Some people who love me know some of these, only my husband knows all of them.
I try not to overwhelm everyone about what is an overwhelming part of our lives, but this series on living with hemiplegic migraine is so well crafted and hits so close to our own experience, I thought those who wish to enter into ours at a deeper level may want to read it.
The issue of medication rationing is particularly striking, because no one wants to talk about it, or believe the choices we are forced to make, or that they would make the same should they find themselves in the same situation.
My team, which now includes more than 35 doctors nine years after diagnosis, has agreed to prescribe a 15 count supply of my strongest acute migraine medication. I can take a three count dose every three hours.
It takes a second grade education to realize, I could go through the entire month’s supply during a single attack if I choose to do so.
So, I don’t.
I was also warned not to use the Rx more than two days a week to safeguard against dependence, so I schedule my dosage dates. Each week I decide what days are the most important to live life to the fullest, be they my children’s birthdays, Christmas, or the day my son needs a new AFO. I won’t even discuss the side effects of neurological pharmaceuticals. The roulette played between symptoms or side effects is a dangerous gamble we are as powerless to overcome as gravity.
#Migraine #IntractableMigraine #HemiplegicMigraine #ChronicIllness #ChronicPain #PainMedication #SpecialNeedsMarriages #SpecialNeedsParenting