Dwarfism

It’s a loaded question, we know, but what do you need right now? Here’s a way to break it down so it feels a little more approachable:

🧠 What do you need mentally? (examples: less on your to-do list, a break)

💛 What do you need emotionally? (examples: forgiveness, patience, understanding, to be loved)

🫁 What do you need physically? (examples: rest, energy, a low-pain day, a diagnosis)

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #SkeletalDysplasia #ChronicPain

There are two sides to the health-trust dynamic: when your diagnoses give you no choice but to trust people, or when you diagnoses give you every single reason to be skeptical of others.

We’re curious where you land. Is it a case by case basis? Have you learned who your true people are? Have you actually become a more trusting person through it all?

#RareDisease #Achondroplasia #SkeletalDysplasia #Dwarfism #ChronicPain #Parenting #Caregiving

A good health day looks different for each of us, and a lot is shaped by our individual circumstances and severity of our conditions.

For some of us, it might look like knocking things off our to-do list, actually getting a workout in, or cooking a meal from scratch. For others, it might look like getting fresh air, getting out of bed before noon, or calling a friend for a spontaneous cup of coffee.

How do you measure it?

#CheckInWithMe #RareDisease #Disability #Achondroplasia #Dwarfism

We know how tough it can be to muster up some gratitude when you’re fighting so hard to survive every day. But one thing we know to be true — you all appreciate each other on the daily!

Consider this post your space to say your “thanks” out loud. (And scroll through if you need a reminder that you are valued and seen.)

💌 We’ll go first: We’re thankful for this community because you are the reason we have the best jobs in the world. What an honor it is to be here and learn from you always!

#Disability #Dwarfism #Achondroplasia #RareDisease

A common scenario that many of us have faced is time in the hospital — be it for a day, a weekend, a week, or even multiple months at a time. So that got us thinking: What are your must-have items when you’re there?

Here are some ideas to get your brain movin’:

🧸 A special blanket or comfort item

🎧 Noise-canceling headphones

🪥 A toothbrush

🗂️ A binder of your medical records

👖 Your comfiest sweatpants

📱 A phone charger

#Achondroplasia #Dwarfism #RareDisease #Disability #Parenting #Spoonie #ChronicPain #SkeletalDysplasia

Today's a good day to cheer each other on 🙌. Share a milestone or win (big or small) that you've had recently 🌟.

#RareDisease #Dwarfism #Achondroplasia #SkeletalDysplasia #ChronicPain