ClusterHeadache

Migraine symptoms can affect every aspect of daily life. Finding the right treatment, support team, health care providers, and lifestyle adjustments is important for achieving relief and overall well-being.

In your experience with migraine, what questions have you asked your doctor or neurologist that helped shape your treatment plan? What conversations made a difference in your understanding of chronic pain and other symptoms?

📚 Looking for ideas on helpful questions to ask your doctor? This week’s story is for you!
13 Questions You Should Ask Your Doctor If You Have Migraine

Want to dive deeper? Check out this post:
16 questions to ask your neurologist

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

If you deal with migraines, you know how unpredictable they can be. Sometimes, though, there are certain triggers that seem to set them off. 🤔

Have you identified any specific triggers for your migraines? Whether it’s certain foods, stress, weather changes, or something else—let’s share what we’ve learned. 🧠✨

Your insights could help others manage their migraines better, too. Drop your thoughts below! 💬

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

Certain foods and beverages may trigger migraine attacks. Some of the most commonly reported ones include:

🍇 Alcohol
☕️ Caffeine
🧀 Dairy products, specifically cheese and yogurt
🥓 Processed meats such as bacon, sausage, ham
🍭 Artificial sweeteners
🍫 Chocolate

What trigger yours? Share your experiences in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

In honor of Migraine & Headache Awareness Month, five Mighty staffers who live with migraine — Kat, Skye, Alexandria, Anjana, and Jess — trade their top tips for managing the disease (TL;DR: don’t be a jerk to yourself!) as well as how they get their self-care on post-flare. Will there be a discussion about fries? We’re only human.

🧠 This episode is made possible by Mighty With Migraine. Subscribe to the newsletter here bit.ly/migraineinbox for more conversations like this one.

🎧 listen here: bit.ly/tabletalk_06-14-23 🎧

#Migraine #DistractMe #ChronicPain #ChronicIllness #CheckInWithMe #RareDisease #Disability #Endometriosis #Fibromyalgia #EhlersDanlosSyndrome #ClusterHeadache

My language has gotten really… colorful… over the years whenever I try to explain my attacks to others. I found that words like “pain” or “sick” or “feel like I’m going to throw up” just haven’t been enough to really demonstrate the agony I’m feeling.

I wrote a children’s book called “Migraine and Mia” that was inspired by this idea — how to take imaginative, metaphorical language and use it to describe the condition in a way that is tangible and visceral (even for kids!). One of my favorite descriptions from the book talks about migraine turning your brain into scrambled eggs, making it hard to speak or laugh at funny jokes.

How do you describe your migraine attacks to others? Would love to hear what works for you!

#Migraine #ChronicPain #ChronicIllness #Disability #RareDisease #ClusterHeadache #Fibromyalgia #Lupus #Endometriosis #EhlersDanlosSyndrome #EDS

In my recent poll about whether or not we all feel comfortable explaining migraine to others, I was really struck by one community member’s comment about how we never stop learning (especially because the science is always changing!). I couldn’t agree more.

I’m curious — where do you go to learn more about the disease? Are there certain advocates or medical journals you keep up with? Do you read the studies and fact sheets published by nonprofits like the American Migraine Foundation, National Headache Foundation, or International Headache Society? Or do you lean on first-person narratives like we publish on The Mighty or migraine.com?

Drop those resources below. ⤵️

#Migraine #ChronicPain #ChronicIllness #Disability #RareDisease #ClusterHeadache #Fibromyalgia #Lupus #Endometriosis #EhlersDanlosSyndrome

We have something REALLY exciting cooking up for our Mighty migraine community and we want your help to make it the best it can be. We’ll be posting prompts and polls over the next few weeks in order to learn the most we can about your experiences so we can bring them to life this summer.

First up, let’s chat about everything you’ve ever wanted to know about migraine. There is no wrong answer! Perhaps you’re curious about what treatments exist out there, what symptoms other people experience, or reasonable accommodations in the workplace. Or maybe you’d love to know about a certain type of migraine (there are many!) or how best to cope with a migraine “hangover.”

Pop your curiosities below.

🧠 3…2…1… go! 🧠

#Migraine #mightywithmigraine #ChronicPain #DistractMe #ChronicIllness #Fibromyalgia #Endometriosis #EhlersDanlosSyndrome #Lupus #ClusterHeadache

Switching from one medication to another, or adding a new medication to your treatment plan, may be necessary throughout your treatment journey for migraine.

If you are experiencing ongoing symptoms, intolerable or unpleasant side effects, or even new-to-you symptoms, it may be time to discuss changing your treatment plan with your doctor or care team.

If you have modified your treatment plan, when did you know it was time to try a new medication? Share your experiences and advice for others in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicDailyHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

Sometimes you just want your neurologist or headache specialist to ask how you’re REALLY doing, or you want them to check in on something you mentioned during your last appointment.

Are there any questions or topics you wish your doctor would proactively discuss with you? A conversation you wish they’d start because you’re too nervous or afraid to raise it?

If you feel comfortable sharing, add your questions in the comments section below or read through others.

#Migraine #Fibromyalgia #ChronicDailyHeadache #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

Living with a health condition can be frustrating and unpredictable even on the "good" days. When the "bad" days become more frequent or even unbearable and you struggle to get out of bed, are forced to cancel plans, or miss work you might decide that you need a little extra support through treatment.

What made you seek treatment, either for the first time or after a length of time without treatment? Share your defining migraine moment in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ChronicDailyHeadache #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine