Hypersomnia

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Hypersomnia
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    Why Can't I Sleep? Why Can't I Wake Up?

    Often in the past, I went to bed at my usual time but woke up at 4:45 a.m. and couldn’t get back to sleep, no matter what. It was like I had a hamster on a wheel inside my brain.

    Other nights I would go to bed early and couldn’t get to sleep for hours. I tried reading, but sometimes I read till 2:00 a.m. with no sleep in sight.

    Then again there are days when I feel the need to nap in the early afternoon. I try to resist, but if I give in, there are no refreshing catnaps for me. I’m down for two and a half hours typically. Then the whole sleep-wake cycle gets off course.

    And when I’m in the middle of a depressive episode, I’ve been known to stay awake all night, obsessing and catastrophizing. There are also days I can’t get out of bed in the morning, or all day in some cases, though I don’t usually sleep well after them.

    What is it with all the sleep disturbances? Well, I have bipolar disorder 2, so that may have something to do with it. www.ncbi.nlm.nih.gov/pmc/articles/PMC3321357 (NIH) says, “Sleep disturbance is a core symptom of bipolar disorder. The diagnostic criteria indicate that during manic episodes there may be a reduced need for sleep and during episodes of depression, insomnia or hypersomnia can be experienced nearly every day.” They also note that insomnia and hypersomnia are early warning signs, or “prodromes,” of a bipolar episode occurring. In fact, sleep disturbance is the number one prodrome for mania, and is recognized by approximately 80% of those suffering from it as an indication of an impending episode.

    www.webmd.com/bipolar-disorder/guide/bipolar-disorder-and-sl... discusses a number of ways that bipolar disorder is associated with poor sleep: either insomnia or hypersomnia; decreased need for sleep; a circadian rhythm sleep disorder; REM sleep abnormalities which can affect dreaming; and co-occurring sleep apnea (around a third of people with bipolar also have sleep apnea, which is associated with excessive daytime sleepiness and fatigue). Bipolar meds have also been known to affect sleep-wake patterns, as well as co-occurring substance abuse disorders.

    What are the consequences? Sleep deprivation has demonstrated detrimental effects on cognitive functioning, particularly in teens and young adults. This has been observed in performing psychomotor vigilance tasks, working memory tasks, and cognitive processing tasks. No wonder a series of sleepless nights can result in a foggy or fuzzy-headed feeling!

    Unfortunately, the advice given for how to counter the effects of sleep disturbance in bipolar disorder is almost indistinguishable from the advice given to the general population, such as incrementally moving bedtime and waking time until the desired period of sleep is reached; and not using electronics such as computers, cellphones, and TVs near bedtime. Some preventives that have worked with bipolar patients have included bright light therapy in the morning and the use at bedtime of supplements containing the naturally occurring hormone melatonin that the body releases in response to darkness.

    My own experiences with sleep deprivation and #BipolarDisorder have been a mixed bag. For many years before I was diagnosed, I was subject to the difficulties caused by shift work, either third or second shift. Third-shift work made me too tired to drive safely, especially if I was also working first shift the next day, which sometimes happened. My husband pitched in and picked me up on those days. My friends knew never to call me before noon.

    For a while I took a prescribed sleep aid, but sometime during the last year realized that as my sleep-wake cycle was regulating to a more “normal” pattern, and that the sleep I got without the meds was more refreshing and conducive to clear thought in the morning. So I quit taking it, with the approval of my psychiatrist. Even though I work at home and make my own hours, my work schedule has become predictable as well. Now I wake around 6:00 or 7:00 a.m., check my emails and timeline, have some breakfast and start my work (when I have some). I break for lunch, then resume work in the early afternoon.

    As for getting to sleep, it’s usually not a problem (except when it is). Any more, I take my nighttime meds, read for about 30 minutes, and drift off to sleep normally.

    Post

    New spoonie

    Hi I'm new here on mighty. I just signed up yesterday but I already forgot how I came across this platform, thanks to my #BrainFog lol

    It's been 2 years and 7 months since I contracted #COVID19 and have been suffering with #longcovid since then. Despite hearing all kinds of denials possible from doctors, now I am diagnosed with #MyalgicEncephalomyelitis and #Fibromyalgia and many more. Not that the labels help with my symptoms, but they surely helped me look in the right direction when searching for possible #treatment plans.

    I'm almost 40 and been #stuck at home mostly. I've recently been approved for a public transportation access link service so I'm planning on using that from time to time. I use a #Walker #Rollator and occasionally a #Cane when I go out to the doctors.

    I guess I'm here to connect with others going through similar things whether it be a longcovid, PASC, fibromyalgia, ME/CFS, arthritis, spinal stenosis, or more symptom-specifically #HypersomnolenceDisorder #Hypersomnia #PeripheralNeuropathy #ChronicPain #ChronicFatigue
    I am quite new to this #Spoonie life and trying my best here.

    Post

    I’m new here!

