paralysis

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    autoimmune disease

    I am in chronic pain daily. My symptoms points towards Autoimmune disease but no one can identify which yet (it has been 7 years and counting since first symptoms). I experience more flare-ups than remissions. Most days im too fatigued and nauseous to do anything (eat, clean, drive, walk, situp, stand, wash dishes etc). I often wake up feeling paralysis in both legs. Having to drag my legs around after some hours on the heating pad. I constantly get sent to different specialists for each symptom without anyone attempting to connect dots(have experienced inflammation in heart area, kidney area, nostrils, hips, feet,face). With a lot of unexplained rashes that turn dry and flaky on my scalp, inside ears, on face, eyebrows, outside and inside nose etc. Along with cognitive issues pertaining memory, blurred vision and headaches. Soooo much medication is thrown at me on a monthly basis and nothing is working. Slowly losing faith in my doctor. Any experienced advice or guidance would be gratefully appreciated. #AutoimmuneDisease #Undiagnosed #ChronicPain #Headaches #feelingdefeated #SystemicLupusErythematosus #MultipleSclerosis #InflammatoryArthritis #Advice #guidance #Paralysis

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    Good morning 🌞

    My name is Logan. I’m new to the site. I came here to meet like-minded people that struggle with emotional illness like I do. I’m very unhappy with my life at this juncture. I don’t have many friends bc I fear that if they learn how broken I am inside, they’ll run away! I know I am a good person, but fear paralyze’s me then I don’t know which way to turn/go. I am a positive person for others, yet a Debbie downer to myself! I’m here if anyone needs to talk or vent, I always try to relate. #Saddnes #Pain #Paralysis #Aloneandscared #NeedSupport #mutualsupport

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    Got Ideas?

    Hello. I have a perplexing problem. I have occasionally leg weakness, numbness, pain and paralysis. The paralysis is either from the hip down or the waist down. I also experience minor incontinence with the paralysis. The episodes of weakness,numbness and pain can last a week. The paralysis can last for 2 days. The episodes can occur if I’m very stressed or I do to much physical activity. Thus far, muscle and nerve diseases have been ruled out. My lymes test comes back negative each time. I have no signs of any nerve damage, muscle damage or brain damage. All CT and MRI came back normal. There is nothing wrong in my bloodwork. My therapist thinks it could be psychosomatic symptoms, but my neurologist is thus far unconvinced. Since I don’t have anything life threatening, my neurologist thinks it is okay and nothing to worry about too much. He also has been avoiding giving me accommodations, which I hate because I can’t drive. When ever I have an episode, I have to drag myself around on the floor. I purchased a cheap wheelchair, but it would be nice to have a better wheelchair. I’ve been recommended to an academic neurologist and I’m also going to go to a neuropsychologist to help with some other undiagnosed mental illnesses and PTSD. Has anyone else gone through similar symptoms? #CPTSD #Anxiety #Depression #Paralysis #Undiagnosed #MentalHealth

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    SCI injuries suck

    My son is a T-2 complete. He has a young family he wants to provide for but is having trouble finding a job. He was never good at schoolwork, didn’t graduate college, has struggled with learning disabilities all his life. Basically, he’s someone that needed his legs in order to work. Has anyone else struggled finding a job after sci? #WheelchairUsers #Paralysis #JobSearch

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    Who has ever had Gillian barre syndrome? And how were you treated? (As a patient and person) #AutoimmuneDiseases #Paralysis #GuillainBarreSyndrome

    I first got it when I was a teen, my dad taught me to walk again and got my diagnosis as an outpatient. Never got given treatment for it and now as a 28 going on 29 year old realising all my issues that have come up since and the on and off paralysis since is probably still that. Advice?? Your stories??

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    #Parenting #MobilityAids #FND #Paralysis

    So it has come to my attention lately (especially within the last week) that I need a foldable electric wheelchair that I can stash under the pram. Or bring along with me like a hand luggage case;
    For those times when I’m out with My toddler and can no longer walk, so need to use that and attach it to the pram. Rather than either walk around in severe pain very slowly, or have to use a power shopper (not ideal) and find a way to either push My son around too or ask someone to come and push him, so I can finish running my errands.

    Don’t suppose anyone knows anyone who designs mobility stuff??

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    Please tell me I’m not alone! Has anyone else ever had fits/attacks where you experience hallucinations, paralysis, blindness and trouble breathing?

    #Depression #Anxiety #PanicAttack #Hallucinations #Paralysis #Confusion
    Im scared. I sometimes have short attacks (5-20 minutes) with one or more of these symptoms but sunday I had an attack that lasted an hour and had all of these. Luckily my boyfriend was with me and took care of me. I was hallucinating that tiny creatures were crawling in and out of my eyes and I kept trying to smash them. He held me and kept me from hurting myself and made sure I kept breathing. His voice was eventually able to bring me out of it but we’re both very freaked out. Anyone had this experience? Any advice?

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    Does anyone else with depression and/or anxiety have fits/attacks where you experience hallucinations, paralysis, blindness and trouble breathing?

    #Depression #Anxiety #PanicAttacks #Hallucinations #Paralysis #Confusion

    I sometimes have short attacks (5-20 minutes) with one or two of these symptoms but yesterday I had an attack that lasted an hour and had all of these. Luckily my boyfriend was with me and took care of me. I was hallucinating that there were creatures crawling in and out of my eyes and kept trying to smash them. He held me and kept me from hurting myself and made sure I kept breathing. His voice was eventually able to bring me out of it but we’re both very freaked out. Anyone else had this experience? Any advice?

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    When will mental health really matter?

    January 15, I received a phone call. I started taking notes:

    ‘Bridge. Jumped. 100ft. No pulse. Broken back. Broken legs. Broken arms. Broken pelvis. Broken sacrum. Broken sternum. Broken ribs. Unconscious. Paralyzed.’

    My son jumped from a bridge to end his life. He survived. He is alive. He is mad, he is angry. He is still hospitalized.

    Referral packets started being sent out this past week, and they were all denied. They had originally said that if that happened, they would remove the sitter from his room, and re-send them. The sitter has not been removed, and they had all of the denials in on Thursday. As has been stated before, the Psychiatrist and Mental Health Counselor don’t spend any real time with B, they don’t provide counseling to him, and are in and out of his room in 3-5 minutes.

    If they are basing their decision to not remove the sitter from his room based on the notes the sitter takes, I am certain they are reading them completely out of context. It is absolutely normal for him to mourn the loss of movement by walking, absolutely normal to be depressed having to stay in one very small room for 7 weeks, absolutely normal to be pissed and grumpy and agitated because you’re being woken up every 2 hours, and can’t get solid sleep. The things he’s saying are to be expected. They should know this. They know the referrals will be denied if there’s a sitter in his room - so why send them? Why get his hopes up in telling him that you’re sending them out? If they want to see improvement in mental health, why are they not meeting with him to really talk with him, to really understand? This is the part of our mental health system that fails so many. This is the system that has failed Bailey. Not just now, but time after time.

    Daily, we are seeing and hearing of others who have taken their own lives, who are suffering with such severe depression that just getting out of bed is a challenge. People who are drowning their sorrows with alcohol, people who are screaming for help, with some screams being silent, but their actions are what is screaming.

    What are you, as an individual, as a family, as a company, as a community going to do about it? What are we, as Counties, States, as a Nation, going to do about it? When will really matter?

    When?
    #MentalHealth #Autism #Suicide #MentalIllness #BipolarDisorder #Schizophrenia #Paralysis #Believeinbailey #SuicidePrevention

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