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New spoonie

Hi I'm new here on mighty. I just signed up yesterday but I already forgot how I came across this platform, thanks to my #BrainFog lol

It's been 2 years and 7 months since I contracted #COVID19 and have been suffering with #longcovid since then. Despite hearing all kinds of denials possible from doctors, now I am diagnosed with #MyalgicEncephalomyelitis and #Fibromyalgia and many more. Not that the labels help with my symptoms, but they surely helped me look in the right direction when searching for possible #treatment plans.

I'm almost 40 and been #stuck at home mostly. I've recently been approved for a public transportation access link service so I'm planning on using that from time to time. I use a #Walker #Rollator and occasionally a #Cane when I go out to the doctors.

I guess I'm here to connect with others going through similar things whether it be a longcovid, PASC, fibromyalgia, ME/CFS, arthritis, spinal stenosis, or more symptom-specifically #HypersomnolenceDisorder #Hypersomnia #PeripheralNeuropathy #ChronicPain #ChronicFatigue
I am quite new to this #Spoonie life and trying my best here.

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decorated my #Cane #MobilityAids

I’ve never been one to be ordinary, and I eventually would love to have a variety of different designs to go with my outfits lol this is the first finished cane I’ve done; in my favorite colors with a cat foot I found for walkers.

#Walker #WalkingStick #AIDS #CerebralPalsy #BeUnstoppable

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I haven’t slept very well the last few nights. I woke up early morning around 5 ish to take a potty break and I fell and I’ve fallen a lot lately but this is the first time it’s really scared me. So I’m gonna go back to bed and try starting over because I’m in a lot of pain. Didn’t bump my head just lower back pain and left hip pain. #fall #BadStartToDay #KidneyPain #hippain #ImOnly27 #Lupus #Fibromyalgia #ouch #BabyItsColdOutside #Walker

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How to find #Employment with multiple disabilities? Both Emotional & physical disabilities?

I have been emotionally & physically disabled since I was a child. I use a #Walker currently to get around & cant lift due to #Scoliosis. I also have been stable emotionally for a decade+, but have #SchizoaffectiveDisorder & several other emotional issues. I want to #Work - I don’t want to live on the system for the rest of my life. I’m fiercely independent & want a good life for myself, my #Daughter & my family. I have some college, but no degree due to lack of concentration. Hardly any work experience either. How do I get a #Job? Open to any positive #suggestions


#gooddeed : Wind

There was a mighty wind yesterday and a speeding #Walker came at me. I reached out and grabbed it.  Some witnesses returned it to the owner.  We all know each other.


#mobility #mobilitydevices #AnkylosingSpondylitis #Arthritis #Wheelchair #Rollator #Walker

My actual question is wondering how to approach my primary about prescribing mobility devices. During flare ups, I have days where I really should be using a scooter or walker. I acquire a Rollator on my own, and it's wonderful. My husband plans to go with me as an advocate. What do we say?