ClusterHeadache

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    What was the defining moment or incident that made you seek treatment for migraine?

    Living with a health condition can be frustrating and unpredictable even on the "good" days. When the "bad" days become more frequent or even unbearable and you struggle to get out of bed, are forced to cancel plans, or miss work you might decide that you need a little extra support through treatment.

    What made you seek treatment, either for the first time or after a length of time without treatment? Share your defining migraine moment in the comments below.

    #Migraine #Fibromyalgia #ChronicPain #ChronicDailyHeadache #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    7 comments
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    What has your experience with treatment for migraine been like?

    Migraine treatment types and experiences can vary from person to person. You may have tried (or are currently on) acute treatments like triptans, nerve blocks, or acetaminophen. Or perhaps you are currently trying (or have tried) a type of preventive treatment like CGRPs or physical therapy (like prescribed neck/shoulder exercises).

    What treatment experiences did you have that did not meet your expectations? In what ways, if any, have you been pleasantly surprised? Share in the comments below. ⬇️

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis

    17 comments
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    How do you relieve stress while also managing your migraine symptoms?

    Balancing self-care and daily responsibilities while managing the symptoms of migraine can be challenging, especially when you’re experiencing stress.

    How do you relieve stress as it relates to your condition? Let’s share and help one another in the comments below.

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    1 comment
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    What information or input is important to you when starting a new migraine medication?

    Starting a new medication is a big deal, so where do you start? Whose opinion or experience do you value most?

    Maybe you receive information from your doctor about your treatment options and usually defer to your doctor’s recommendation. Perhaps you prefer to talk to your loved ones about your options, or maybe you research the experiences of other patients who have already tried the medication you are considering.

    Whose input is most valuable to you? What information matters most? Share with us in the comments below.

    #CheckInWithMe #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    1 comment
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    What have you been watching, reading, or listening to lately to distract you from your pain?

    Have you been watching any interesting shows or movies, reading any great books/articles or listening to any uplifting songs/podcasts that's helped distract you from your pain lately?

    Would love to know what everyone's been up to!

    Feel free to share what's been helpful for you in the comments below 👇

    #DistractMe #CheckInWithMe #MightyMusic #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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    How has migraine affected your personal relationships?

    Some of our Mighty members have shared that migraine has had a negative impact on their personal relationships, especially their bonds with family, friends, and romantic partners.

    Migraine symptoms can lead to canceling plans or avoidance of making future plans/setting larger goals, which can lead to misunderstandings and frustrations. On the positive side, migraine can also build empathy and provide a space for deeper, more “real” conversation.

    No matter if it’s been negative or positive (or both!), how has migraine affected your personal relationships?

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    4 comments
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    Which of the following is most likely to trigger a migraine?

    Choose your most common trigger from the list below or add your own in the comments:

    💡 Bright, fluorescent light
    👃 Strong smells or odors (including food smells, perfume)
    🍕 Food
    📣 Loud noises
    ⛈️ Weather (e.g., humidity, precipitation)

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    28 comments
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    How much of your day do you spend thinking about your health?

    A. It never stops
    B. Most of the time
    C. Only during bad attacks or high-symptom days
    D. I’m at a point where it doesn’t occupy too much of my headspace
    E. Migraine, what?

    Let me know in the comments below ⬇️

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    18 comments
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    How do you know it’s time to stop or switch your migraine medication?

    Deciding to start, stop, or switch a new medication is a big decision. We know many factors can influence a decision and some of these can be out of your control.

    Maybe you haven’t found any symptom relief, or the side effects from your current medication are impossible to manage. Perhaps your doctor is not seeing the results they expected, or your insurance decided not to cover the medication you were hoping to try.

    What’s been your experience?

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    2 comments
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    What kind of eye masks have you tried?

    You know you live with migraine when one of your favorite holiday gifts is a new eye mask. My parents got me a weighted one (called the “eye pillow”) from the compression brand IMAK. It’s full of ergoBeads to create a very subtle massage feel. The box says it can provide relief from migraine, eye strain, post-surgical pain, puffy eyes, and sinus pain. (Bonus: You can pop it in the freezer for a chilling effect as well!)

    Since I spend a lot of my time on screens talking to you lovely humans, I am really looking forward to winding down my day with this tool.

    Do you use an eye mask regularly? Do you sleep in one? Does it help with your migraine symptoms, especially if you struggle with photophobia? Drop your favorite (or least favorite) brands in the comments below. #ChronicVestibularMigraine #chronicmigraine #ChronicPain #ChronicIllness #Fibromyalgia #Lupus #Disability #Endometriosis #Migraine #ClusterHeadache #SinusPain #AcuteStressDisorder

    8 comments