SUNCT Headache

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Tooth Removed and Having a flare

So I had a tooth removed a few days ago....I've been putting it off 'cause of my #TrigeminalNeuralgia issues that flare when I go to the dentist. And dang, I've put these issues off a while outta fear...I know that's bad. I'm a therapist and I know avoidance creates that stronger negative reinforcement cycle, but I also have chronic health issues like #SUNCTHeadache #Fibromyalgia and frankly Im terrified of the needles going near that nerve and the brutal reaction that will cause me to lose time taking care of kids, taking care of clients that I love and care about. And it makes me useless to everyone. Anywho I went and I did get it taken out and that was my win I did the right thing so it didn't infect anything. But dang doing the right thing, the healthy thing sucks I just had to say it.

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Which foods and beverages trigger your migraine? Which provide symptom relief?

Certain foods and beverages may trigger migraine attacks. Some of the most commonly reported ones include:

🍇 Alcohol
☕️ Caffeine
🧀 Dairy products, specifically cheese and yogurt
🥓 Processed meats such as bacon, sausage, ham
🍭 Artificial sweeteners
🍫 Chocolate

What trigger yours? Share your experiences in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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When do you know it’s time to try a new migraine medication?

Switching from one medication to another, or adding a new medication to your treatment plan, may be necessary throughout your treatment journey for migraine.

If you are experiencing ongoing symptoms, intolerable or unpleasant side effects, or even new-to-you symptoms, it may be time to discuss changing your treatment plan with your doctor or care team.

If you have modified your treatment plan, when did you know it was time to try a new medication? Share your experiences and advice for others in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicDailyHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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Are there any questions or topics you wish your neurologist would discuss with you in your appointments?

Sometimes you just want your neurologist or headache specialist to ask how you’re REALLY doing, or you want them to check in on something you mentioned during your last appointment.

Are there any questions or topics you wish your doctor would proactively discuss with you? A conversation you wish they’d start because you’re too nervous or afraid to raise it?

If you feel comfortable sharing, add your questions in the comments section below or read through others.

#Migraine #Fibromyalgia #ChronicDailyHeadache #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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What was the defining moment or incident that made you seek treatment for migraine?

Living with a health condition can be frustrating and unpredictable even on the "good" days. When the "bad" days become more frequent or even unbearable and you struggle to get out of bed, are forced to cancel plans, or miss work you might decide that you need a little extra support through treatment.

What made you seek treatment, either for the first time or after a length of time without treatment? Share your defining migraine moment in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ChronicDailyHeadache #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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What has your experience with treatment for migraine been like?

Migraine treatment types and experiences can vary from person to person. You may have tried (or are currently on) acute treatments like triptans, nerve blocks, or acetaminophen. Or perhaps you are currently trying (or have tried) a type of preventive treatment like CGRPs or physical therapy (like prescribed neck/shoulder exercises).

What treatment experiences did you have that did not meet your expectations? In what ways, if any, have you been pleasantly surprised? Share in the comments below. ⬇️

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis

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How do you relieve stress while also managing your migraine symptoms?

Balancing self-care and daily responsibilities while managing the symptoms of migraine can be challenging, especially when you’re experiencing stress.

How do you relieve stress as it relates to your condition? Let’s share and help one another in the comments below.

#Migraine #Fibromyalgia #ChronicPain #ClusterHeadache #SUNCTHeadache #ChronicVestibularMigraine #ChronicIllness #Endometriosis #mightywithmigraine

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Have you ever met anyone who lives with the same rare disease as you? What was it like?

Living with rare disease can not only feel rare in the sense of statistics, but also in building community and finding someone to share experiences with. Finding others that relate can be hard. Have you ever met someone that shares your same rare condition? If so, what was that like for you?

Would love to hear your experience! Feel free to share in the comments below.

P.S. If you need a resource to help you connect with others with rare disease, you can check out the nonprofit NORD, a great resource for rare disease patients:

#RareDisease #ChronicPain #ChronicIllness #GeneticDisorders #MentalHealth #Disability #Migraine #SUNCTHeadache #StiffPersonSyndrome #MedicalZebra #EhlersDanlosSyndrome #Spoonie #MarfanSyndrome #EmptyNoseSyndrome #morgellons #Syringomyelia #Neurosarcoidosis #BehcetsDisease #FunctionalNeurologicalDisorder

Home - NORD (National Organization for Rare Disorders)

NORD, a 501(c)(3) organization, is the leading patient advocacy organization dedicated to improving the lives of individuals and families living with rare diseases.
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