Hypersomnolence Disorder

Join the Conversation on
Hypersomnolence Disorder
51 people
0 stories
2 posts
  • About Hypersomnolence Disorder
  • Explore Our Newsletters
  • What's New in Hypersomnolence Disorder

    New spoonie

    Hi I'm new here on mighty. I just signed up yesterday but I already forgot how I came across this platform, thanks to my #BrainFog lol

    It's been 2 years and 7 months since I contracted #COVID19 and have been suffering with #longcovid since then. Despite hearing all kinds of denials possible from doctors, now I am diagnosed with #MyalgicEncephalomyelitis and #Fibromyalgia and many more. Not that the labels help with my symptoms, but they surely helped me look in the right direction when searching for possible #treatment plans.

    I'm almost 40 and been #stuck at home mostly. I've recently been approved for a public transportation access link service so I'm planning on using that from time to time. I use a #Walker #Rollator and occasionally a #Cane when I go out to the doctors.

    I guess I'm here to connect with others going through similar things whether it be a longcovid, PASC, fibromyalgia, ME/CFS, arthritis, spinal stenosis, or more symptom-specifically #HypersomnolenceDisorder #Hypersomnia #PeripheralNeuropathy #ChronicPain #ChronicFatigue
    I am quite new to this #Spoonie life and trying my best here.

    3 reactions 2 comments

    Plans #MightyPoets


    So used to being broken
    Don’t know how to be well
    Now my brain is healing
    Negative thoughts shouldn’t dwell

    Yet the more I try
    The more I feel I fail
    Rather like a dog
    Trying to catch her tail

    Round and round I go
    Endless broken days
    Try to do my part
    But end up in a daze

    The more I sleep
    The more tired I get
    Though I fight awake
    Sleep conquers me yet

    I push through a day
    Pain fills every move
    Know it’s my fault
    I have everything to prove

    I can do this thing
    I try to believe
    But my past mocks me
    My memories retrieved

    No energy to try
    Lest I fail again
    Tired of fighting
    Wishing for the end

    But the end eludes me
    My kids need me here
    I have to keep trying
    Can’t give into the fear

    Something must change
    Though I don’t know how
    I have to do something
    It has to be now

    I’ll make a plan
    Just another in line
    And maybe somehow
    I’ll stick to it this time

    I just can’t give up
    Can’t sit here and wallow
    Think what I’ll regret
    When I look back tomorrow