she immediately blocked me. Mind you I have not attempted to reach out to her for years because she made it clear in first year she doesn’t want to talk me, never replied to my emails and never tried to contact me, so I respected her boundaries but also because I’m a human being and I do not deserve this degree of punishment. For most of our lives I was incredibly supportive of her, I paid her tuition, I gifted her trips to Europe and California, I invited her to live in my condo and only pay utilities to help build her build confidence and become more independent, and yet because of an argument she has chosen to alienate me completely. Yet considering the gravity of the situation I reached out to her and her response was to block me. So I am here today knowing my estranged sister has a serious illness that affects her mortality and I know she will go through this experience mostly alone, except for my parents and also knowing I will only be a distant witness to a very serious thing happening to my only sibling. I cannot fathom how she could hold on to a grudge towards me for so many years for an incident where I was irritated and angry with her on a day that was stressful for me, to the degree where even through a global pandemic and in the case of a life altering illness she refuses to recognize my humanity.

    I have no idea how to feel, every hour I feel something different. I feel shocked, sad, angry, but then I feel indifferent because she chose to severe our relationship not me. I feel I should do everything I can and pay for her to get best medical therapy but also that I shouldn’t for someone who doesn’t even care about me.

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    Community Voices

    Life’s Not Nice At Times

    Trigger Warning!!

    I lost all my friends bar one when I became psychotic and manic in 2007 and again in 2008. It was a sudden thing that happened in 2007 and the trauma of it caused the onset of my bipolar and the unblocking of memories from my early childhood. My CPN said I disassociated with it all. Although I had some memories that have always been with me. Although these memories were so weird and unfathomable. Once I had the awful reminders, I finally understood what all the other memories meant!
    Last year my last remaining friend took offence to me calling her out for not showing up without any kind of contact to let me know! She had no good reason . Even if she did have a reason she could of just kept me in the loop! I was so surprised she has ‘unfriended’ me, so’s to speak. I can’t even call her. I’m blocked! Perhaps it was just an excuse. That’s what she really wanted! We’ve been friends for over 35 years! I miss her!
    On the 29th December 2021 my bf ended our 11+ year relationship. He said he loved me on Christmas Day and then a few days later he dumped me … by text message! We weren’t arguing. Just had a small disagreement. Totally minor. He has said it wasn’t that! We had always got on so well! It still doesn’t make sense!
    So now I’m going it alone! Not quite alone as I have my son. He’s also my carer as I have several physical disabilities and disorders.
    I do have a lot of online friends from the art groups I’m in. Just would like to meet up with them. I would like a friend in the real world suppose.
    This year I’ve had and I’m still having several health scares. First my right forearm has rather large lumps .. going the full length of my forearm on one of the lumps. I also have oral problems and have had to have biopsies and scans done. I’m now being checked for ovarian cancer. To top it off nicely, my right shoulder has become so painful I can’t function. I’m being investigated to see what the problem is. Because my right shoulder is in such a state I’m unable to draw for any period of time. It’s just too painful.
    I feel like I’m being robbed of everything that gives me joy. I feel so miserable! #colouredpencilartist #wildlifeartist #Disabled #Bipolar #sexualabusesurviver #depressed #Mania #Psychosis #MentalHealth #GiantCellArteritis #AutoimmuneDisease #Osteoporosis #spondylitis #Fibromyalgia #PTSD #Flashbacks #AterialvenousMalformation
    #MentalHealth #physicalhealth

    9 people are talking about this
    Community Voices

    What’s a warning sign you’re about to experience an endo flare?

    <p>What’s a warning sign you’re about to experience an endo flare?</p>
    3 people are talking about this
    Community Voices

    How has cancer impacted you or your family’s health story?

    <p>How has <a href="https://themighty.com/topic/cancer/?label=cancer" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce6a00553f33fe98f050" data-name="cancer" title="cancer" target="_blank">cancer</a> impacted you or your family’s health story?</p>
    Danis Mom

