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FLARES x 3 #multiple illnesses

I am not sure if this is where I should post, but I could really really use some advice on flares. I have been "flaring " going on 3 weeks. I don't know which illness is flaring? Fibromyalgia, Chronic Pain Syndrome, ME/CFS, Primary Sjögren's syndrome, osteoarthritis, refractory migraines, Lupus and RA are being tested. I have been in this pain circus for 17 years....
BUT never had everything 🔥🔥🔥 all at once. Please, if you have time and energy to share, tell me what to do to make it tolerable. I am sinking into pain quicksand, and I hurt everywhere. I appreciate you taking time to reply, if you can.
#Fibromyalgia #ChronicFatigueSyndromeampME #intractable chronic migraine #PrimarySjogrensyndrome #Osteoarthritis #Osteoporosis #Toomanytolist

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Ever fight with yourself?

Today I woke in pain; still. It’s winter and I tend to have SAD; CoVid is making it harder. I am a handicapped homemaker and my home helper isn’t available until after Christmas. There are so many things to do in my home; I don’t want to do any of them. That is my problem; a bad case of the blahs and intractable Pain. So, how do you get yourself to do the things you must do? I’ve been telling myself just do it then I don’t. #ChronicPain #intractable chronic migraine # Fibromyalgia #major depressive disorder with psychotic features #


Does anyone know if it’s a violation of the PA patient bill of rights to prohibit switching docs within a practice?

I’ve tried to research this, but haven’t found answers. I suspect it’s at least a violation of my right to a second opinion. I’m also interested in organizations I can contact for pro bono consultation on this.

(Mostly bc I need to vent)
I really dislike my neurologist but have been told that the practice doesn’t allow patients to switch doctors. I moved away for 2 years and hoped I’d get a shot at a new one when I came back, but within 3 years, you get put wiht the same doctor. I suspect the practice policy may be based on the fact that I’ve had very bad experiences wiht two of their 5-6 physicians (one told me “I’m sure you’re fine” when I had a negative response to beta blockers [um, no, not fine; I have bipolar disorder, and depression is a life threatening complication for me] and my current doc is basically robot who treats me like a collection of symptoms he’s running through an algorithm). This practice is one of two migraine specialty practices in my city and because of insurance, I can’t access the other one. #Migraine #intractable chronic migraine #PatientAndDoctorExperiences #Advice #ChronicIllness #ChronicMigraines #BipolarDisorder #ChronicPain



#intractable Pain!
Suffering has been induced on all the pain patients who have been removed from their meds!!! Not only have our meds been removed cold turkey, but the meds have been played with so they no longer act as before!!! AGAIN, WE are NOT the problem and NO ONE will listen!!! It is apparent that the people making these decisions are NOT active medical professionals who have to face these patients!!!
Plus, now we deal with the commercials that blame patients for the children becoming addicts!!! That is just white washing the problem!!! Medicine has been shoved Into the Stone Age!!! Take this horseradish root and rub it on the pain!!!
We have lost so many people to suicide because WE are being punished for the criminals who bring their poison into Our Country and passing it out to anyone who will take it!!!
How the problem is being addressed is the problem!!! You can’t punish patients so addicts will stop taking medications!!!
Perhaps you need to listen to the patients you are harming. We would NOT take meds except for the PAIN!!!
Please , I beg you, fix this mess!!!