Irritable Bowel Syndrome (IBS)

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Irritable Bowel Syndrome (IBS)
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Hello there! 👋

We're so glad you're here. Scroll down to find some of the Crohn's conversations happening in our community. The more, the merrier—jump in anytime!

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10 reasons to join the Crohn’s and Colitis Support Group

1. It’s full of other people with connections to IBD.
2. It’s a safe forum to ask any and all IBD questions.
3. It’s a way to connect with others on the Mighty community.
4. I’m one of the group leaders (living with #UlcerativeColitis ), and I’m pretty cool.
5. We want to normalize talking about poop.
6. We do Q&As with partners like Girls with Guts.
7. It’s a small but “Mighty” community that we want to grow.
8. It’s supportive.
9. Why not?
10. Do it today!

You can search the groups to join. #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #IrritableBowelSyndromeIBS

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The Mighty's Crohn's Disease community is 76,000+ people strong, but there's always room for more. Follow along or join in today—whatever is comfortable for you!
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What is something you wish people knew about living with Crohn's?

What is something you wish people knew about living with Crohn's?

Your response may be used in an article or video on The Mighty.

#CrohnsDisease #ChronicIllness

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Venting…

I’m currently in the diagnosis stage for bipolar though I’m 99% sure I have bipolar 2.
I’m having the worst mixed hypomania episode that I can remember. This is in combo with recent SLE dx and some autoimmune gut issues-likely IBS/Crohns.

I’m really feeling at my lowest. I’m scared to take my SLE meds because of my gut & liver issues. I’ve just been thugging it out through the the body aches & pain.

I haven’t talked about any of this with friends and family. I don’t feel safe being vulnerable to this degree. In the past, it’s been dismissed or I’ve been cut off or relied on someone not healthy for me.

Finally seeking treatment because I’m tired of hating myself, not trusting myself and having to trust someone else to care for me.
I’d like to be able to know if I having exaggerated feelings or if someone is actually being rude/cruel to me.
I’d like to be able to let someone know I’m having a Hypo episode and ask for what I need.
I’d like to be able to ask for help and not push it away.

My husband was salty to me tonight and I feel like he murdered my kittens. I dissociated and now I’m bouncing between guilt and rage.

I’m a mess. I know meds, treatment, therapy won’t change all of this but I’m hoping for some brighter days once I get the help I need. Thanks for coming to my pity party pep talk.

#Bipolar2 #SystemicLupusErythematosus

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What symptom is annoying you the most today?

I know, I know — it can be difficult to choose just one, especially if you live with multiple health conditions. I’m having a hard time deciding between depression and migraine head pain myself! Both symptoms really seem to have it out for me today.

While the chronic nature of chronic physical and mental illnesses means we are affected by our conditions and their symptoms on a regular basis, there are some days when a single symptom stands out from the rest.

What symptom is getting on your nerves more than usual today? How is it affecting your ability to go about your day and night?

#MightyMinute #CheckInWithMe #Spoonie #ChronicIllness #ChronicPain #MentalHealth #RareDisease #ADHD #chronicmigraine #IrritableBowelSyndromeIBS #Depression #PanicDisorder

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I’m Lost

Hi (in my best Ross Gellar voice),

I’m not really sure where to begin…

I’ve been having a difficult time finding a support group, because I have multiple health challenges, and until now, I haven’t found one place where I could talk about all of them.

I was diagnosed with MS in June 2008. Then in October 2013 I had a fall in the shower that resulted in incomplete paraplegia (L4-L5). Around 2014, I started having difficulty swallowing, and beginning in the spring of 2016 I began having extreme digestive system issues… it got so bad, that I ended up losing about 150 lbs due to starvation/malnutrition, which resulted in a diagnosis of IBS in 2018, followed by feeding tube surgery in March 2020 (J tube). With the exception of an extremely small list of foods— namely rice cakes, potatoes, and soy yogurt, and beverages— namely ginger ale, decaf tea, and cranberry juice, I am 100% dependent upon my feeding tube for nutrition, hydration, and medication (crush & flush— I crush my pills and flush them through my tube. I also take some liquid medications orally.). In the spring of 2021 I received an intrathecal Baclofen pain pump, as well as a Hickman’s port, because my veins are small and difficult. And my most recent surgery took place in January 2024, after having sustained several falls, which further damaged my spinal cord, causing both bladder and bowel incontinence. I am now a double ostomate— the new owner of both a colostomy stoma and a urostomy stoma; my neurogenic bladder and sigmoid colon were both removed. And lastly (so far), I’ve been experiencing hearing loss, which is worse in my left ear. At my last PCM visit, my NP examined my ears, which had remained clogged for about 5-6 months, despite my attempts to unclog them with Debrox. She was able to unclog my right ear in her office, but she couldn’t even see inside my left ear, as she mentioned that my ear canal is curved, and referred me to an ENT specialist (appointment in August 2024). Sounds are muffled/distant, and more pronounced on the left side, which is somewhat confusing to me, as both ears seem to have unclogged and clogged up again on their own within the past 9+ months. I did have an ENT appt scheduled for earlier this year, but had to reschedule, because I was still having difficulty with properly attaching my ostomy pouches, and thus was experiencing embarrassing leaks.

I’m a 44 y/o disabled veteran and SAHM. I have 4 kids— 3 of whom are young adults (18, 22, and 24). My youngest is 14, and is homeschooled. I do enjoy homeschooling, but it was pretty much my only option, as all of my medical issues would frequently place me in the hospital for either scheduled appointments/surgeries or emergency visits. My children’s school district was unwilling to work with me, and would frequently mark them as truant, because they’d often have to miss school in order for me to make it to my appointments (otherwise, I might not have been able to get them picked up on time, or they might’ve had to remain absent until I was well enough to drive again.). I do have help— my 35 y/o brother lives with me, and is a great help; my 22 y/o and 18 y/o also still live at home with me. I mainly struggle with depression, anxiety, and feelings of inadequacy, as finding employment is extremely difficult, and I have unfortunately experienced the emotional pain of being ostracized. My medications often make me drowsy, and my pain levels can become extremely high. Also, my fine motor skills aren’t the best. I’m reaching out for support, as well as any ideas for hobbies, employment opportunities, or even possible small business ideas that could generate passive income that I could possibly explore. Thanks so much for having me! I hope to have finally found “my tribe” in this group!

(edited)
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