Ovarian Cancer

Join the Conversation on
Ovarian Cancer
1.1K people
0 stories
181 posts
  • About Ovarian Cancer
  • Explore Our Newsletters
  • What's New in Ovarian Cancer
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post
    See full photo

    What endometriosis symptom is the most difficult or challenging to manage?

    Endometriosis symptoms can vary from person to person, but we know some symptoms can be more challenging than others to treat and stay on top of.

    Whether it’s fatigue, nausea, pelvic pain, dysmenorrhea (severe and frequent menstrual cramps and pain during your period), or dyspareunia (genital pain associated with sexual intercourse), what symptom do you find to be the most challenging or difficult to manage? Share with the group in the comments below. ⬇️

    #OvarianCancer #RheumatoidArthritis #Cancer #Endometriosis #ChronicPain #ChronicIllness #IrritableBowelSyndromeIBS #Diabetes

    Post

    Dear Adenomyosis, You Haven’t Won

    An open letter to my Adenomyosis,

    You’ve stalked me for years. I felt you since the moment I started puberty. In the shadows you were there watching, slowly taking over my uterus.

    I remember when you’d cause me to bleed through all my favorite clothes and ruin my sheets.

    I remember when you took my high school Sophomore dance from me.

    I remember the first gynecologist to dismiss me and say period pain is “normal” and to just take birth control and that was the same response I got from many more uneducated gynecologists.

    I remember during that year in high school I was convinced I had ovarian cancer because Doctor Google was all I had due to no doctor being able to provide me actual answers as to why I was in so much pain.

    I remember all the invasive pelvic exams you’ve put me through that had me once scream so loud my family heard me from the ER waiting room.

    I remember all the financial sacrifices I’ve made for you to keep you content despite at the same time you kept me from earning a livable income. All while you take over more and more of my uterus because you’ll never be satisfied.

    I remember the relief and the tears that fell when a doctor finally validated my experience and assured me they’d do everything in their power to help me get out of the debilitating pain you’d put me through on a daily basis because once a month wasn’t enough for you anymore.

    You made me believe I was unlovable because I couldn’t provide intimacy which led to many unhealthy relationships where I allowed disrespect from the belief I deserved it. You were wrong because I found a man that loves me despite all the chaos you cause. It taught me there’s more to intimacy than intercourse and my value doesn’t depend on my ability to have sex.

    You believe you’ve won from all the days I’ve had to spend alone in bed curled up, but in reality you opened me up to a community of amazing people that are warriors.

    The reality has finally sunk in that you haven’t responded to any of the various treatments I’ve thrown your way and that the only way to fight you is by removing you and the uterus you inhabit.

    Some days you feel like an all knowing overlord that has me strung up like a puppet moving me in whatever direction you want. Well I’m sorry to inform you those days are over. I’m taking my power back. I may be loosing an organ society puts a lot of emphasis on, but it’s shown me my worth and femininity isn’t tied to my uterus. I’m more than my ability to physically carry children.

    I will be regaining my quality of life back and you won’t be able to hurt me anymore. I hope you’ve had your fun themighty.com/topic/Adenomyosis because I sure haven’t had any since you reared your ugly head.
    Sincerely, The 1 out of 10 women you continually inflict terror upon

    Post
    See full photo

    What do you find to be the most challenging about a cancer diagnosis?

    Getting a cancer diagnosis is many things — heartbreak, anger, pockets of simplicity, grief, even gratitude. But there are parts of it that straight up suck.

    What’s been the #1 challenge for you or a loved one?

    #Cancer #BoneCancers #BreastCancer #OvarianCancer #LungCancer #ThyroidCancer #lymphoma #ChildhoodCancers #MentalHealth #ChronicIllness #ChronicPain #Caregiving #Grief

    Post
    See full photo

    What advice would you give someone recently diagnosed with cancer?

