Bursitis

I've got a follow-up appointment with my endocrinologist today at 2pm. I've been having high BG for a few weeks. maybe 2 weeks now.
I gotta shower and find clean clothes and get ready cuz transportation is coming shortly after 1pm so I've got 5 hours to get ready.
I'm not happy about this appointment cuz my pain makes me want to take some tincture. I just kinda wiggled my back like a snake and it popped a bunch but the pain stayed the same. I hurt all over.
Next week I have an appointment with my cardiologist who I really don't like. I haven't checked my BP since I last saw her at least 3 months ago. The battery is dead.
When I had my appointment with my BHH nurse for my injection she was concerned about my BP being high. It's normal for me. I've had high BP for most of my adult life. But it's high enough to need serious meds.
Tomorrow is my appointment with my pain specialist. Shes my favorite doctor. Shes so nice and accepting and very considerate of different identities. She hugged me when I couldn't do the cortisone injections the first time I went. She was desperate to help me and she decided we could at least do a torodal shot in my butt. It didn't help but I was grateful she tried to help me.
I'm gonna shower in a half hour and figure out what I'm gonna wear. I'm getting picked up just after 1 pm. Pauley is coming with me.
#BackPain #FemoralAcetabularImpingement #Bursitis #Osteoarthritis #RheumatoidArthritis #boneonbone #SchizoaffectiveDisorder #BorderlinePersonalityDisorder #ComplexPosttraumaticStressDisorder

Just wanted to share that in spite of my "crappie hEDS" body, I feel really good! What made me feel so good? A new razor and my "homemade shower "chair ". Until tonight i hadn't realized how long it had been since i actually enjoyed taking my shower. I've had a lot of mental stuff and been busy helping my daughter door dash that I would put off taking a shower until my head wouldn't stop itching or I felt Eww! Just haven't had the energy. Money has been tight so I hadn't bought me a new razor in some time. Clumsy me dropped it last week and the hooks were the razor head snaps on broke. Sad to say, my legs were getting hairy. With my new razor, favorite body lotion and; "my shower chair", a 5 gallon bucket cushioned with cut to size pool noodle stuck on the bottom of the bucket, I took a leisure shower. Shaved with my new razor and applied my body lotion before drying off. It really moisturizes that way. Put my night gown on and laid on my bed playing on my phone. As I laid there my body didn't register any pain, and I was telling myself how relaxed and ... in awe I felt.
I do apologize this was so long, I don't socialize outside my home except for one friend. Thank you for reading this all!! ☺️

#MentalHealth #EhlersDanlosSyndrome #Abuse #Arthritis #BackPain #ChronicPain #Bursitis #PTSD #Selfcare #Addiction

I had a video call with my pain specialist. We squeeeeeed about my hips not hurting for a week. She was so happy. She knows how miserable I've been.
Then I said now that my hips are fine, I am fully aware of how awful my back hurts. I'm supposed to have a MRI of my lumbar and then we're gonna schedule injections. She's also gonna try to help me with the musculoskeletal pain in my haunches.
I've gotta be the luckiest boy around to have such amazing doctors. My pain specialist was trying to distract me during the cortisone injections and I outed myself as a practitioner of BDSM and I am a leather puppy. She replied "so are you a Dom or a sub? Ooh or a switch." I told her I'm neither. I'm a sadomasochist service puppy who helps people express their emotions in gentle outlets with no fear of being vulnerable. She was so excited to hear. It helped me focus on something other than pain.
She's kink friendly and trans accepting. I gotta let my PCP know about my new doctor's.
#Arthritis #FemoralAcetabularImpingement #Bursitis #BackPain

So far today I've taken 2 tramadol, 1.5 Norco, and had my darling stupidhead put some CBD cream on my back. The pain hasn't budged. Now I have my heating pad on my back.

I've got bilateral femoral acetabular impingement, bursitis, and osteoarthritis and 3 years ago I had surgery on my lumbar but I still have major pain. I've also got painful bone spurs in both hips and both hips are bone on bone.

This Friday I'm having cortisone injections in both hips. That should help with most of the pain and it'll last for a few months. I'm gonna talk to my doctor on Friday about how intense my back pain has gotten. We were trying to focus on my hips but she said we can cover my back also.

