immunosuppression

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#immunosuppression #Holidays

My doctor just prescribed me an immunosuppressant for my condition. Going into Christmas especially does anyone have tips of what I do/don't need to stay healthy and Covid free?

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Hello Humira

My old friend.

I've been wishing I didn't have to see you again.

"Three years of remission!"

You would say,

But you're putting me at risk today.

Remission aside, there's a new guy in town.

Covid, they call him. And he's tearing us down.

I'm staying at home

I'm doing my part!

But still, these days feel pretty dark.

There is a lot I still want to see

My daughter all grown with her own family.

I know that I need you

So I'll keep our Friday dates.

And do my best to keep trusting fate.

We've been through a lot

And you've seen me through.

Just promise

That we will survive this too.

-19 #Humira #Poetry #immunosuppression #Survivor #selfisolation

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Extreme overwhelm #immunosuppression #Trauma #quarantine

I’ve been struggling with a lifetime of anxiety, depression and physical pain and illness, likely all stemming from long-term trauma. From chronic pain to extreme delayed gastric mobility to constant infections because my body has no immune system. I’ve managed to create somewhat of a life worth living, but it’s never without challenges. I work in residential behavioral health care as a counselor and I love my job. However, I’ve been sick with an unknown upper respiratory infection, and I’m stressed not knowing if it’s COVID-19, but the safest thing for me to do is wait it out at home in isolation, rather than ride public transportation for 2 hours to see my PCP or infect clients at work. Throughout this I am fighting social security because they claim that I’m responsible for this absurd amount of overpayment, when 2 staff at their office has told me I am 100% not responsible, the system is. Yet I still have to prove it somehow. It makes me so mad about how I grew up because I wouldn’t be in this position if that hadn’t happened. It’s overwhelming and I’m stressed and worn down. I’m so depressed and feel so alone. Thank goodness for my therapist who had a video/phone session with me today and my psychiatrist who has been checking on me daily. I’m also stressed because if what I have isn’t COVID-19, I’m still at high risk of getting it because of my immune system, which we’re still trying to figure out why my numbers are so freaking low, but I need to work and my work needs me. I feel so helpless and hopeless, and I just need to get this out of me so it doesn’t continue to fester. #COVID19 #depressed #SexualTrauma #Gastroparesis #immunodeficiency #immunosuppression

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To the Spoonie Moms

How on earth do you do what you do? I am a stepmom to two beautiful girls ages 6 and 4. I am chronically ill and immunosuppressed. I was sick this weekend when they came to see their dad, and I feel being around them made it worse. How do you amazing ladies handle your health and kids?
#ChronicIllness #ChronicPain #immunosuppression

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First Infection with Immunosuppressants

I officially have my first infection while on Methotrexate. Yay for viral infections! 🙃 And now I am at work, still sick, and my body is making sure to flare. Happy Wednesday.
#UndifferentiatedConnectiveTissueDisease #Lupus #immunosuppression

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¿What strategies do you use to deal with #immunosuppression thanks to #Arthritis meds?

I'm taking Arava and my rhinitis is horrible, I'm having a flu every two weeks or less and I'm living in a country that has a really cold weather these days! I'm desperate

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