Diagnosed Dec 2013
Hospitalised July 2014
On steroids for most of the year
Started Inflixamab, on that for two years stopped working, then changed over to the Bio did nothing.
Went back on steroids and Azathioprine for months.
Started Adalimumab on that for almost two years, went into remission for 6/7 months. Then it all started again adalimumab stopped working. Back onto another steroid had to stop it due to side effects, waited to start something new but due to COVID kept getting pushed.
Finally Ustekinumab kinda helped but not really. Stopped that due to antibodies. Then GI wanted to try Tofacitinib to see if colitis had a play in it but it didn’t work. Now in a very bad flare worse it’s been and waiting to be seen again. Was on Mebeverine all month to try help my ibs in the mean time but things got worse. Not to mention all the other medication to help acid reflex, spasms, pain relief and three different steroids. My current flare is going to the toilet every hour, all food just coming out undigested (I’m so hungry!!), bleeding every bowel movement, losing weight, my bum is so sore I can’t sit on it, my bones feel like paper, the good old mouth ulcers, eye inflammation, I hardly sleep due to needing to open my bowels, I have to avoid fibre and try not to have to much diary so no idea what to eat 🤦🏼♀️
Going for a scope next week and possibly starting Vedolizumab.
•
•
#CrohnsDisease #IBDAwareness #Spoonie #CrohnsFlare #Depression #Anxiety #IBS #IrritableBowelSyndromeIBS
Latest
