Hi, my name is mindyb782. I've been diagnosed with hEDS, POTs, C-PTSD, PTSD, severe depression, ADHD, narcolepsy, craniocervical instability, degenerative disc disease, hip dysplasia, gastroparesis and a lot more. Trying to figure out disability. My daily pain is beginning to be unbearable and I'm newly sober
#MightyTogether #Anxiety #Depression #EhlersDanlosSyndrome #ADHD #Grief #POTS
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Hi, my name is caffeineaddict5. I am a mom of 3, my youngest (11 months old) had dealt with sole health issues (unilateral renal agenesia, cmpa, hip dysplasia, reflux, tubular renal acidosis, failure to thrive, developmental delay…) we are still waiting for a diagnosis but dr is thinking about some kind of dwarfism.
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Hi, my name is nortsapa.
#MightyTogether #ADHD #PTSD #Fibromyalgia #Anxiety #Depression #AutismSpectrumDisorder #OCD #Grief #HipDysplasia
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Have you ever read a book that you just relate to on a deeper level? That was me with “Breathe and Count Back from Ten”. The book is a young-adult novel that follows a Peruvian-American girl named Verónica who has a dream of being a professional mermaid. She also has hip dysplasia. Having cerebral palsy and problems with my hip, I really could relate to Verónica. She makes several poignant observations about disability in general over the course of the novel that makes this read on-point for even adults.
Here is the official synopsis:
In this gorgeously written and authentic novel, Verónica, a Peruvian-American teen with hip dysplasia, auditions to become a mermaid at a Central Florida theme park in the summer before her senior year, all while figuring out her first real boyfriend and how to feel safe in her own body. Verónica has had many surgeries to manage her disability. The best form of rehabilitation is swimming, so she spends hours in the pool, but not just to strengthen her body. Her Florida town is home to Mermaid Cove, a kitschy underwater attraction where professional mermaids perform in giant tanks . . . and Verónica wants to audition. But her conservative Peruvian parents would never go for it. And they definitely would never let her be with Alex, her cute new neighbor. She decides it’s time to seize control of her life, but her plans come crashing down when she learns her parents have been hiding the truth from her—the truth about her own body.
I would definitely give this book 5 stars.
⭐️ ⭐️ ⭐️ ⭐️ ⭐️
Happy reading! 📚
3 reactions Hi, my name is ThoughtfulBluejay60. I'm here because
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I have only just started to research and understand my 2 childhood problems and how down played they were and the understanding now in how serious they are, the effects on my life and the lack of knowledge has meant I have not understood the importance of being able to identify my need of a hip replacement earlier I was diagnosed with hip dysplasia at birth and had multiple treatments to correct, I was then diagnosed with Perthes Disease and underwent a further operation, I have now discovered how rare the disease is and the combination of the two means my THR is extremely difficult 😥. Also understanding that I have suffered a disability my entire life and had no awareness about this.#RareDisease #LeggCalvePerthesDisease #HipDysplasia #neglect
Hi, my name is delightfulgal4. I'm here because I was born with hip dysplasia and have had hip surgery at 48. Last year May 2022 I dislocated my knee and my peroneal nerve was severed. Now I have foot drop and have to wear an AFO. not the easiest but it is helping me with my gait and lifting my foot
I'm 2 days past my first round of Botox for muscle spacisity due to Cerebral Palsy. As a child I was considered mild type 1 Cerebral Palsy but with aging I've been rediagnosed as type 3 moderate. These changes mean additional interventions such as braces and Botox injections to keep pain low and reduce complications like my arm freezing into positions that are unmanageable. Looking for others who've used Botox and hoping for some encouragement! #CerebralPalsy #HipDysplasia #BladderIncontinence #Disability
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Hi there,
My name is Courtney. I'm currently 45. I have mild spastic diplegic cerebral palsy. Growing up I had all the therapies during school, though no one at the time knew what was going on with me! Yeah, odd no one knew I had cp till I was an adult and had to go for testing for SSDI because my pediatric files were lost or destroyed.
CP affects my legs and my hands.As a child I had to have a guard on my pencils to try to get me to grip it correctly. That failed. I also had hip dysplasia on the left side which resulted in it being pinned. I recently learned that was a cp thing. Go figure
Hi, my name is bentleyplaysviolin. I'm looking for a community to relate with, and learn to deal with the mental challenges of chronic pain
#MightyTogether #BipolarDisorder #AutismSpectrumDisorder #OCD #ehlers-DanlosSyndrome #ADHD #VonWillebrandDisease #IronDeficiencyAnemia #SocialAnxiety #HipDysplasia
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