paralysis

I am in chronic pain daily. My symptoms points towards Autoimmune disease but no one can identify which yet (it has been 7 years and counting since first symptoms). I experience more flare-ups than remissions. Most days im too fatigued and nauseous to do anything (eat, clean, drive, walk, situp, stand, wash dishes etc). I often wake up feeling paralysis in both legs. Having to drag my legs around after some hours on the heating pad. I constantly get sent to different specialists for each symptom without anyone attempting to connect dots(have experienced inflammation in heart area, kidney area, nostrils, hips, feet,face). With a lot of unexplained rashes that turn dry and flaky on my scalp, inside ears, on face, eyebrows, outside and inside nose etc. Along with cognitive issues pertaining memory, blurred vision and headaches. Soooo much medication is thrown at me on a monthly basis and nothing is working. Slowly losing faith in my doctor. Any experienced advice or guidance would be gratefully appreciated. #AutoimmuneDisease #Undiagnosed #ChronicPain #Headaches #feelingdefeated #SystemicLupusErythematosus #MultipleSclerosis #InflammatoryArthritis #Advice #guidance #Paralysis

So it has come to my attention lately (especially within the last week) that I need a foldable electric wheelchair that I can stash under the pram. Or bring along with me like a hand luggage case;
For those times when I’m out with My toddler and can no longer walk, so need to use that and attach it to the pram. Rather than either walk around in severe pain very slowly, or have to use a power shopper (not ideal) and find a way to either push My son around too or ask someone to come and push him, so I can finish running my errands.

Don’t suppose anyone knows anyone who designs mobility stuff??

January 15, I received a phone call. I started taking notes:

‘Bridge. Jumped. 100ft. No pulse. Broken back. Broken legs. Broken arms. Broken pelvis. Broken sacrum. Broken sternum. Broken ribs. Unconscious. Paralyzed.’

My son jumped from a bridge to end his life. He survived. He is alive. He is mad, he is angry. He is still hospitalized.

Referral packets started being sent out this past week, and they were all denied. They had originally said that if that happened, they would remove the sitter from his room, and re-send them. The sitter has not been removed, and they had all of the denials in on Thursday. As has been stated before, the Psychiatrist and Mental Health Counselor don’t spend any real time with B, they don’t provide counseling to him, and are in and out of his room in 3-5 minutes.

If they are basing their decision to not remove the sitter from his room based on the notes the sitter takes, I am certain they are reading them completely out of context. It is absolutely normal for him to mourn the loss of movement by walking, absolutely normal to be depressed having to stay in one very small room for 7 weeks, absolutely normal to be pissed and grumpy and agitated because you’re being woken up every 2 hours, and can’t get solid sleep. The things he’s saying are to be expected. They should know this. They know the referrals will be denied if there’s a sitter in his room - so why send them? Why get his hopes up in telling him that you’re sending them out? If they want to see improvement in mental health, why are they not meeting with him to really talk with him, to really understand? This is the part of our mental health system that fails so many. This is the system that has failed Bailey. Not just now, but time after time.

Daily, we are seeing and hearing of others who have taken their own lives, who are suffering with such severe depression that just getting out of bed is a challenge. People who are drowning their sorrows with alcohol, people who are screaming for help, with some screams being silent, but their actions are what is screaming.

What are you, as an individual, as a family, as a company, as a community going to do about it? What are we, as Counties, States, as a Nation, going to do about it? When will really matter?

When?
#MentalHealth #Autism #Suicide #MentalIllness #BipolarDisorder #Schizophrenia #Paralysis #Believeinbailey #SuicidePrevention