Join the Conversation on
532 people
0 stories
75 posts
Explore Our Newsletters
What's New in Cane

Using a Cane While Hiking?

Later this summer I will be going on a trip with my family to our favorite summer spot. Only problem is I'm newly disabled and this summer spot is full of steep dirt hills and holes in the ground. Does anyone have any advice on using a cane in these conditions? I use a cane for balance and mobility so it's really important I find something. Is there any cane tips I could get or something I could try? #Fibromyalgia #Cane #Advice


Canes & Brains

I was looking everywhere for my cane one afternoon. Couldn't figure out where the heck I put the thing. My partner comes home and goes to get a water from the fridge and there it is, hanging up on the shelf, literally just chillin.
#Cane #funny #BrainFog #ChemoBrain #Humor #Laugh #gallowshumor #MigraineBrainFog

7 reactions 1 comment

I miss me

I am having trouble accepting that how I am now is “me” and the old me is a memory. I miss her. I am sad a lot. I get mad at myself. I miss driving. I miss being good at things. How do I embrace this new, and changing for the “worse”, me. My balance, eyesight, digestive system, muscles and hearing are slowly failing. Pain is just life. Sometimes I walk, sometimes I need a wheelchair or walker or cane…I feel like a fake because I’m so different at times. I have some great doctors, and they really are trying but want me to fit into a space they know. I don’t. It’s hard to get anyone to put all the pieces together because I have so many different body parts affected and specialists don’t usually talk to each other, even if they say they do.
I can remember “wishing” my life would just slow down because I was so very busy even though I loved being respected and needed.
Hummmmmm…I got my wish. I don’t make wishes anymore. #ChronicPain #Depression #MuscleDysfunction #balanceissues #WheelchairUsers #Cane

14 reactions 29 comments

New spoonie

Hi I'm new here on mighty. I just signed up yesterday but I already forgot how I came across this platform, thanks to my #BrainFog lol

It's been 2 years and 7 months since I contracted #COVID19 and have been suffering with #longcovid since then. Despite hearing all kinds of denials possible from doctors, now I am diagnosed with #MyalgicEncephalomyelitis and #Fibromyalgia and many more. Not that the labels help with my symptoms, but they surely helped me look in the right direction when searching for possible #treatment plans.

I'm almost 40 and been #stuck at home mostly. I've recently been approved for a public transportation access link service so I'm planning on using that from time to time. I use a #Walker #Rollator and occasionally a #Cane when I go out to the doctors.

I guess I'm here to connect with others going through similar things whether it be a longcovid, PASC, fibromyalgia, ME/CFS, arthritis, spinal stenosis, or more symptom-specifically #HypersomnolenceDisorder #Hypersomnia #PeripheralNeuropathy #ChronicPain #ChronicFatigue
I am quite new to this #Spoonie life and trying my best here.

4 reactions 2 comments

Thoughts about my cane and being able to walk with ease again

I have been relatively able-bodied my entire life, but recently, getting around has been.. unusually hard. I can walk short distances and I can stand on my own, but.. over time everything starts to hurt and get really, really heavy.

I thought about getting myself a walking cane at the nearest drugstore, but it took a long time for me to even consider- was something like that not made for someone like me, who can still.. sorta walk? But after too many pained incidents, I caved and got one.

This little thing is a blessing to me. I can actually walk a decent way without fatigue or pain from carrying the weight of my body! I'm so glad I bought one, even if it was nothing fancy.

Maybe, reader, this is an encouragement to go out and treat yourself to an accommodation you may be withholding because you believe you're "not disabled enough". If it helps you, it helps! I can't recommend being kind to yourself in this way more, whether in mind or body.

#Cane #DisabilityAdvocacy #DisabilityRights #InvisibleDisability


For anyone who travels on an airplane with a cane and can go through security with it in their bag, does the scanner typically flag it to be inspected

Never traveled with a mobilty aid before and want information so if you have other tips as well let me know! #AirTravel #Mobiltyaid #Cane


Advice on canes?

