Familial Mediterranean Fever

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I have an invisible chronic rare disease named Familial Mediterranean Fever.

I would enjoy the opportunity to join podcast as a guest discussing FMF or another autoimmune auto inflammatory disease. I am considering doing my own podcast and having my members of support group join.

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It's okay to have a different life than you planned

I love this quote because it reminds me I can still have a full life despite my mental and physical chronic illnesses. It's about focusing on what you can do and putting the things you can't behind you. You can do almost anything if you're willing to try. Keep fighting! #BipolarDisorder #FamilialMediterraneanFever #Anxiety #Depression #Quotes #InspirationalQuotes #Inspiration

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Scott Ninneman From Speaking Bipolar is Finally Joining The Mighty Family #MightyTogether

Hey y’all,

My name is Scott Ninneman, and I’m the man behind the Speaking Bipolar blog. Living with both Bipolar 1 and Familial Mediterranean Fever, chronic illness is more than something I write about - it’s my life.

I spend my days wrestling numbers as a bookkeeper and tax preparer and dedicate much of my nights and weekends to creating online content for my blog, Medium, Vocal, and The Good Men Project. Besides writing about living with illness, I write about personal development, writing tips, poetry, and short stories.

I am honored to be joining this community and to know that The Mighty will soon publish my first story. I look forward to getting to know everyone in the years to come.

Until next time, keep fighting!

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Assistance dog trainer

Has anyone used a professional assistance dog trainer in the Tri-State Area (within an hour of Philadelphia) that they can recommend? We were working with Libby Rockaway but she just moved out of the country (and she specializes in DADs and we need a mobility/dysautonomia assistance dog).
We already have the dog - we just need the trainer. #assistancedog #RareDiseases #Dysautonomia #Fmf #FamilialMediterraneanFever #MobilityAssistanceDog

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Finding a doctor

I was diagnosed about 8 months ago after symptoms started at age 36. The doctor that finally figured out what was wrong doesn’t really know what to do and I’m in Oklahoma, so there aren’t many options. How have you guys found doctors familiar with FMF?
Thanks
#FamilialMediterraneanFever

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#LymeDisease #FamilialMediterraneanFever Isolation

#ItsOKMan Been sick for over 8 years now.  I live a pretty inactive and isolated life.  My multiple health issues makes me feel like an alien.  I miss feeling connected to people even though I don't know how I could relate to others.

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