When I was supposed to have the hip injections 2 weeks ago and we couldn't do it because my BG was too high my doctor gave me a big hug and said she felt awful she couldn't do it but she said "I can try giving you a toradol shot in your right butt. It might help." Of course I was willing to try anything. Unfortunately it didn't help. But I was thankful my doctor tried.

Eventually I'm gonna need hip surgery. But we're gonna try everything first. But the pain is really bad because my hips are bone on bone. Which is new since September 2022. It's basically everything I have wrong with my hips and lumbar have accelerated in the last 3 years. I'm really worried..

Luckily I have a really nice pain specialist who really listens and cares. I'm gonna fast for the appointment on Friday so my BG is low enough for the injections. If everything goes right I'll have relief for about 3 months. Fingers crossed.

The intense lumbar pain went away after 5 hours of not being able to sit, lay down, or stand up without crying. So I came out to the couch to sit with Pauley. We did our therapy session and it went well. Then I decided gee I'm feeling good why don't I go make lunch and coffee.
So I was standing in the kitchen doing a food and suddenly I couldn't stand. I leaned on the counter for a few minutes to try to take pressure off my spine but it was like putting a bandaid on a gunshot wound.
The coffee was done brewing by the time my food was made but I just couldn't stand anymore. So I took my food to the couch and tried to relax. But the pain is mostly at 7. When I breathe I've got sharp pain in my left side of my abdomen. I'm guessing it's UTI related. My right hip is particularly painful.
I'm gonna message my doctor about the UTI. She'll send an order for bactrim. I might get it by Thursday if I'm lucky.
I caught myself staring at Pauley thinking to myself gosh I'm lucky that she loves me.
At some point this week we're gonna go to a coffee shop for drinks and I'll get myself a bagel sandwich. I just really need to get out and do some people watching.
Pauley is gonna go fix my coffee. I'm just hurting so much. I started crying and she asked how bad the pain was and I said 7. So she gave me another Norco. She's also gonna put some CBD cream on my back. She takes such good care of me.
I've got 3 appointments next week. But this Friday I am getting the cortisone injections in my hips. I'm gonna fast for the appointment. Hopefully my BG will be low enough to get the injections.
I just had a very sharp stabby pain in my left hip straight down my leg. Fun times.
#BackPain #FemoralAcetabularImpingement #Bursitis #Osteoarthritis #gottacatchemall

Yesterday my new pain management doctor wanted to see my range of motion in my hips. She had me lay down and she bent my right leg. OMG the pain spiked to 9. She apologized for hurting me but I said she needs to see how bad it gets.
This morning I woke up in serious pain. My lumbar feels like I got kicked. My right hip really hurts. But the X-rays showed us why my right side hurts so much. The ball socket is bone on bone. It's new since September of 2022.
Thankfully I have Pauley. She gave me a Norco and she put some CBD cream on my back. Right now pain is at 6.
My fasting BG was about 152. I need to eat something but I don't want to get off my bed. I'm craving a grilled cheese sandwich with some sweet potato red pepper soup.
#BackPain #FemoralAcetabularImpingement #Bursitis #Osteoarthritis

We just got done with today's appointment with the pain management clinic. I'm getting cortisone injections on July 11th. The doctor was very nice and helpful. Everyone here has been very accepting and called me Nox.
My doctor wanted to check my range of motion. I laid on my back and she bent my right knee up and OMG the pain was immediate, spiked to 9. Then she extended my leg up straight and I started crying cuz the pain was just so intense. She apologized but I said it's fine cuz she needs to see how bad it is. I was smart and only took one tramadol before we left.
We did x-rays of my hips and lumbar. We found out my right hip socket has narrowed so much that now it's bone on bone. I'm gonna have an MRI of my lumbar and hips next month.
It stormed really bad after my appointment so we stayed in the waiting room. Pauley had to do some remote work cuz her client lost power from the storm. She actually went in to the office instead of coming home with me. She got home by about 920pm.
#FemoralAcetabularImpingement #Bursitis #Osteoarthritis #RheumatoidArthritis