Hi all! I have been considering getting a cane for a while, since I think it could really help improve my mobility and pain levels on bad days, but I’m not sure how to choose or find one that will work for me. Does anyone have any recommendations?
Currently I think what I am looking for is a folding cane with a gel grip, because I hear that is really good for hand and wrist comfort. I don’t know what handle style to get though. I do have some mild issues with my wrists and elbows, and moderate shoulder problems.
Also, I would prefer one with nice patterns on it, ☺️ but that is a less important consideration, and I suppose that decorating it myself could be a delight.
#Hypermobility #MobilityAids #Cane #ChronicPain #JointHypermobilitySyndrome #HSD #Advice

See full photo

How do people deal with uncertain episodes of any disease?

I’ve got a few issues. My chronic pain or fibromyalgia, my anxiety (and panic attacks), my PTSD that sometimes pops up, out of nowhere, and of course the fatigue that its accompanied with. And those are all things I understand, and usually know the cause of. Even the tears that sometimes spontaneously run down my cheek are okay(-ish).

No, the thing I’m really dealing with right now is my FND (Functional Neurological Disorder). It’s also called Conversion Disorder, and basically means that there is a problem between the brain and the bodypart that should do something. In my case my left leg that doesn’t move, or sometimes shakes a little, without control. Since last year it comes and goes, seemingly out of nowhere. And when it comes, I’m stuck (because I can’t move my left leg). It’s inconvenient, and I don’t know how to deal with it, yet. Some days I wish I had something to be mobile again, or the strange desire that it was permanent (which I’m glad it’s not).

An FND-episode can be for 5 minutes, or 3 hours, and everything in between. It can be in bed, when I wake up, when I rest, or try to go to sleep. It can happen on the couch, or on my chair behind my laptop. It has happened a few times outside (I’ve missed my bus a couple of times, because I wasn’t able to walk the 10 meters to the bus).I had ones an episode in a grocery store, and of course people had to get to things, which made me walk anyway with a strange foot behind me. For some reason I can stay pretty calm at those moments (I learned that it’s not permanent, that I’m not in danger, and that physically nothing is broken in my body. But at the same time I mourn, because I can’t control it, it seems to control me.

I’ve got a foldable cane in my jacket, that helps when I’m tired, and it gives me the confidence to go outside. But sometimes I wish for better stuff, or more mobility. And in the meantime I beat myself up that I’m not ill enough to ask for a walker or a wheelchair to use parttime. It’s not that I have a problem with the device or it’s users, there is no ableism in it. I’m afraid that I’m not worthy of it.

I was just wondering: how do other people deal with uncertain episodes of any disease? Do you avoid things? Do you prepare?

#CheckInWithMe #FunctionalNeurologicalDisorder #Fibromyalgia #Cane #Wheelchair #Anxiety #chronicdisease #ChronicPain #RareDisease


Why I avoid using my cane in public

I often avoid using my cane in public, even when I probably need it. I often suffer the consequences later on for this, but it’s just hard.

I have major pain/weakness in my right leg. A lot of the time I can manage this with medication and live a “normal” life. Though if I’ve been too active, or the weather is bad, or if i sleep wrong, I have to use a cane to get around.

Even though it seriously helps me, I often go without it, especially at work. I work as a manager at a hotel so I’m often dealing with guests. When I use my cane guests seem to think it’s completely okay to ask me about my medical history or tell me that I’m too young to be using a cane. (I’m 27) I often want to reply “and you’re too old to be this ignorant”. I’m kidding, but honestly I think it.

Since when is this acceptable? No one would ask an elderly man why he was using a cane. So why is it okay to ask me? I know I shouldn’t care what other people think and I should use it when I need it, but honestly it’s just frustrating.

Any one else deal with this?

#ChiariMalformation #ChronicPain #MobilityAids #Cane #ChronicIllness