    Dual Diagnosis: Daughter Struggles With Mental Illness and Addiction

    “Dual diagnosis” is a term I learned the hard way. Here is the story about my daughter Dani’s own struggle with “dual diagnosis.“ It is also a story of addiction, hope, strength, recovery, and resilience. Many people who live with depression often have ties to addiction and vice versa. They look for any way possible to numb the pain of the bad memories, sadness, depression, anxiety, post-traumatic stress, and other mental health challenges that altered their lives. Whether their drug of choice is alcohol, prescription pain medication, or street drugs, addiction and mental illness often are interlinked and, when treated, are termed as a “dual diagnosis.” Dani, my oldest daughter, was no exception to this in her late teens and early 20s. It’s hard to be transparent about this, but it is her story — and we vowed to share her entire story if it would help save people’s lives. Before I begin, let me share some background. In the early morning hours after Dani’s passing by suicide on February 11, 2019, I was asked what we were going to tell people. Understandably, the immediate family wanted to protect us as Dani’s parents and siblings, and protect Dani’s reputation and memory. It was exactly at that moment I said we would tell the truth. “Dani took her life today as a result of years and years of battling depression, PTSD, anxiety, eating disorders, and general self-worth issues.” How could such a beautiful, successful woman such as Dani live with so many mental health symptoms and so few knew? Dani wore her mask very well for many years and rarely removed it. In those last minutes of her life, I believe she was just too tired to fight anymore. In that moment for her, a perfect storm came together and Dani was a casualty of her condition and we would suffer the pain and heartbreak of that loss forever. In 2007, as her grandmother was fighting for her life from ovarian cancer in Ohio, Dani was fighting for hers in Florida. Over Thanksgiving weekend, Dani attempted to end her life. Fortunately, she was not alone. This began another nightmare for us as our family joined forces in hopes that Dani would survive not only that weekend, but beyond. We had thought after counseling, antidepressant medication, and a happy and successful career as a paralegal in Florida, suicide attempts were behind her. We were wrong. This is a condition that frankly lies to the person struggling, and Dani was no exception. Dani had called me on Thanksgiving Day, the day before her attempt, wished me a Happy Thanksgiving, told me what a happy life she had, and what a wonderful Mommy I was. “You know that, right?” She had some wine with dinner so I attributed the call to that. Two days later, as my husband and I arrived from a silent, endless flight from California to Florida (we had been on our own getaway), we walked into an ICU hospital room with an unconscious daughter on the brink of death. We received the news of the drugs and medication that had been in her system from her attempt. What we learned from notes she had left and as she recovered was that Dani would use this to numb her pain and keep her weight under control. She told me her body image at that time was so low that she was willing to try anything. For me, as her mother, why didn’t I realize her cry for hep about her weight months before would lead to this? That weekend began a relentless journey and nightmare as we looked for adult rehabilitation facilities for her depression and addiction. “Dual diagnosis” is what we were told, a term I learned about the hard way. “Nightmare” is the word I used for several reasons. There would be all the work Dani had to do to heal herself, work to take steps to mend the fractured relationships that came out of that event, and, once again, the horrible nightmare of having to move through the behavioral health maze that surrounded health insurance, treatment facilities, and pre-certification, and realizing there was no help or guidance from any professionals for her or us. The struggle and fight that ensued within Dani was nothing short of miraculous. She came home in 2008 for her grandmother’s funeral and told me that I needed to “hide all her leftover narcotic pain meds” so she could avoid temptation and continue to fight her battle. Hearing that terrified me but I also could not imagine what her own fear must have been at that point, attending her beloved grandma’s funeral, an absolute “trigger” for anyone with depression, let alone just recently moving out of the halfway house where she had been staying. Yet, Dani was able to endure that time without the use of alcohol or drugs or anything but her own willpower and a sponsor to make it through. We were so proud of her resilience. After a journey of both inpatient and outpatient care, Dani was able to beat the addiction, recover, and began her new journey of hating the drugs but loving the users. She became a case manager and then an administrator at a large drug and alcohol rehabilitation facility in Florida and had also worked as intake clinician at a famous eating disorder clinic in California. This was part of the new journey for Dani — helping those struggling with depression, addiction, eating disorders, anxiety, self-worth issues, and suicidal thoughts. Dani’s incredible strength and determination in that particular battle was the basis for her vow to never use illegal drugs again. She couldn’t fight it alone at that time. She had our prayers, love, and support always, but she also worked hard at it as she attended meetings and surrounded herself with only those who could help with her recovery. Her mantra for those few years, whenever we talked was, “Coffee and a meeting, Mom, that’s my life!” If you struggle with depression or addiction, there is hope. There is life after addiction and there can be recovery. Don’t travel the road alone. It is said it takes a village to raise a child, but it truly takes a community of love, belief, and support to beat addiction. 33 Forever, Inc., the non profit we started in the immediate aftermath of losing Dani, is here to help however we can, with resources, educational tools, and professionals to guide and direct you as you take baby steps to your recovery on this difficult but worthwhile journey. This story originally appeared on 33 Forever.

    Community Voices


    Mental illness no matter the diagnosis has been one of the toughest roads I have ever traveled. But I hung around!! Now the Lord may have given me a new one. There is a chance I could have a tumor against my bladder, that could be ovarian cancer. I admit being Bipolar I'd like to freak out, but I am older now and don't have to automatically assume the worst anymore. It is hard though because now I have to wait for a CT scan to be done, and it's diagnosis. Just for today I am grateful I have the means to get this checked and know how to accept and love myself when I'm scared or impatient.

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