mightywithmigraine

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    What’s your migraine goal for next year?

    New Year’s resolutions… blah, blah, blah. I’m not giving into that hype this year. But what I ✨ am ✨ choosing to lean into is setting a goal for my migraine journey next year (and I asked a few of my coworkers who live with migraine the same exact question). Here are our answers:

    💊 “My goal is to be more gentle on myself! My attacks come when I’m stressed out. I try to avoid taking sumatriptan for it but also I need to be OK with allowing myself to take medications for it.”

    📆 “To better track my symptoms and triggers so I can make more migraine-friendly choices in my daily life.”

    ✏️ “Sending an angry letter to the non-neurologist who denied my neurologist’s second appeal for a CGRP inhibitor and continuing to be open-minded about my treatment options. I’d also like to be more honest with my providers about the pain and new triggers I’ve been experiencing.”

    ☎️ “I want to be more direct and firm about having my neurologist communicate with my other specialists. It’s been so exhausting trying to connect the dots on my own. I haven’t made as much progress as I would’ve liked in 2022.”

    What about you?

    #mightywithmigraine #Migraine #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #Spoonie #MentalHealth #Fibromyalgia

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    What’s your easiest migraine trigger to avoid?

    Most of us who live with migraine have specific triggers that almost always spur an attack on or make an existing episode worse. I sometimes call those stimuli “insta-migraine.”

    While some triggers are super hard to avoid (like fluorescent lighting), others are easier. So today I’m curious about the simple ones. Mine is red wine. I know the minute I take a sip — or honestly, even smell it — I am going to flare and that makes it so easy for me to avoid. Plenty of other alcoholic beverages to enjoy pain-free!

    What about you?

    #mightywithmigraine #ChronicPain #ChronicIllness #Migraine #Fibromyalgia #Endometriosis #RareDisease #Disability

    38 reactions 22 comments
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    What was the defining moment or incident that made you seek treatment for migraine?

    Living with a health condition can be frustrating and unpredictable even on the "good" days. When the "bad" days become more frequent or even unbearable and you struggle to get out of bed, are forced to cancel plans, or miss work you might decide that you need a little extra support through treatment.

    What made you seek treatment, either for the first time or after a length of time without treatment? Share your defining migraine moment in the comments below.

    #Migraine #Fibromyalgia #ChronicPain #ChronicDailyHeadache #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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    How do you relieve stress while also managing your migraine symptoms?

    Balancing self-care and daily responsibilities while managing the symptoms of migraine can be challenging, especially when you’re experiencing stress.

    How do you relieve stress as it relates to your condition? Let’s share and help one another in the comments below.

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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    What are your “unconventional” migraine triggers?

    No migraine trigger is better than another, but there are some standard triggers that exist for the disease: smells, certain foods, bright lights, loud sounds, and even the weather.

    So I’m curious, do you have something “weird” or “unconventional” that sets off an attack? A migraine patient once told me that crying was their biggest trigger and I found that so interesting.

    Share yours below. ⬇️

    🤔 P.S. Mighty With Migraine

    #Migraine #ChronicPain #ChronicIllness #Disability #Spoonie #Fibromyalgia #mightywithmigraine #EhlersDanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome

    8 comments
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    What information or input is important to you when starting a new migraine medication?

    Starting a new medication is a big deal, so where do you start? Whose opinion or experience do you value most?

    Maybe you receive information from your doctor about your treatment options and usually defer to your doctor’s recommendation. Perhaps you prefer to talk to your loved ones about your options, or maybe you research the experiences of other patients who have already tried the medication you are considering.

    Whose input is most valuable to you? What information matters most? Share with us in the comments below.

    #CheckInWithMe #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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    What have you been watching, reading, or listening to lately to distract you from your pain?

    Have you been watching any interesting shows or movies, reading any great books/articles or listening to any uplifting songs/podcasts that's helped distract you from your pain lately?

    Would love to know what everyone's been up to!

    Feel free to share what's been helpful for you in the comments below 👇

    #DistractMe #CheckInWithMe #MightyMusic #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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    How has migraine affected your personal relationships?

    Some of our Mighty members have shared that migraine has had a negative impact on their personal relationships, especially their bonds with family, friends, and romantic partners.

    Migraine symptoms can lead to canceling plans or avoidance of making future plans/setting larger goals, which can lead to misunderstandings and frustrations. On the positive side, migraine can also build empathy and provide a space for deeper, more “real” conversation.

    No matter if it’s been negative or positive (or both!), how has migraine affected your personal relationships?

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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    Which of the following is most likely to trigger a migraine?

    Choose your most common trigger from the list below or add your own in the comments:

    💡 Bright, fluorescent light
    👃 Strong smells or odors (including food smells, perfume)
    🍕 Food
    📣 Loud noises
    ⛈️ Weather (e.g., humidity, precipitation)

    #Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

    28 comments