What Am I Supposed To Do?
The last two months have been the hardest of my life.
My mother has fought stage 4 metastatic colon cancer for the last five years. She has two nephrostomy bags, a colostomy bag, and a JP Drain (for an abscess in her abdomen that leaks horrible smelling infection from her stomach) hanging out of her body. She can’t walk due to DVT blood clots in both legs that are dangerously close to reaching her Vena Cava, with one blood clot being the size of an apple. She was in the hospital for four weeks, then hospice ipu for two. Hospice made me put her in a nursing home, because she isn’t dying fast enough. She was only there for two days and then right back to the hospital. Spent two more days in the hospital and is now back in hospice where I’ve been told that we HAVE to have two new facilities picked out by Monday.
Cancer is taking over her body. There are more cancer cells than blood cells at this point. She is dying. We placed her with hospice at the recommendation of five different doctors. Yet hospice is saying they can’t keep her because the ipu is intended for short term stays, yet on the website says up to six months. My aunt just passed in February from breast cancer and she was with hospice for over a month before she passed.
I just don’t understand how they can do this to people. My mom needs 24/7 medical care. She needs medication administered that I nor my family know how to give her and don’t even have access/qualifications to administer. What in the hell are we supposed to do?
I am so distraught and extremely angry and disappointed in our healthcare system here in the states. I adore my mother. Life hasn’t been too kind to her and now she can’t even die in a beautiful place because it’s all just about having money. Well, we don’t come from much. But the true measure and worth of a person’s life isn’t about the money in their wallet or the balance in their bank accounts. It’s about the love they give and the people that surrounds them.
Just trying to vent. These social workers don’t give a damn and have been just awful at communicating. We just need some peace.