    Being diagnosed with cancer can certainly be scary, confusing, and frustrating — just to name a few of the whirlwind of emotions that may come up.

    If you could give any advice or words of wisdom to someone newly diagnosed with cancer, what would you share?

    🎧 🎙️ If you're up to it and would like to listen, feel free to check out this Mighty Podcast episode on what it's like living with a rare cancer:
    Living With A Rare Cancer

    #Cancer #BoneCancers #BreastCancer #OvarianCancer #LungCancer #ThyroidCancer #lymphoma #ChildhoodCancers #MentalHealth #ChronicIllness #ChronicPain #Caregiving #Grief

    Post

    Even in Death, My Mom Continues to Show Me How to Live

    I have a ritual I do in November, no fail. Since I am mathematically challenged (and directionally challenged, but more on that later), I close out of social media sites, emails, and texts to focus on my calculator. I know when I solve this particular problem, I will stare at my screen in disbelief for a while.

    I hurriedly type the equation—in this case, it’s 365 x 8–eager to know the answer, but then I stop myself, almost like I would before impulsively devouring another slice of pizza. Do I really need to do this? Why am I doing this? Anxiously, I resist the urge to round up and calculate quickly. Instead, I contemplate, with the proverbial Jeopardy music regurgitating in my head, but, inevitably, I bite. I need to know the final answer.

    It’s 2,920, by the way…as in days I have lived without my mom.

    During those days I have managed to go on without her impeccable and irreplicable brand of glorious love and unfiltered understanding, I have fallen, hard. I have failed, beyond miserably. I have made countless mistakes, relentlessly suffering from her cruel departure, from the silence I hear when I desperately need her guidance.

    Of course, I expected this…the uncertainty of my footing after the seismic shift in my life, as she was always the one to steady me, to give me courage to take the next step, to convince me that I would eventually hit my stride. But I could never anticipate this feeling of going through the emotional inventory of the past 8 years, realizing what I have endured without her physical presence.

    I have moved three times, once driving myself 1,357 miles, boy and dog in tow, to a place I didn’t know a soul.

    I have loved my kids through the gut-wrenching death of their beloved dad.

    I have experienced the true heartbreak of another failed relationship.

    I have fulfilled my mother’s dream of becoming a children’s book author with the publication of two multi-award-winning books, Goodnight Star, Whoever You Are and When You Lived in My Belly.

    I have experienced the absolute high of shifting perspectives and transforming lives by writing about grief, heartbreak, and parenting for various publications–including Scary Mommy!– in my authentic voice.

    I have supported my family by working tirelessly, showing them that there are payoffs for being a dreamer.

    I have laced my son up for every hockey game; attended my bonus daughter’s virtual graduation for her Master’s degree; adopted the most loving and loyal dog who was once a single teen mom living in a dumpster in Memphis; taken spontaneous road trips; logged thousands of miles on a book tour; and dabbled in the art of self-mockery to make my kids laugh when they needed it (and sometimes when they didn’t).

    I have cried in the shower and still managed to get dressed, never forgetting the power of a good lipstick.

    I have made holiday meals using my mom’s cherished recipes, remembering the techniques I absorbed working alongside her for decades in the kitchen.

    I have been there for my friends, delivering random cards or gifts as pick-me-ups, listening to them until they felt heard, always showing up when plans were made.

    I have survived the turmoil of an ongoing pandemic, doing everything in my power to keep my loved ones safe (and schooled).

    I have smiled—without a filter—during times of internal conflict with her “don’t worry about something until there’s something to worry about” mantra ringing in my head.

    I have belted out ‘80s classics at stoplights, completely off key, with wild abandon.

    I have waited alone for the mammography, transvaginal ultrasound, and uterine and endometrial biopsy results, mostly required due to her #OvarianCancer diagnosis at age 52, steeling myself for the worst, but always hoping for the best.

    Just like she taught me.

