I’m new here!
Hi, my name is nortsapa.
#MightyTogether #ADHD #PTSD #Fibromyalgia #Anxiety #Depression #AutismSpectrumDisorder #OCD #Grief #HipDysplasia
Hi, my name is nortsapa.
#MightyTogether #ADHD #PTSD #Fibromyalgia #Anxiety #Depression #AutismSpectrumDisorder #OCD #Grief #HipDysplasia
Have you ever read a book that you just relate to on a deeper level? That was me with “Breathe and Count Back from Ten”. The book is a young-adult novel that follows a Peruvian-American girl named Verónica who has a dream of being a professional mermaid. She also has hip dysplasia. Having cerebral palsy and problems with my hip, I really could relate to Verónica. She makes several poignant observations about disability in general over the course of the novel that makes this read on-point for even adults.
Here is the official synopsis:
In this gorgeously written and authentic novel, Verónica, a Peruvian-American teen with hip dysplasia, auditions to become a mermaid at a Central Florida theme park in the summer before her senior year, all while figuring out her first real boyfriend and how to feel safe in her own body. Verónica has had many surgeries to manage her disability. The best form of rehabilitation is swimming, so she spends hours in the pool, but not just to strengthen her body. Her Florida town is home to Mermaid Cove, a kitschy underwater attraction where professional mermaids perform in giant tanks . . . and Verónica wants to audition. But her conservative Peruvian parents would never go for it. And they definitely would never let her be with Alex, her cute new neighbor. She decides it’s time to seize control of her life, but her plans come crashing down when she learns her parents have been hiding the truth from her—the truth about her own body.
I would definitely give this book 5 stars.
⭐️ ⭐️ ⭐️ ⭐️ ⭐️
Happy reading! 📚
Hi, my name is ThoughtfulBluejay60. I'm here because
I have only just started to research and understand my 2 childhood problems and how down played they were and the understanding now in how serious they are, the effects on my life and the lack of knowledge has meant I have not understood the importance of being able to identify my need of a hip replacement earlier I was diagnosed with hip dysplasia at birth and had multiple treatments to correct, I was then diagnosed with Perthes Disease and underwent a further operation, I have now discovered how rare the disease is and the combination of the two means my THR is extremely difficult 😥. Also understanding that I have suffered a disability my entire life and had no awareness about this.#RareDisease #LeggCalvePerthesDisease #HipDysplasia #neglect
Hi, my name is delightfulgal4. I'm here because I was born with hip dysplasia and have had hip surgery at 48. Last year May 2022 I dislocated my knee and my peroneal nerve was severed. Now I have foot drop and have to wear an AFO. not the easiest but it is helping me with my gait and lifting my foot
I'm 2 days past my first round of Botox for muscle spacisity due to Cerebral Palsy. As a child I was considered mild type 1 Cerebral Palsy but with aging I've been rediagnosed as type 3 moderate. These changes mean additional interventions such as braces and Botox injections to keep pain low and reduce complications like my arm freezing into positions that are unmanageable. Looking for others who've used Botox and hoping for some encouragement! #CerebralPalsy #HipDysplasia #BladderIncontinence #Disability
Hi there,
My name is Courtney. I'm currently 45. I have mild spastic diplegic cerebral palsy. Growing up I had all the therapies during school, though no one at the time knew what was going on with me! Yeah, odd no one knew I had cp till I was an adult and had to go for testing for SSDI because my pediatric files were lost or destroyed.
CP affects my legs and my hands.As a child I had to have a guard on my pencils to try to get me to grip it correctly. That failed. I also had hip dysplasia on the left side which resulted in it being pinned. I recently learned that was a cp thing. Go figure
Hi, my name is bentleyplaysviolin. I'm looking for a community to relate with, and learn to deal with the mental challenges of chronic pain
#MightyTogether #BipolarDisorder #AutismSpectrumDisorder #OCD #ehlers-DanlosSyndrome #ADHD #VonWillebrandDisease #IronDeficiencyAnemia #SocialAnxiety #HipDysplasia
Hi, my name is Brunette_Rhyme. I've been diagnosed with and am a long term sufferer, I have other conditions but they are not on this radar however that does not surprise me. I feel out of 32 neurological and a mess of a muscularskelatal, my body is heading for another change. How long before we know what’s going to happen is anyones guess. My biggest obstacle right now is I seem to be my carer’s carer. I have a new set of carer’s coming on board. My new NDIS package has come through and finally I had and awesome LAC who knew what she was talking about. We have fought so hard and finally I received a package where I now might received the care I need instead of laying on the floor in a pool of blood in the morning whether I have an Apple Watch on or not. It is all dependant on the impact of the fall and mine are usually low by the time I hit hard. I have been on dexemethasone for nearly 3 months this time and it’s taking it’s toll and my doc does not get back from holidays for another month. I have to hang on as 2 hospitals have nearly killed me and I refuse to go down that road. I have an induction on Monday and really need these carers up to speed. I have one carer who is about to take leave and is on holidays to Italy. I hope she has and amazing time and sadly another one I have just lost as she had a fight with another carer to whom where previously friends. She put me in a very awkward position of choosing. I refused to and split them apart. It was not good enough so she resigned. I am very sad for this and I see her hurting right now but as the say with Pride come a fall. She knows I am very fair and kind however she needs to ask me. I guess I am reaching out for some moral support as I am truly exhausted and know I need to hang in there. I hope every is doing the best they can? If you are having reasonably good day, share and extra smile for the rest of us and we will do the same in return. J
#MightyTogether #Anxiety #Migraine #Fibromyalgia #ADHD #PTSD #RheumatoidArthritis #MultipleSclerosis #ChronicIllness #CentralPainSyndrome #MyofascialPainSyndrome #ChronicInflammatoryResponseSyndrome #UrticarialVasculitis #CentralSleepApnea #CentralSensitizationSyndrome #VasculitisSyndromesOfTheCentralAndPeripheralNervousSystems #MultipleSystemAtrophyWithOrthostaticHypotension #HipDysplasia #DegenerativeDiscDisease #DentatorubralAtrophy #MyotonicMuscularDystrophy
Hi, my name is chelsnm. I'm here because I’m tired of being in pain all the time.
#MightyTogether #Anxiety #Depression #Arthritis #HipDysplasia #FemoralAcetabularImpingement