    Hi, my name is bluenoteL. I'm undiagnosed and wanting to hear from other people who might be going through similar things: muscle twitches, joint pain, muscle pain, joint hypermobility, neuropathy, fatigue, eye issues, concentration issues, hypersomnia, coordination issues, TMJ, tinnitus, vertigo, nausea, dizziness, bloating, weight loss, lack of appetite, cognitive issues.
    I assume fibromyalgia or something neuromuscular as that's who I'm being referred to next, but this is over 2 months of no answers and meds that don't help much, feeling beyond hopeless. I've been turned into an idiot, and am unable to exercise or really do anything, any hobbies or anything I enjoy.
    #MightyTogether #Anxiety #Depression #Migraine #PTSD #ChronicDailyHeadache #MultifocalMotorNeuropathy #Hypersomnia #cramp-FasciculationSyndrome #BenignParoxysmalPositionalVertigo

    Post

    I’m new here!

    Hi, my name is Maddie. I'm looking for a welcoming community that will help me learn more about not only my diagnoses but the others out there too. Also, I am currently in school and struggling to get through the day because of my health issues. So, I am hoping I will find some advice or just some friendly words on here to help me each day and especially the rough ones. 😊

    #MightyTogether #Fibromyalgia #SocialAnxiety #Depression #polycysticovarysyndrome(PCOS) #ChronicDailyHeadache #Hypersomnia #HypermobilitySyndrome

    Post

    I'm new here!

    Hi, my name is Michelle79. I'm a divorced mom of 2 teens without a support system. I feel like I'm scrambling just to survive. I'm lost - I know that help is available but need help finding it. I'm dealing with all this while still trying to be the mom my kids deserve. My hope is I can gain knowledge, resources and validation that I'm not alone.

    #MightyTogether #MultipleSclerosis #Scleroderma #Hypersomnia #PTSD #OCD #Anxiety #Narcolepsy

    Post
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    Hypomanic response to bupropion/Wellbutrin?

    With so many different diagnoses, and so many medications to treat them, it can be hard to figure out exactly what’s going on with me. I’ve been functioning better than usual for the past couple of weeks, and then yesterday, I had more energy than I thought was possible anymore, and the past few nights, I’ve laid awake for hours at a time, in the middle of the night, despite not having napped during the day.

    Now, tonight, I’m filled with anxious energy and suddenly found myself just wanting to escape my life. My perfectly fine, well-loved life, with an amazing husband, and 3 sweet kids. My life where I don’t have to worry about keeping a regular job, and can supplement our income with my occasional balloon twisting gigs.

    Yet, for some reason, I suddenly feel like I want to escape. The only thing keeping me from impulse buying is the knowledge that there is NO money available to spend. I want to eat ALL the chocolate. I really want to go out, and have a one night stand, just to get pregnant, which can’t happen at the moment, anyway, but I know it would break my husband’s heart and certainly end our marriage. But these are the thoughts and impulses flying through my rampaging brain. And they’re ridiculous, on so many levels.

    I’m thankful that, for the moment, I’m healthy enough (medicated enough!) to realize how ridiculous it all is, and to keep myself from following up on them. I just feel guilty that the thoughts are even there. I’m thankful that the lifestyle I’m leading, right now, doesn’t lend itself to those kinds of mistakes, without a lot of effort. I just wish I could figure out how to be content with what I have, not longing for a dream that’s been shattered.

    I’m just a mess, and trying to keep on being productive and “healthy”, while keeping a lid on all the “crazy” that so desperately wants to come out.

    Also, side note, has anyone had a hypomanic/manic reaction to Bupropion/Wellbutrin? Because I just started it a couple weeks ago, and upped the dosage a few days ago. My energy levels are feeling much better, which was the goal, but this mental state is no fun. I mean, I could have a lot of fun with it, but then a TON of regrets.

    #BorderlinePersonalityDisorder
    #Bipolar2Disorder
    #ADHD
    #Depression
    #Anxiety
    #Fibromyalgia
    #Hypersomnia
    #Insomnia

    Post

    Yay for today!

    I’m so excited about today! I had more energy than I’ve had in a LONG time, did 2 loads of laundry (even folded!), and carried 5+ boxes of toys downstairs to get ready for next weeks garage sale. It was unbelievable! Yes, my back hurt like crazy, but I took the time to rest it for a while between tasks, and it was bearable. I’m hoping that this most recent med change is responsible, and that I can keep it up, but I’m also accepting that most likely I will be dead weight for the next 2-3 days, instead, and that’s okay. I’m just going to celebrate a productive day, and not worry about what tomorrow may bring.

    #Fibromyalgia
    #Depression
    #Hypersomnia

    Post

    I'm new here!

    Hi, my name is Miranda_H. I've been diagnosed with Idiopathic Hypersomnia, among other things. I look forward to being a part of a community that strengthens each other as we each face our own illnesses.

    #MightyTogether #Hypersomnia

    Post

    I'm new here!

    Hello. I'm Caroline but my username is Loudflower. I'm here because I've recently been diagnosed with hypermobile Ehlers-Danlos - this diagnosis came a few years after being diagnosed with breast cancer due to a gene mutation and going through all the surgeries and treatments that follow. That is the very short version. Life has changed, y'all. Some days I am determined and optimistic and too many days I am just struggling. It's a lot. I have even retired early (I am a pharmacist). I'm hoping to learn from everyone, and hopefully to find a laugh or two as well.

    #MightyTogether #EhlersDanlosSyndrome #JointHypermobilitySyndrome #Hypersomnia #HereditaryBreastAndOvarianCancer #HereditaryPancreatitis