    For the first time since I started my bizarre mathematical ritual, I realize I am simply not as alone as I always thought I was watching most of my friends enjoy life with their moms all these years.

    Bruised and bloodied, there’s no doubt I have my footing. I am still standing. And it’s only because my mom continues to show me how.

    Post
    See full photo

    Check out our new Mighty group: Cancer Corner!

    🥁 Introducing… Cancer Corner! 🥁

    Cancer of any type brings with it a transformative experience for everyone it touches. Whether you have just been diagnosed, are going through treatment, or are in remission — our new Mighty group for you.

    We warmly welcome caregivers and those who are currently supporting or have lost a loved one to cancer too.

    This is a safe space to talk honestly about what you’re going through — the good, the bad, and the just plain ugly. Cancer sucks, but you don’t have to face it alone.

    🔑 Here’s the link to join: Cancer Corner

    #BoneCancers #BreastCancer #Cancer #MentalHealth #ChronicIllness #ChronicPain #OvarianCancer #Caregiving #LungCancer #Grief

    Post
    See full photo

    How do you manage endometriosis fatigue?

    Severe fatigue affects many people living with endometriosis. Fatigue can oftentimes severely disrupt your daily life, including your relationships as well as work and school performance.

    How do you manage it? Maybe you take frequent breaks or perhaps you’ve found ways to reduce stress or other triggers that may worsen your symptoms. Whatever you do, share in the comments below. ⬇️

    #OvarianCancer #RheumatoidArthritis #Cancer #Endometriosis #ChronicPain #ChronicIllness #IrritableBowelSyndrome #Diabetes

    Post

    Finding out I have the CDH1 Gene Mutation

    In December, I finally gotten a GYN to listen to my desire for a hysterectomy. But before I can move forward to that, I was recommended to get genetic testing done. I have never been offered that before in all the years I've mentioned my quite extensive family history of cancers.

    It took a while, but in July I got my results. I had the rare CDH1 Gene Mutation. This mutation increases my risk of Hereditary Diffuse Gastric Cancer to 85% by the age of 80 and my Lobular Breast Cancer risk to 30-35%. There is a slight risk increase of Ovarian Cancer as well. That was a lot to take in, but I wasn't surprised. I am already chronically ill managing multiple conditions and that was a huge life change as is. However, this would be a whole new lifestyle change ahead on top of my already busy job of dealing with my already poor health.

    These last couple months has been gathering information on surveillance and preventative surgeries. It's been decided that I will get a Total Gastrectomy (complete removal of the stomach) relatively soon, HOPEFULLY get my hysterectomy after I recover from that, and then do surveillance on the breast care side of things. Not only that, but I had to tell my (toxic) father whom I live with all this news since I completely rely on him for support.

    Here's to hoping that this new journey improves my quality of life in both the short and long term. And here's to trying to document my journey of managing new health challenges on top of already being chronically ill.#chd1 #HereditaryDiffuseGastricCancer #GeneticTesting

    Post
    See full photo

    What is the toughest conversation you’ve ever had about infertility?

    Talking about infertility can be really challenging — the grief, the anger, the shock, the emotional lows — especially when faced with stigma or lack of awareness from others.

    If you can relate, how did you navigate that tough conversation?

    Feel free to share your story and experiences in the comments below 💌

    #Infertility #Endometriosis #OvarianCancer #Grief #PCOS #ChronicIllness #ChronicPain #RareDisease #CheckInWithMe #MentalHealth #Anxiety #Depression #selfcare #Trauma

    Post
    See full photo

    What’s a common misconception about endometriosis you wish was better understood?

    Although we have learned more about endometriosis in recent years, many misconceptions and myths about the condition still remain ("it’s just a bad period!"). What myth or misconception do you wish would be debunked? Share in the comments below. ⬇️

    #Endometriosis #OvarianCancer #RheumatoidArthritis #Cancer #ChronicPain #ChronicIllness #IrritableBowelSyndrome #Diabetes