Hypersomnolence Disorder

Hi I'm new here on mighty. I just signed up yesterday but I already forgot how I came across this platform, thanks to my #BrainFog lol

It's been 2 years and 7 months since I contracted #COVID19 and have been suffering with #longcovid since then. Despite hearing all kinds of denials possible from doctors, now I am diagnosed with #MyalgicEncephalomyelitis and #Fibromyalgia and many more. Not that the labels help with my symptoms, but they surely helped me look in the right direction when searching for possible #treatment plans.

I'm almost 40 and been #stuck at home mostly. I've recently been approved for a public transportation access link service so I'm planning on using that from time to time. I use a #Walker #Rollator and occasionally a #Cane when I go out to the doctors.

I guess I'm here to connect with others going through similar things whether it be a longcovid, PASC, fibromyalgia, ME/CFS, arthritis, spinal stenosis, or more symptom-specifically #HypersomnolenceDisorder #Hypersomnia #PeripheralNeuropathy #ChronicPain #ChronicFatigue
I am quite new to this #Spoonie life and trying my best here.

Plans

So used to being broken
Don’t know how to be well
Now my brain is healing
Negative thoughts shouldn’t dwell

Yet the more I try
The more I feel I fail
Rather like a dog
Trying to catch her tail

Round and round I go
Endless broken days
Try to do my part
But end up in a daze

The more I sleep
The more tired I get
Though I fight awake
Sleep conquers me yet

I push through a day
Pain fills every move
Know it’s my fault
I have everything to prove

I can do this thing
I try to believe
But my past mocks me
My memories retrieved

No energy to try
Lest I fail again
Tired of fighting
Wishing for the end

But the end eludes me
My kids need me here
I have to keep trying
Can’t give into the fear

Something must change
Though I don’t know how
I have to do something
It has to be now

I’ll make a plan
Just another in line
And maybe somehow
I’ll stick to it this time

I just can’t give up
Can’t sit here and wallow
Think what I’ll regret
When I look back tomorrow

-Me

#ADHD
#Depression
#Anxiety
#BorderlinePersonalityDisorder
#Fibromyalgia
#Narcolepsy
#HypersomnolenceDisorder